• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I'm Terrified Of This Dx... :(
0

18 posts in this topic

Recommended Posts

a84c72    0

For almost a year now, I've had SEVERE fatigue. There are days when I will sleep 10-12 hours, get up for a few hours, and go back to bed for another 3 (even with a CPAP). I also developed what really appeared as IBS and there were times when it was crazy painful after I ate, but was ok after using the bathroom. My upper abdomen started feeling sore to pressure and I complained "my liver hurts". All tests came back normal.

I was sent to a gastro for the IBS who decided to do a colonoscopy (and go down through the top, as well). That resulted in a stomach polyp that was benign and I thought everything else was fine until I got a phone call today. The biopsy from the other area the doc took samples from: celiac disease. I have no idea if a biopsy can indicate THAT, but that is what they said. She told me the villa in my intestine were "blunt" which was a flag to the doc.

UGH. So now I have to do a bunch of blood work.

This, on top of a recently diagnosed PCOS/insulin resistance along with borderline high cholesterol. While going through the PCOS diagnosis, I was found to be deficient in iron and vitamin D.

I am 40, a stay at home mother, and scared to pieces. I was afraid before because I sleep SO much and feel it isn't fair to my kids, but now...holy cow. I just wasn't ready for a celiac disease dx on top of an insulin resistance issue.

I have no idea what to do. I was overwhelmed as it was (and still am) with the insulin issue, but now I have to add into the equation gluten issues??

I read the "safe" and "unsafe" ingredient lists, but let's be honest: I don't even know what the majority of these ingredients are let alone trying to REMEMBER them when shopping.

There is a store that has gluten-free items (and expensive at that...we are on one income), but it's not a large section and I honestly feel as though between the PCOS and the gluten factor, I am screwed, for the most part. I mean, I can't eat a plain baked potato with the insulin issues!

We also do take-out because of schedules and looking at many of these menus......there is like hardly anything to pick from. Subway has NO BREAD that is friendly, although, some of their meats are. Well..what the hell good is meat without the bread?? LOL! I mean...SERIOUSLY!

So, I am wondering.......how does one deal with the insulin AND the gluten aspect? I read about the type 1 diabetes issues that is on here, but nothing about insulin resistance and/or type 2. :(

Appreciate any insight!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Lisa    457

For almost a year now, I've had SEVERE fatigue. There are days when I will sleep 10-12 hours, get up for a few hours, and go back to bed for another 3 (even with a CPAP). I also developed what really appeared as IBS and there were times when it was crazy painful after I ate, but was ok after using the bathroom. My upper abdomen started feeling sore to pressure and I complained "my liver hurts". All tests came back normal.

I was sent to a gastro for the IBS who decided to do a colonoscopy (and go down through the top, as well). That resulted in a stomach polyp that was benign and I thought everything else was fine until I got a phone call today. The biopsy from the other area the doc took samples from: celiac disease. I have no idea if a biopsy can indicate THAT, but that is what they said. She told me the villa in my intestine were "blunt" which was a flag to the doc.

UGH. So now I have to do a bunch of blood work.

This, on top of a recently diagnosed PCOS/insulin resistance along with borderline high cholesterol. While going through the PCOS diagnosis, I was found to be deficient in iron and vitamin D.

I am 40, a stay at home mother, and scared to pieces. I was afraid before because I sleep SO much and feel it isn't fair to my kids, but now...holy cow. I just wasn't ready for a celiac disease dx on top of an insulin resistance issue.

I have no idea what to do. I was overwhelmed as it was (and still am) with the insulin issue, but now I have to add into the equation gluten issues??

I read the "safe" and "unsafe" ingredient lists, but let's be honest: I don't even know what the majority of these ingredients are let alone trying to REMEMBER them when shopping.

There is a store that has gluten-free items (and expensive at that...we are on one income), but it's not a large section and I honestly feel as though between the PCOS and the gluten factor, I am screwed, for the most part. I mean, I can't eat a plain baked potato with the insulin issues!

We also do take-out because of schedules and looking at many of these menus......there is like hardly anything to pick from. Subway has NO BREAD that is friendly, although, some of their meats are. Well..what the hell good is meat without the bread?? LOL! I mean...SERIOUSLY!

