• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
Chris Anne

Western Pennsylvania Celiacs

Rate this topic

Recommended Posts

My name is Chris. I am 10 months diagnosed. Looking for people in my area to chat with.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Chris

I'm close to the Pittsburgh area...been gluten-free for about ten years now. I'm the founder of a independent support group....run a mini coop & do gluten-free testing.... for a few companies...

blessings

mamaw

Share this post


Link to post
Share on other sites

Hi Chill

How are you? Better I hope!!!!

Share this post


Link to post
Share on other sites

Hi Chill

How are you? Better I hope!!!!

Much better Mamaw :D How about you, How have you been??

Share this post


Link to post
Share on other sites
Ads by Google:


I'm good having some thyroid med issues but it is a endo problem not giving enough since I have no gland left... Been busy canning a ton of veggies.. Getting ready for two gluten-free events in Ohio in Sept then at end of Sept we head to Baltimore for four days for the food expo & then to Philly for the Appetite For Awareness gluten-free event... It is soooo ooo much fun.. If you never attended you should its worth the trip...

Then in October a few more events to attend....Fall is my busy time.....events & doing the gluten-free food orders.....

Share this post


Link to post
Share on other sites


Ads by Google:


Me too! & early spring. I don't like the hot, humid summers...

Share this post


Link to post
Share on other sites

I'm good having some thyroid med issues but it is a endo problem not giving enough since I have no gland left... Been busy canning a ton of veggies.. Getting ready for two gluten-free events in Ohio in Sept then at end of Sept we head to Baltimore for four days for the food expo & then to Philly for the Appetite For Awareness gluten-free event... It is soooo ooo much fun.. If you never attended you should its worth the trip...

Then in October a few more events to attend....Fall is my busy time.....events & doing the gluten-free food orders.....

Hi! I am and hour and a half north of Pittsburgh, originally from near Monroeville. Do you do any of these events in Pgh. area? I would love to attend but not sure about travelling to Philly. Hope your thyroid issue gets to be better for you! Look forward to chatting with both of you!

Share this post


Link to post
Share on other sites

Chris

I just sent you a private e-mail.

Yes, there are closer events. The Raisin Rack in Canton isn't that far away. That is where I shop... Sept 8 is when this store has a small sampling day, nothing big but a great store..Then on Sept 9th in Solon, Ohio ( near Cleveland area) there is a event with speakers , vendors/bakers & gluten-free product to purchase....this is my first time at this event as a baker/vendor...

Then in October ther is an event in Cranberry Twp , very close. I will be working that event as well. Oct 27th from 8:30 to well sorry I just forgot!...This is a new one so not all details are worked out yet...Four Points Sheridan.........

This area is not very popular with events....I learned a long time ago that we need to be a road runner to stock up on gluten-free... There are four of us gluten-free & more that needs to be!!!!

I can give you a heads up on everything around here & then other states too....

There's is so much new gluten-free foods these days but still the nasty stuff is still out there too... years ago we had no choices so these days are wonderful for us older celiac faces....

By the way Gaint Eagle is now carrying Goodbye Gluten Bread for $5..49 a loaf, good moist bread that needs no heating!!!!

mamaw

Share this post


Link to post
Share on other sites


Ads by Google:


Hi! I am and hour and a half north of Pittsburgh,

You are pretty close to me then, sent you a PM :)

Share this post


Link to post
Share on other sites

If you are near the Hermitage area, there is a support group that I belong to. We meet the second Thursday of each month at 6:30 PM. I was diagnosed 3 months ago, and everyone has been fantastic at this group. It's so comforting to talk to someone else who is going through the same issues. We'd love to have you at our meetings.

Share this post


Link to post
Share on other sites

Can anyone suggest some great Gluten Free restaurants near Jim Thorpe, PA and Bethlehem, PA?

I'll be on tour there mid-October and run into trouble finding gluten-free places on the road sometimes.

Thanks so much,

Jayne

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,410
    • Total Posts
      941,133
  • Member Statistics

    • Total Members
      66,336
    • Most Online
      3,093

    Newest Member
    diane corleys
    Joined
  • Popular Now

  • Topics

  • Posts

    • A mistake that many of, myself included, made! Don't feel bad about it, feel good that you've at least identified a possible cause. I was faced with a similar choice a few years ago and opted to go back onto gluten for a 'challenge' to see if I had celiac. I kept a food diary during this time and tracked the reappearance of symptoms, some gastro intestinal but primarily neurological. I tested negative for celiac much to my surprise, but the challenge confirmed gluten as an issue, so NCGS is best diagnosis I'm likely to get for now at least.  Your question re fructans is a good one and not easy to answer. The fact you've asked it suggests you've done some research and are aware of the unclear science once celiac is excluded. For what its worth I think that what may happen is that some people who get IBS relief from a gluten free diet are indeed correct to avoid the foods, but incorrect in identifying gluten as the cause.  They may actually be reacting to fructans, polyols, or other parts of the wheat,carbs rather than proteins.  However there are also well documented cases where gluten itself is the culprit, some more info on this here and I believe this is where I sit.   You need to decide what level of uncertainty you can live with. Medical assistance will depend on reintroducing gluten. If you do it with a food diary you may learn more about your reactions, maybe even be able to customise your diet to your own body. Most importantly, you would properly exclude celiac as a cause, which is important because its a serious condition and if you do have it, far better to know for both you and your family who may also want to be tested.  Finally, I collected some links and info here some time ago, it may be useful.  Best of luck Matt
    • I wish I had been diagnosed at 19. In retrospect, I was having symptoms as a 16 year old, and didn't get diagnosed until I was almost 30. That delay created a lot of havoc, and other problems that are now permanent (an aggressive case of rheumatoid arthritis and violent reactions to contamination). You want to be non-compliant? Your choice... but the symptoms will most likely get worse... and you could end up like several other non-compliant celiacs I knew... none of the ones who decided to be non-compliant (as opposed to those of us who occasionally get poisoned) lived more than 10 years past diagnosis, and their deaths were ugly (cancer was bad, pernicious anemia and complete malabsorption were even worse).
    • From the Chicago Celiac Disease Center which is one of the premier celiac disease research & treatment centers in the world: Are you scheduled for a biopsy? Are you eating gluten? Any changes in your diet can affect the accuracy of your biopsy results. It is necessary for you to be eating gluten every day for at least 4-8 weeks before the procedure. If you are scheduled for a biopsy and are not eating gluten, talk to your doctor about what is necessary to obtain accurate results. If you have
      a biopsy and have eaten gluten only a short time before the test, you and your physician will not know if a negative test result is accurate or due to your diet. Here's a link: http://www.cureceliacdisease.org/wp-content/uploads/341_CDCFactSheets5_Diagnosis.pdf Also, you might want to read this: http://www.cureceliacdisease.org/faq/can-an-allergist-help-with-celiac-disease-or-does-a-better-specialist-exist/  
    • My panel was the same as yours........all tests positive by large numbers so you can consider yourself a Celiac.  Are you very symptomatic? I will add that I did not eat Whole Foods exclusively when healing.  I needed to gain weight badly so ate gluten-free bread and a few other things that seemed to agree with me.  Never had a problem once I went gluten free, except to discover that I had a problem with dairy also. But I healed well and all is good.  You'll be fine now that you know what the problem is.  Good luck!  
  • Upcoming Events