• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Interpret Results Please
0

7 posts in this topic

My 25 year old daughter was told the following was a negative result. ( I have celiac disease.) I am so confused. Test results are as follows: Immunoglobulin A 184 mg/dL reference 46-287

Tissue Transglutaminase IgA 37 units Negative less than 20 Units,

Weak Positive 20-30,

Positive more than 30

If positive is more than 30, how is a 37 negative. Please help.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


It isn't.

Find a new doctor and show him/her the results and request a biopsy for confirmation. They also did not run a complete Celiac panel.

1

Share this post


Link to post
Share on other sites

This is the current FULL celiac panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

Also can be termed this way:

Endomysial Antibody IgA

Tissue Transglutaminase IgA

GLIADIN IgG

GLIADIN IgA

Total Serum IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

And I agree with PricklyPear.

0

Share this post


Link to post
Share on other sites

I agree with the other posts. Yet - I'm curious if it was her doctor or perhaps a nurse or some other medical office personnel that told your daughter the results. If the result was typed the way you posted it - the first line has both her reading and the start of the ranges - thus putting the word "Negative" next to her result - which could have been misinterpreted - the test is DEFINITELY Positive. If it was a doctor that told her this was a negative result - I would find a new doctor immediately!

"Tissue Transglutaminase IgA 37 units Negative less than 20 Units"

In my 30s I ended up with cancer because someone incorrectly read my test results that indicated a pre-cancerous condition and told me ALL my tests were "normal" - ever since then I always get either hard or electronic copies of ALL medical testing for myself and my family.

1

Share this post


Link to post
Share on other sites

Excellent point Lisa.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Thank you to those who responded to my posts. My daughter had the Full Celiac Panel and guess what....POSITIVE as we all knew it. Why is this such a batte to get a proper diagnosis. Even the gastro doctor told her prior to the test, she is almost certain it would be negative. If we had not pursued this issue she would still be causing damage. At least she finally feels vindicated, but what about those people who are not as diligent in their efforts. I waited 25+ years for my diagnosis, but I thought we had made progress on this front. Anyway...thank you so much for your support.

0

Share this post


Link to post
Share on other sites

Doctors are acting like this is a made up issue. I tried a new doctor, because of a gallbladder problem. (I had it removed.) The visit after having it removed he asked if I was going to try and eat gluten again. "Because it was probably your gallbladder causing the symptoms."

Needless to say I am looking for a new doctor.

Thank God you were diligent and looked over those test results. I don't understand why the second doctor was still expecting a negative result!!?

0

Share this post


Link to post
Share on other sites




Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,349
    • Total Posts
      935,642
  • Member Statistics

    • Total Members
      65,031
    • Most Online
      3,093

    Newest Member
    TyishaErin
    Joined
  • Popular Now

  • Topics

  • Posts

    • I am sorry that you are sick!  Ennis has offered some great advice.  With small children, they can be glutening you.  I recall member Jebby getting glutened by her kids.  She worked full time as a neonatologist (premie doctor) and her kids would give her slobbery, adorable kisses, etc.  Jebby had the household go gluten free.  That might be something to consider.  
    • Hmm... my massage therapists use aromatherapy and specifically ask you to inhale several times while they hold it very close to your face and I do have them rub my face (although some people don't like that and don't have it done.) Lotion also ends up on your hands which you could transfer to food you eat afterwards if you haven't washed your hands well (obviously hand washing is key!) But I don't think that is too far of a stretch to think it *could* be injested and to double check to be sure the products used are gluten-free.  And at a salon I realize that they'd wash my hair tilted back but what about product(s) being spritzed on your hair when styled? Rare yes, but I do know I've "tasted" those products before! Ick.  
    • I was noticeably gray at 18. Both of my parents went gray young as well. I have no thyroid problems and I'm pretty sure my celiac issues didn't start until 20 years later....   I started dying it when I was 28. I wanted to look more professional!
    • Celiac disease is not diagnosed by symptoms alone. Why?  There are over 300 of them and many, if not all, overlap with other autoimmune issues or other illnesses.  Learn more about proper testing: http://www.cureceliacdisease.org/screening/ I am formally diagnosed.  My hubby is not.  His mis-informed doctors told him 16 years  ago to give up gluten.  It worked, but now we do not really know if he has celiac disease or not.  He will be the first to say that I get WAY more support from family, friends and medical.   I am sorry at your doctor gave you the wrong advice.  Now, you must decide if testing is worth pursuing.  I wish you well.  
    • I am considering having my brother - who inherited Daddy's power woodworking tools - plane down my cutting boards and sand the edges enough so I can keep them. The spoons and soup stirring things though will have to be decorative. Breaks my heart. I've had good luck with Merle Norman cosmetics. They have a listing of things that are gluten-free that has helped me. My local store owner was able to get the list and knows what I can use and what I can't.
  • Upcoming Events