So, I am wondering.......how does one deal with the insulin AND the gluten aspect? I read about the type 1 diabetes issues that is on here, but nothing about insulin resistance and/or type 2. :(

Appreciate any insight!

Hello and Welcome! I'm sorry it took so long for someone to answer your post. I will try, but I don't know anything about insulin resistant issues, so you might need to edit my post to meet your needs.

The blood work should not be a big issue. Make sure they do a FULL Celiac (Blood) Panel as you CONTINUE to eat gluten. They should also test your blood for mineral and vitamin deficiencies. Often times we are deficient in B-12 and Folic Acid, which would attribute to your fatigue.

After that's done, you are free to go gluten free. It can be a difficult transition. But to make it easy, start with fresh foods, meats, fish, rice, potatoes (? for you), fresh veggies and fresh fruits. Make it a rather natural diet and eat simply.

You can advance when you get a grasp on things. But, the most important thing to do now is to take a DEEP breath and know once you climb this hill...it's all down hill from then. Fatigue and pain will be gone and you will have lots of energy to spend time with your children. :) ...no pills, no surgery, just a better quality of life with just a few "tweeks".

Spend time with us and take baby steps. A diagnosis is the beginning toward feeling better. ;)

The following are the celiac specific blood tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

Although your Biopsy confirms Celiac Disease, your blood work and positive dietary response can also confirm a diagnosis.

Welcome to the Club!

  • Upvote 1

Share this post


Link to post
Share on other sites
MitziG    94

You are a lucky lady, even tho it doesn't seem like it now. Your doctor actually thought to check for celiac (rare occurence) amd he found it! The biopsy is indisputable, even if the bloodwork doesn't show celiac as well.

You are lucky because you are likely going to see your other symptoms decrease or completely disappear on a gluten free diet!

Insulin resistance, PCOS and fatigue can all be brought on by gluten. My fatigue was so debilatating, like yours, that I barely functioned. I was like a woman dying of cancer...but I looked healthy and so docs kept giving me antidepressants! I struggled with steadily worsening fatigue for 20 years until my children were practically raising themselves. I slept 16-20 hrs a day but never felt remotely rested. I would have slept 24 if not for the need to eat and pee! I also developed interstitial cystitis.

When I was finally dx with celiac, my life started to change. It wasn't immediate. Very gradually I felt a bit less drugged. By 7-8 months I no longer slept all day. A year and a half later I wake up on my own at 6 am every day and feel ALERT in a way I had not felt my whole life!

I know it sounds crazy, but I am so happy for you! You won't have to keep living this way- you won't believe how much better you CAN feel!

  • Upvote 2

Share this post


Link to post
Share on other sites
MitziG    94

Oh, also...in regards to what to eat NOW...check out Marks Daily Apple.com and his book The Primal Blueprint. Once you start eating primally, your insulin issues will likely cease to even exist!

Share this post


Link to post
Share on other sites
butterfl8    9

As miserable as you have felt, you will feel that much better, and more. I was also extremely fatigued, but it came on so gradually I didn't even consider it a problem. I also got hit with the 'high cholesterol' business. I was thankful for the dx, because this was something that could be managed without drugs, without surgery, etc. All you have to do is be careful about what you eat! And once you are eating right, you will feel better. That thought is what keeps me going--feeling better. Although now I feel great, so what keeps me on the diet is the thought of never feeling that horrid again.

As for the ingredients? It's absolutely easiest to start with whole foods--the outside of the store. You get all the fruits and vegetables that you want (except those high glycemic starchy ones), any meats and fish, rice, dairy (but be careful to begin with-you may start with a touch of lactose intolerance, but that can go away after a few months). Carol Fenster has some amazing cookbooks to help you out with new 'no flour' food. Can you tell us what country you are in so we can give you more information about labeling laws there? If you are in the U.S. or Canada, Shelley Case's "A Gluten-Free Diet" will go a long way towards taking away that terror when you are first beginning. I HIGHLY recommend Fenster and Case, who actually work together often. They are great resources for everyone.

Best of luck, and look forward to feeling better!!

