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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Keep Developing Food Intolerances!?
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Maryw88    0

Hi all,

I could really use some advice here. I am very frustrated and to the point of not wanting to eat ANYTHING.

I figured out I am at the very least highly gluten intolerant, I believe I have celiac disease. Since I found this out I have also discovered a severe soy and caeisin intolerance. If this wasn't frustrating enough, since I've cut these three culprits out of my diet I keep developing other sensitivities. I have been gluten low for about 1 1/2 years, but I only recently decided I could have celiac and went strictly GFCFSF.

Intolerances include: caeisin, soy, peanuts, coffee, citrus fruit, tomatoes, potatoes, broccoli, and cauliflower, most beans. I am beginning to suspect corn, quinoa, and eggs.

My primary care physician doesn't believe I have celiac disease, she tells me I have a "sensitive system." She helped me get my severe Vitamin D and B12 deficency under control, but told me I was fine after that. I tried to reintroduce gluten to get tested by another doctor but was violently ill. I also have acid reflux and burning or discomfort after every meal even on a gluten-free diet.

Basically, how do I stop this!? Will this get better on a gluten-free,CF,SF diet? I have been looking into the Specific Carbohydrate Diet as well as a rotational diet but I don't know if I am just not being patient enough with my gut? Will this get better without more drastic dietary change?

Sorry for the long post, I am just very frustrated and honestly, lonely. No help from anyone in the medical field is SO FRUSTRATING.

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Newbee    9

I feel for you. I am diagnosed with celiac disease and have a lot of damage in my system. I've found that I also have a lot of food intolerances and have not healed by just being gluten free (I've been gluten free over 13 months now). Based on advice from this forum I did try specific carbohydrate diet and have been doing that for several months now. It does seem to be helping although I do get tired of the limitations of the diet and am afraid I may be on the diet forever. Or maybe I'm just not very patient. Having food issues is very frustrating and I haven't got much help from the medical community.

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ciamarie    23

I hear ya! I certainly have felt like that some days myself. The day that nearly takes the cake was the day after I had just baked some beautiful and delicious gluten-free sugar cookies, I realize that one of my sensitivities is sulfites, of which corn starch is sulfited, which was in the baking powder I used to make the cookies. I think I still have a few of them in the freezer, just in case I can eat them some day.

In some cases, it may not be ALL tomatoes, for instance, but you need to try vine-ripened tomatoes (since the others are likely gassed), or that organic will work. I did have to give up coffee for the most part, as a daily beverage. It will get better, as you heal. And keeping a food diary, noting brands of things you try should help. It does take some detective work, but it's do-able. Hang in there!

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I am thinking that your body is developing new intolerances perhaps, but now it can tell you what is bothering it. There are many foods to try. I think I get a more varied diet with each thing I rule out. Your body may still be in transition. I know I can't tell withdrawl symptoms, from reactions, from ?

I am thinking with time you will be able to sort these things on. Hang on for the ride.

Diana

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cahill    189

Hi all,

I could really use some advice here. I am very frustrated and to the point of not wanting to eat ANYTHING.

I figured out I am at the very least highly gluten intolerant, I believe I have celiac disease. Since I found this out I have also discovered a severe soy and caeisin intolerance. If this wasn't frustrating enough, since I've cut these three culprits out of my diet I keep developing other sensitivities. I have been gluten low for about 1 1/2 years, but I only recently decided I could have celiac and went strictly GFCFSF.

Intolerances include: caeisin, soy, peanuts, coffee, citrus fruit, tomatoes, potatoes, broccoli, and cauliflower, most beans. I am beginning to suspect corn, quinoa, and eggs.

My primary care physician doesn't believe I have celiac disease, she tells me I have a "sensitive system." She helped me get my severe Vitamin D and B12 deficency under control, but told me I was fine after that. I tried to reintroduce gluten to get tested by another doctor but was violently ill. I also have acid reflux and burning or discomfort after every meal even on a gluten-free diet.

Basically, how do I stop this!? Will this get better on a gluten-free,CF,SF diet? I have been looking into the Specific Carbohydrate Diet as well as a rotational diet but I don't know if I am just not being patient enough with my gut? Will this get better without more drastic dietary change?

Sorry for the long post, I am just very frustrated and honestly, lonely. No help from anyone in the medical field is SO FRUSTRATING.

I am not sure you want to hear this but,

I took me going gluten,soy,egg,legume,nut,corn, nightshade, grain (except rice) and dairy free for six months to get my gut to heal enough to even start adding foods back. I also had to eliminate and/or limit certain fruits and veggies. I could not ( and still can not ) tolerate most meats. The foods I could eat I had to rotate .

I had leaky gut and at one point I would have swore ( and did , alot, along with a lot of crying and screaming :ph34r: ) that there was not a single food my body could tolerate.

Most , not all but most , of these food I have now been able to add back in to my diet.

Some ( gluten and soy ) will NEVER be part of my diet .

Some ,like nightshades, I still have to rotate.

But over all much better now :D

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eatmeat4good    313

I'm sorry you are feeling so bad. My first year was much the same. I just want to say that if you really are Celiac and you have not been strictly gluten free and watching cross contamination then your system has not had much chance to heal at all. Give gluten free a good strict try including cross contamination.

Secondary intolerances are very common. My first year I went through eliminating gluten, then dairy, then soy, salicylates, nightshades, citrus, you name it, I tried eliminating it. What really helped was paying strict attention to gluten CC and eventually I got everything back but Soy (still strictly free of soy)and Salicylates (which are cumulative). I have to watch them, but I can eat some. It is very frustrating I know. I didn't want to eat at all for a while too. But the gut cannot begin to properly heal until you have really and truly eliminated gluten. You may be surprised at the foods you will be able to tolerate later. You know your body better than your Dr. does. If you believe you are Celiac/Gluten Intolerant then be very serious about it so your body can heal itself. Welcome to the forum!

I almost forgot, I cannot eat legumes at all. Very like gluten in my system. But that elimination has not bothered me in the least. You may have to do the elimination thing for a while to get some healing.

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