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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Interpret Results Please
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7 posts in this topic

My 25 year old daughter was told the following was a negative result. ( I have celiac disease.) I am so confused. Test results are as follows: Immunoglobulin A 184 mg/dL reference 46-287

Tissue Transglutaminase IgA 37 units Negative less than 20 Units,

Weak Positive 20-30,

Positive more than 30

If positive is more than 30, how is a 37 negative. Please help.

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It isn't.

Find a new doctor and show him/her the results and request a biopsy for confirmation. They also did not run a complete Celiac panel.

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This is the current FULL celiac panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

Also can be termed this way:

Endomysial Antibody IgA

Tissue Transglutaminase IgA

GLIADIN IgG

GLIADIN IgA

Total Serum IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

And I agree with PricklyPear.

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I agree with the other posts. Yet - I'm curious if it was her doctor or perhaps a nurse or some other medical office personnel that told your daughter the results. If the result was typed the way you posted it - the first line has both her reading and the start of the ranges - thus putting the word "Negative" next to her result - which could have been misinterpreted - the test is DEFINITELY Positive. If it was a doctor that told her this was a negative result - I would find a new doctor immediately!

"Tissue Transglutaminase IgA 37 units Negative less than 20 Units"

In my 30s I ended up with cancer because someone incorrectly read my test results that indicated a pre-cancerous condition and told me ALL my tests were "normal" - ever since then I always get either hard or electronic copies of ALL medical testing for myself and my family.

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Excellent point Lisa.

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Thank you to those who responded to my posts. My daughter had the Full Celiac Panel and guess what....POSITIVE as we all knew it. Why is this such a batte to get a proper diagnosis. Even the gastro doctor told her prior to the test, she is almost certain it would be negative. If we had not pursued this issue she would still be causing damage. At least she finally feels vindicated, but what about those people who are not as diligent in their efforts. I waited 25+ years for my diagnosis, but I thought we had made progress on this front. Anyway...thank you so much for your support.

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Doctors are acting like this is a made up issue. I tried a new doctor, because of a gallbladder problem. (I had it removed.) The visit after having it removed he asked if I was going to try and eat gluten again. "Because it was probably your gallbladder causing the symptoms."

Needless to say I am looking for a new doctor.

Thank God you were diligent and looked over those test results. I don't understand why the second doctor was still expecting a negative result!!?

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