Share this post


Link to post
Share on other sites
Ads by Google:


I am sorry that you have suffered with this. I am happy that you found out, because now you can do something about it.

I remember when I was giving a spelling test and would fall asleep between words. I expect you have some memories like that. I made it past 40 before I found out. I have been about 4 months grain free and classic gluten free 6 months. I feel for you. It is real, there is something wrong, and now it will be work.

I wish we could bring you a meal. Try to plan one meal at a time. Try to stay home for a while and figure things out. The forum is a good place to find people who will understand. You can find ideas of what to eat too.

I have started eating poached eggs on the soft side with every breakfast. For insulin problems you are better off making sure to have protein with fat for every meal. I just mention this one as eggs are easy to make and quick. Just hope we tolerate eggs.

I hope you will keep us updated and will recover.

Diana

Share this post


Link to post
Share on other sites
rosetapper23    236

I know that you seem overwhelmed at the moment, but part of the problem is that you're anemic. Of course, you feel overwhelmed! Once your nutritional deficiencies have been resolved, you'll be able to think more clearly and have more energy to organize and plan your meals (for both your family and you).

The advice above to eat primally is excellent. Mark Sisson's book is a good place to start, but the book "Primal Body, Primal Mind" goes into exactly what insulin resistance is about and how to overcome it. After you read this book, you should feel much relieved...because there IS hope to regain your health.

Regarding your meals, you really just need to concentrate on eating whole, natural foods. If your family needs takeout, okay, buy them takeout. However, YOU will need to follow a more healthful, natural diet to start feeling better. Also, celiac is a genetic disease, so it's very possible that one or more of your children also have celiac. You should definitely have all of your children tested (bloodwork) every few years, since celiac needs to be triggered....and can occur at any time during a person's life. Hopefully, once you're feeling more focused and energetic, you'll prepare meals that can be reheated whenever your family members are able to eat their meals--then you won't have to worry about takeout.

So...take a deep breath, take the necessary supplements to get better, and dive into your new gluten-free life. Eating BETTER isn't necessarily difficult--it just means changing your mindset about what real food actually is. Eating gluten free is not all that difficult, and sharing the gluten-free lifestyle with your family is a gift they should appreciate.

Please ask as many questions as you'd like--we're all here to help you!

Share this post


Link to post
Share on other sites


Ads by Google:


upwitht21    3

Was diagnosed with pcos about 2 years ago due to infertility. I never felt it was right and kept looking, was blood test diagnosed last November (also have a family history so opted to skip the biopsy) went gluten free and got pregnant in January with zero fertility assistance (miscarried) and am pregnant again 4 months later. Gluten messes with everything....you will be amazed the difference. Happy healing and keep your chin up, you are not alone.

Hugs!

Jess

Share this post


Link to post
Share on other sites
Takala    413

No, but you will eventually, if you exercise ENOUGH, be able to eat a stuffed baked potato with either yogurt or cheese or olive oil and vegetables and a meat on the side. Or a small serving of home made home fries on the weekends.

With insulin resistance/PCOS, you forget about eating the disaster of a food pyramid of high carb low fat, and eat vegetables, good fats, proteins, and fruits, and much less grain carbohydrate, sometimes, depending on what gluten free diet you get along best with, as a grainless version, such as SCD or Paleo.

Funny how people think they don't have enough time or money to make themselves well because they think they have to eat fast food. The time you spent sleeping is now going to be partially spent on food prep and packing lunches.

You shop around the edges of the grocery aisles anyway, with gluten free, and you stick with unprocessed foods. I suggest getting a crock pot if you don't have one already. I also, based on my own experiences, suggest you try google searching for recipes using almond flour or almond meal, which is high protein and low carb, there are blogs dedicated to this, and if you can handle nuts, you can make a LOT of different recipes with this. You can also, depending on your local suppliers and how sensitive you are, buy almonds in bulk or mail order, and grind them yourself very quickly in a blender, or mail order almond flour online.

If you don't live near good shopping, use mail order, if you have a question about something, go to the baking section and ask. I don't have buckwheat flour at the local store, but they DO have gluten free buckwheat cereal that I can then grind in a dedicated coffee grinder. A little buckwheat flour goes a long way in a recipe. I use amaranth flour for its protein and mold retardant properties, a baked good made with some of it as part of the flour blend won't go moldy after a week in the refrigerator.

