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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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How Long Does It Take To Feel Bad After Eating Gluten

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I'm very new to this and currently on an elimination diet of dairy and gluten. I plan to do this for one month and then introduce dairy, wait a month and then introduce gluten.

How long does it take to feel sick from eating gluten. I ate some gluten (by accident) this past Sat and felt fine that evening. The next day was not so good. Abd pain, malaise, bad gas. Symptoms lasted for two days and now I'm starting to feel better.

Does that sound normal?

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I think reactions vary wildly. Some people have almost no symptoms and others end up bedridden. Some celiacs have no gastro symptoms where as others just get that. Reactions hit immediately to days later...

I tend to get a stomach ache after 15 minutes; bloating in about an hour ,which is very uncomfortable for about a day, and lasts in a milder form for a few days; and within 24 hours I get a migraine that lasts a few days. I won't feel quite right for a good week or two.

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First my question is, do you have Celiac? Or have a gluten intolerance or allergy? I saw that you said you are going to eventually re-introduce gluten, is that to see if you are intolerant? If you haven't been tested yet, I'd get the full Celiac panel testing done before starting an elimination diet, especially if you are suspecting that gluten is the culprit. If you start cutting out gluten now, then you may never get accurate testing results.

As far as the reactions - I never had reactions before I was diagnosed and started going gluten free. Now within a hour a begin to bloat and my abdomen becomes rock hard. I usually have D that night and then become constipated the next few days. Also, depending on how much gluten I'm exposed to, sometimes my joints (knees) will swell up and I get some brain fog. It usually goes away within a couple days for me.

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First my question is, do you have Celiac? Or have a gluten intolerance or allergy? I saw that you said you are going to eventually re-introduce gluten, is that to see if you are intolerant? If you haven't been tested yet, I'd get the full Celiac panel testing done before starting an elimination diet, especially if you are suspecting that gluten is the culprit. If you start cutting out gluten now, then you may never get accurate testing results.

As far as the reactions - I never had reactions before I was diagnosed and started going gluten free. Now within a hour a begin to bloat and my abdomen becomes rock hard. I usually have D that night and then become constipated the next few days. Also, depending on how much gluten I'm exposed to, sometimes my joints (knees) will swell up and I get some brain fog. It usually goes away within a couple days for me.

Thanks for your reply. I had lab tests done that were negative. I ate gluten up to the day of my lab tests. I'm still convinced that I have a gluten intolerance but I plan to test with diet elimination to be sure. 11 years ago at the random age of 22 I deveoped pernious anemia and now have to take B-12 shots for life. I've had GI upset for a while but it had ramped up big time over the last few months. Tried 3 weeks of prilosec without improvement. Feeling quite well today after having a migraine last night. Today is day 4 since eating gluten.

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Lol ok just checking! I'm glad you're feeling better and I hope that you can find some answers to your symptoms. I've dealt with anemia too and it got to a point where one summer I developed pica and all I ate were ice chips. My mom got so freaked out that she took me to the doctor and I was made to have an iron infusion via IV. My anemia improved and now I'm just iron deficient but hopefully that will get better.

Have you felt better since starting your gluten free diet? I know its only been like 5 days for you so far but some people start to feel better right away. I wish you the best!!!

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As mentioned, it varies. It hits my daughter after roughly 24 hours and she remains in bed for anywhere up to 3 days, if she walks she can't stand upright, so is hunched over to go to the loo then goes back to bed and stays curled up in a ball, she can't stretch out.

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Lol ok just checking! I'm glad you're feeling better and I hope that you can find some answers to your symptoms. I've dealt with anemia too and it got to a point where one summer I developed pica and all I ate were ice chips. My mom got so freaked out that she took me to the doctor and I was made to have an iron infusion via IV. My anemia improved and now I'm just iron deficient but hopefully that will get better.

Have you felt better since starting your gluten free diet? I know its only been like 5 days for you so far but some people start to feel better right away. I wish you the best!!!

What was your experience leading up to and quiting gluten?

After being off gluten for a few days I started feeling REALLY good. There may be a mind/body component to it but I felt much clearer and needed less sleep! After eating gluten this past weekend I've felt like crap all week, mostly malaise and headaches. It comes in goes in waves almost, part of day feel okay and then feel like crap. I'm hoping to clear up by the weekend and go on a nice stretch of feeling good.

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My reaction hits in three hours.

richard

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It is different for everyone--you will become familiar with what is normal for you. Mine is right around 2 hours. As time goes on, they don't last as long for me--I'm generally better in a couple, 2-3 days. At the beginning, it would be closer to a week or 2.

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I have symptoms within a few hours, they pick up speed and intensity by day 2--- and then I have them for nearly 2 weeks.

But, this is my experience (I am post-DX 20 months) and it may not be the same for you.

I hope to be more like the others whose symptoms resolve more quickly as each year passes.

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For me is mainly malaise what I get, it starts always on next day, and lasts 2-3 days, I'm not celiac as per my tests, I'm just trying to understand if I'm gluten intolerant.

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Hello raistlinm

Welcome to the forum :)

Just to let you know this thread is a few months old and posters may not be around.

You can always start a thread and introduce yourself.

Happy reading, I hope you find some things to help you here.

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