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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Do Reactions To Gluten Get Worse The Longer Diagnosed?
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6 hours ago, Worsum said:

So then there is an allergy going on with something in the lotions outside of the gluten? That would make sense as well. I was told by my doctor that gluten can be absorbed through the skin and cause reactions as well. This is why I thought the lotion was the issue. And since I am so very reactive to absolutely everything right now sometimes it's hard to tell the difference between an allergic reaction and the celiac response. This is all still very new to me.

Karen is right.  The scientific community agrees that gluten can not be absorbed into the skin.  However, you can have more than just celiac disease going on.  You might have an allergy or intolerance to any of the ingredients.  Who knows?  

Personally, I make sure that all products that might come into contact with my mouth, are gluten free. That includes anything I put on my lips and on my hands.    Do I know the source of say, tocopheryl, when I am in the store?  No (am not going to waste time looking it up or waiting to call the manufacturer).  I just do not buy the product.  Piece of mind is priceless.

When I first moved out, I went to make a sandwich.  The mayo in the frig (roommates) had been there for a while.  Was it safe?  Called home and my Dad said, "Is it worth a buck to get food poisoning?"  Obviously not.  So, I ate my sandwich dry and later purchased a new jar (dated it upon opening and still do to this day).  

I have allergies to all kinds of weird things.  A bug bite can cause me to develop a full body rash/hives and not just a localized area.  The rash will be way worse if I am having a celiac flare-up (have been exposed to gluten). 

If in doubt avoid it.  Soon, you will get the gluten-free diet down.  There is a steep learning curve and honestly, in the beginning, it is hard to think.  Best to keep to simple things.  Less worries and you reduce the risk of a glutening.  

 

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The problem with lotions and shampoo etc is that once it is on your skin/hands, it is easy for it to get in your mouth.

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I have definitely learned first hand about the ingesting part of the gluten thing. Even a little soya sauce or teriyaki sends me into the 'bowels' of despair for hours and can last days. The pain is terrible. Glad to know that at least the lotions won't actually do major damage as long as it's topical I can at least deal with the rashes. Thanks for the help in understanding the difference. :-)

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I am new to Celiac and honestly don't know why I react to certain foods - like Honeydew melon. I was told that melon is good the first day but starts producing mold soon after.

 Some of us may have allergies and they are masked/covered by gluten issues.  My mother and I both wind up with a cardiac arrhythmia, which causes dizziness and totally wipes us out once the reaction is over in 2-3 days.  For us,  the dizziness is due to the allergic response, and then also have the bad stomach to go with it.

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1 hour ago, Momma Donna said:

I am new to Celiac and honestly don't know why I react to certain foods - like Honeydew melon. I was told that melon is good the first day but starts producing mold soon after.

 Some of us may have allergies and they are masked/covered by gluten issues.  My mother and I both wind up with a cardiac arrhythmia, which causes dizziness and totally wipes us out once the reaction is over in 2-3 days.  For us,  the dizziness is due to the allergic response, and then also have the bad stomach to go with it.

Welcome to the forum!  Check out our Newbie 101 adbpvice for some valuable tips.  

Most of us have temporary or sometimes permanent food intolerances due to intestinal damage.  You might like this Article which features Dr. Fasano, a leading celiac GI expert which explains the possible reasons why:

http://www.npr.org/sections/thesalt/2015/12/09/459061317/a-protein-in-the-gut-may-explain-why-some-cant-stomach-gluten

 

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Hi!

i was diagnosed in January of 2017 by biopsy. My main symptoms were acid reflux/indigestion, bloating, and fluffy and loose bowel movements. Luckily, I was diagnosed early, and the amount of damage to my intestine is probably less than what's typical. 

After going gluten-free, I did at first think I felt worse after getting glutened because I got used to feeling better and was hyper aware of any symptoms. It was also difficult to determine the cause because I'd only experience mild bloating and fluffy/loose bowel movements, which were sometimes not occurring until the next morning.

In February or March, I went through a bout of denial hoping I had tropical sprue instead of celiac because I had done a lot of traveling in areas where you can contract it.  So we ordered pizza and the breaded chicken bites from Dominoes.  I felt bloated - but who isn't after eating a meal like that - and didn't have diarrhea until the next afternoon.  

I was careless today and didn't read a label until 2 minutes after I had consumed the fish oil and saw it was processed in a facility with wheat. After only 15 minutes or so, I started feeling extremely nauseated, a little achey, and then had diarrhea. I am feeling really tired, have that same hangover feeling others have mentioned, tired and just blah all around. 

So, yes, I feel my reactions have become not only worse but more immediate. The one benefit is that it's been a lot easier to narrow down the cause! 

 

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    • All the above plus, "oh, so you can't eat bread".  And being oblivious to undiagnosed celiac disease causing myriad organ/nerve damage.  
    • Might help with ease of digestion, and there is studies that show it helps in the breaking down of carbohydrates so it helps reduce gas, bloating, and indigestion, But not really helping much your immune system attacking your intestines trying to kill the gluten, Still going to get damage and stuff in the background.  I use it in making dairy free cheese, and sauces to give it that "bite" I also use it in baking in combination with baking soda subs and baking powder for rising gluten free and yeast free baked goods.

       
    • If flying I do not know, I normally take a car or train. And I bring chef kit with a griddle, and nordicware cookware. My thoughts, bring meal replacement shakes, jars of nut butters, and protein/nut bars, Perhaps crackers? I know they make some gluten free ones (I can not consume most as I can not have carbs or grains). I honestly make Nut meal/butter porridge out of coconut and almond flour with almond butter. I add extracts and stevia for flavor and sweetener. Other thoughts for cooking in your hotel room. Noridicware makes microwave cookware, grill sheets, steamers, omelette makers (know you can not), rice cookers. etc. You can bring these in your luggage easier and just use the microwave or request one in your room. This way you can say have steamed fish and veggies, bacon, rice, porridge, etc. and fix it safely right in your room.
    • If you are celiac you HAVE to be gluten free no matter how inconvienent it may seem to you.  Your body is clearly telling you to stop cheating on the gluten free lifestyle. If you need help with identifying where you can improve we are here to help in any way we can. You need to go and read the Newbie 101 thread at the top of the Coping section. It has a lot of valuable info for you. I hope your pain resolves soon but be aware that for some repeat glutenings can lead to the development of other autoimmune problems and for some the pain of each repeat glutening can increase as well.
    • Unless you go 100% gluten free it will only get worse, lead to complications, and eventually kill you. I did not know about mine for years and ended up with other auto immune disease, multiple allergies, and  food intolerance issues. I thought I was dying when I figured it out and went gluten free. You can not cheat on this diet as the antibodies will spike for weeks to a month. Symptoms from a gluten exposure can take days, weeks, and months to go away. In the case of nerve damage (mine started effecting my brain and nervous system) years before you start seeing improvement.

      It is quite hard at first, but once you get it down it becomes second nature. there are many gluten free alternatives now days to make it easier. Now with your severe amount of issues and pain ignoring it. You probably already developed other food intolerance issues, and will probably have a very limited diet for awhile til you heal somewhat.

      https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/ https://www.celiac.com/gluten-free/topic/119661-gluten-free-food-alternative-list-2017/
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