Really good pancakes/flatbreads can be made out of 1/3 each buckwheat, potato starch, and garbanzo bean flour. (if you need to, you can sub the bean flour, but it does work best, and this is technically a grainless recipe, as buckwheat is a seed).

For your family, you may want to make brown rice your staple grain, and cook more with beans and potatoes for their starch needs, as it is easier to do the family dinners gluten free. If you end up thinking you have a corn problem, try eating fresh sweet corn and seeing if you react, if not, then your corn meal or flour was cross contaminated.

For lasagnes, cabbage leaves can be substituted for the noodles, for low carb, and I've served this to other people and they can't believe it's got cabbage in it. Rice noodles can be used for regular gluten free pasta dishes.

Be aware that a small percentage of us also react to gluten free certified oats anyway. The very sensitive react to things made in factories that grind oats. So hold off on the oats for a little bit until you get the other part squared away, so you can test it.

Other typical reactions can be to soy flour. There is such a thing as gluten free soy sauce, Tamari, by San J. Fermented soy sauce does not bother some of us.

Bet you're looking at your ketchup. Good news is, regular Kraft brand Heinz will say gluten free on the label.

Vinegar. Pure 100% Apple Cider Vinegar is safe.

If you think you can't bake, you can experiment with microwave baking at first, using baking soda and cider vinegar for leavening, especially with bun-in-a-cup type recipes which use one egg, and make 1 to 2 servings of bread or cake in a bowl in 1 to 2 minutes. Chebe mix, which is tapioca flour, is another very easy way to make fast little breads gluten free. Chebes can be made into little oblong sandwich "rolls" which bake up quickly in oven or microwave. Other gluten free flours, say a 1/2 cup, and an extra egg and oil can be added to the Chebe mix, for variety. The egg and cheese/yogurt in them makes them rather dense and not as big a bad carb impact as regular breads. Chebe mix pizza crust is almost foolproof for home made gluten free pizza, and still less expensive than store bought. Pamela's is a good all purpose baking mix.

You can do this. It's not so bad once you get your shopping re adjusted. :)

Share this post


Link to post
Share on other sites
justlisa    29

I've been concentrating on recipes using coconut flour and almond flour... My hubby is type 1 diabetic... You should check them out. (Keep in mind that some recipes aren't going to be very good...don't get discouraged! Through trial and error I've come up with some really good ones)

Share this post


Link to post
Share on other sites


Ads by Google:


GFinDC    609

Hi,

It's great that you have an explanation of why you have been tired and feeling off for so long. Going gluten-free should help a lot with your symptoms. It may take a while for your body to adjust to gluten-free eating, but if you stick with it the improvement will come. Healing is not a first day thing though, it can take months to get you gut back in shape. For the type 2 you want to keep with a low carb diet, and eat some protein with every meal. A grain free diet is totally doable, and is not a bad way to go. You can eat most whole foods like meats, veggies, and nuts. Low carb eating is good for anyone though, not just people with blood sugar issues. Your whole family should really do it as it will help their health in the future. Some celiacs do a totally grain free diet to avoid cross-contamination issues with grains.

The glycemic index is one way to think about how foods can affect your blood sugar.

http://www.glycemicindex.com/

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Dessert thread

Easy yummy bread in minutes

How bad is cheating?

Short temper thread

Non celiac wheat sensitivity article

http://www.nature.com/ajg/journal/vaop/ncurrent/full/ajg2012236a.html

  • Upvote 1

Share this post


Link to post
Share on other sites
kittty    22

For lasagnes, cabbage leaves can be substituted for the noodles, for low carb, and I've served this to other people and they can't believe it's got cabbage in it.

Oh yum! I'm going to try that this weekend!

Share this post


Link to post
Share on other sites
nvsmom    332

HUGS. It can be a shocker. I'm a 38 yo SAHM too, and I also wondered if approaching middle age was supposed to feel that sluggish. I got enough done because I had to but I definitely don't have the cleanest house on the street, and would rather curl up with a book than walk my kids to a park. It was almost a relief to find out that I was celiac and that what I was feeling wasn't the way it was supposed to be. "Normal" must feel like such a caffeine buzz!

You will probably have to eat out less. Fast food isn't very celiac friendly. I always have a stash of a couple of Lara Bars (2-5 recognizable ingredients per bar) with me when ever I leave the house so I don't end up hungry somewhere. Find some good gluten-free cookbooks from the library. There is lots you can still eat. Rice noodles instead of wheat noodles, gravy with cornstarch instead of flour, corn or rice tortillas instead of wheat, more potatoes and rice and yams and quinoa... Really, it is just a few ingredients that are off limits, and after just 2 months, I'm getting very good at picking foods I can eat. My entire family has been almost completely gluten-free this week and they never noticed...because I didn't point it out to them. Hang in there.

You might want to get TSH and T4 tested for hypothyroism from Hashimotos disease; it's a common autoimmune disorder where your body attacks your thyroid (like a celiac's attacks her intestines) which really slows your metabolism and causes fatigue and celiac-like symptoms. After being gluten-free for a couple of months, my energy hadn't improved but I found out my thyroid isn't working so it keeps me sluggish. While running around doing errands the other day, I stopped to check my blood pressure in the drug store. I was harried, the kids were irritating me, yet my bp was (low) 102/68 and my pulse was 60... no wonder I was sleepy. :huh: You might want to mention hypothyroidism to your doctor too.

Best wishes.

  • Upvote 1

Share this post


Link to post
Share on other sites
beachbirdie    43

For almost a year now, I've had SEVERE fatigue. There are days when I will sleep 10-12 hours, get up for a few hours, and go back to bed for another 3 (even with a CPAP). I also developed what really appeared as IBS and there were times when it was crazy painful after I ate, but was ok after using the bathroom. My upper abdomen started feeling sore to pressure and I complained "my liver hurts". All tests came back normal.

This, on top of a recently diagnosed PCOS/insulin resistance along with borderline high cholesterol. While going through the PCOS diagnosis, I was found to be deficient in iron and vitamin D.

I am 40, a stay at home mother, and scared to pieces. I was afraid before because I sleep SO much and feel it isn't fair to my kids, but now...holy cow. I just wasn't ready for a celiac disease dx on top of an insulin resistance issue.

I have no idea what to do. I was overwhelmed as it was (and still am) with the insulin issue, but now I have to add into the equation gluten issues??

I am sorry you are feeling so overwhelmed, but I can see quite a few of the great forum members have already passed on some worthy advice.

I do have an exception, and that is rice. My brother is diabetic (Type 2) and has found that rice really spikes his blood sugar badly. I concur with those who suggested just eating whole foods (meats, vegetables, a little starch) or going whole-hog (pardon the pun) into something like paleo- or primal-eating, and the Specific Carbohydrate Diet or GAPS diet might be helpful too. Google them, easy to find!

Don't think you need to replace all your gluenous stuff with expensive gluten-free stuff. There's plenty to eat without it! This doesn't have to be expensive.

Just know that you will be amazed by how much better you feel when you get your diet going. There is a learning curve for it, but it won't take long before it's second nature!

  • Upvote 1

Share this post


Link to post
Share on other sites
beachbirdie    43

Okay, I realize you are already overwhelmed and this is all so new you might not have the energy to go searching for all these places...so here are a few more links for you...

Mark's Daily Apple

Specific Carbohydrate Diet (this was created for people with Crohn's Disease...you can jump into the full diet without going through all the beginner steps if you are not having the diarrhea and cramps and all the intestinal discomfort...just use the food lists and guidelines for advanced folks!)

GAPS Diet Same advice here...just jump in, don't worry about starting where the beginners start...just start using the food lists...

Read some fun stuff...

Cave Girl Eats

Chow Stalker

  • Upvote 1

Share this post


Link to post
Share on other sites


Ads by Google:


BitterGrad    0

Hang in there. It is an overwhelming diagnosis but it gets easier! Once you start feeling better life is awesome. Your energy levels will be through the roof. There are so many gluten free breads now too. Costco even carries a brand now!

Share this post


Link to post
Share on other sites
jlaw    3

Was diagnosed with pcos about 2 years ago due to infertility. I never felt it was right and kept looking, was blood test diagnosed last November (also have a family history so opted to skip the biopsy) went gluten free and got pregnant in January with zero fertility assistance (miscarried) and am pregnant again 4 months later. Gluten messes with everything....you will be amazed the difference. Happy healing and keep your chin up, you are not alone.

Hugs!

Jess

Congrats, Jess! All the best

Share this post


Link to post
Share on other sites
a84c72    0

Thank you for all of the information!!! WOWOWOW!

I read that before I actually do the blood testing, I shouldn't start the gluten-free? Still, the villa are pretty blunt, from what I'm told so I am betting the blood work will confirm it. UGH. Figures.

I am still very much afraid of trying to get the hang of this and trying to make sure I don't "screw" everything up. HUGE lifestyle change, for sure.

As for the hypothyroidism, I've had that all tested when the endocrinologist did numerous blood panels during the insulin/PCOS/etc testing. No thyroid issues.

My PCP tested for rheumatoid issues because my body just tends to ache for "no reason". SED rate was 25..... everything else was normal, pretty much (low saturation, low iron, the given stuff I already knew).

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,896
    • Total Posts
      938,534
  • Member Statistics

    • Total Members
      65,804
    • Most Online
      3,093

    Newest Member
    Junimoon
    Joined
  • Popular Now

  • Topics

  • Posts

    • Before ordering the endoscopy, you would think they would order the complete celiac panel.  Not all celiacs (like me) ever get a positive TTG (I do test positive to the DGP, but negative to the EMA and TTG).  You would think that the additional blood tests would be way more cost effective than going directly to endoscopy.  The endoscopy usually is still considered necessary for a celiac diagnosis, but there does not seem to be strong evidence that she has celiac disease other than a family history.   Some celiacs are seronegative negative, but your daughter was only negative on just one of the celiac tests.  So, she MIGHT be seronegative.  More investigation is needed.  She is NOT IgA deficient, at least for celiac testing (for celiac disease this test is just a control test).   The DGP test seems to be better for small children.   I do not have the complete health history of your child, but I would seek a second opinion before going to an endoscopy at this time with only one test result.  Try to find a celiac-savvy GI -- one who follows what the American GI Association  recommendations for celiac disease and what the Mayo Clinic or a large celiac research center recommends for testing protocol. https://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf https://gi.org/guideline/diagnosis-and-management-of-celiac-disease/  
    •   Hello linzk8! I would suggest you to go with natural foods as you are allergic to latex. One of my friends had the same problem. She also had latex allergic. She used Indian nuts to lose weight purchased from the official site of Nuez Dela India and achieved a success. You can also check the same. Eating at the right time is also important. Avoid eating very late at night. It's fine to eat in between meals, but limit your proportions. Never starve yourself! Hope this could help you!
    • My family visited Peru (my 13 year old has celiac) last Christmas, and we found Peru rather gluten free friendly. Peru is the land of corn and potatoes, and they have lots of grill meats.   Their cooking ingredients tend to be naturally gluten-free.   We did the 4 day Inca trail hike to Machu Picchu, and our chef did a great job making gluten-free meals for my daughter.  
    • Most physicians follow the joint commission’s guidelines on prescribing HTN medications which usually begin with a diuretic and calcium channel blocker (the amlodipine) - see below. Is it possible that your bp was still not controlled on the CCB (amlodipine)? So the ARB was added? Again, I’d just like to say that just bc a drug does have certain adverse effects does not mean you will have them, but I understand if you would not even want to take the chance, given a previous history of celiac disease. http://www.aafp.org/afp/2014/1001/p503.html “In the general nonblack population, including those with diabetes, initial anti-hypertensive treatment should include a thiazide diuretic, calcium channel blocker, angiotensin-converting enzyme (ACE) inhibitor, or angiotensin receptor blocker (ARB). In the general black population, including those with diabetes, initial treatment should include a thiazide diuretic or calcium channel blocker. If the target blood pressure is not reached within one month after initiating therapy, the dosage of the initial medication should be increased or a second medication should be added (thiazide diuretic, calcium channel blocker, ACE inhibitor, or ARB; do not combine an ACE inhibitor with an ARB). Blood pressure should be monitored and the treatment regimen adjusted until the target blood pressure is reached. A third drug should be added if necessary; however, if the target blood pressure cannot be achieved using only the drug classes listed above, antihypertensive drugs from other classes can be used (e.g., beta blockers, aldosterone antagonists). Referral to a physician with expertise in treating hypertension may be necessary for patients who do not reach the target blood pressure using these strategies.” Drugs for BP in different classes work by different mechanisms. It may be worth it to print out those huge, long drug information sheets and go over them with a fine toothed comb. As for CoQ10, have you checked for coupons online? Can your doctor write you an Rx and get your insurance to pay? They might say it’s on OTC and you have to pay out of pocket, but it may be worth it to find a way around that - would a prior authorization do the trick? I don’t know, just bringing up the questions. In the report you cited, these concluding words were to me, chilling:
      “Therefore, we suggest the possibility of a class effect.” Losartan, olmeseartan - doesn’t matter. And I'll say it again, there must be a way to disseminate this information more widely as I had no idea about this adverse effect, and never heard any docs speaking about it either. It really warrants wider sharing. Finally, one person who is often an overlooked resource is your pharmacist. They have just tons of knowledge and should be able to talk to you in some depth if asked, in an articulate, easy to understand way. They may even be able to do some digging and research for you. Plumbago
    • Plumbago et al, Thanks for letting me know  about the "artan" drugs being ARBs. I think Cyclinglady was right the Losartan research is not free and thus not public. I saw the link with no abstract but wanted to read it to confirm as you noted in your ETA that it was another "Artan" drug Losartan causing the problem. I believe it is. I found a great (after more digging) review of all the "artans"/ARBs or most of them about whether they can contribute to sprue symptom's in addition to Benicar. here on wiley as studied by the alimentary pharmacology and therapeutic journal (AP&T) for short. http://onlinelibrary.wiley.com/doi/10.1111/apt.14176/full I wish I knew how to post the able alone it is very informative.  Please scroll over the table to the end of it since it even tells how long to expect before your sprue symptom's/conditions improve IF the "artan" drug is causing your symptom's which I find the most helpful thing about the table.  They also note histological feature (degree of villi blunting) to expect on biopsy. They note Losartan can cause "total atrophy of duodenal villi" by their reporting. I also recently had an issue with my potassium levels so I feel sure it is the Losartan. I remember reading a study about how losartan was better at the "chronic cough" I had developed using Lisinopril so I changed to Losartan a few years ago . . . now I find I could of been making my GI symptom's worse. But to answer  your other question since I began taking Folic Acid a few months ago my BP numbers went down to a healthy level of 120/80 or less sometimes . . . but with medicine. I had already been thinking I wanted to try get off the BP medicine (for good) so this is more motivation. C0q10 worked well but it is too expensive for me to take all the time! I called my doctor to have them put me back on Amlodipine/Norvasc and I can't remember why I changed off that medicine to begin with now.  I do remember needing two medicine's back then to control my BP so maybe we stopped the Norvasc instead of the Linsinopril. But now that they have put me back on Norvasc I hope my potassium levels will correct themselves. I just don't feel safe anymore taking Losartan after learning it could be making my GI symptom's worse or causing the to be unreliable. I first thought my touch of D. was from an antibiotic round but when kefir didn't get me back on track I suspected something else when my Vitamin D levels showed up low too again! Thanks everybody for ya'lls great suggestions and good research on my behalf. I also recommend this verywell article if you are still having GI problems and you suspect an "artan" like ARBs BP medicine and looking for a medicine that might have less severe  or more manageable symptom's for your lifestyle because it comprehensively list's the medicine's by drug types. https://www.verywell.com/hypertension-drugs-1745989 no medicine is without a side effect as (I) am learning but I never thought sprue would be one for my BP medicine and why I prefer Vitamins when I can find out which one too take. Now that I have the Norvasc approved as a replacement for the Losartan I might see if my BP goes up again if I stop my medicine all together as I was hoping the Folic Acid might help me with it (without medicine) and it explains why I was low in Folic Acid to begin with again. posterboy,    
  • Upcoming Events