• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

The 100% Positive Thread
0

25 posts in this topic

Recommended Posts

parmeisan    2

Got something great to say about Celiac Disease that you want to shout off the rooftops?

Know someone who needed to be convinced to get tested and have some advice you gave them that helped?

Sure, we all know that getting a Celiac diagnosis, or even suspecting one, can be scary and frustrating. But there are good things too. Please share how your diagnosis has made you a happier person!

(Please keep this specifically to Celiac; you can start another thread about intolerances if you like but I'd really like this to be something that we can show to people to help give them motivation to get tested for celiac disease).

Thanks! I'll start:


> I have discovered that being hungry isn't supposed to hurt.

(I had always just assumed that pain was hunger.)

> I am feeling more motivated to do things, which in turn makes me feel better about myself.

> I've discovered that it's much easier to eat healthy than I ever imagined.

When you're forced to think about everything that goes into your mouth, it's easier not to eat those potato chips. Similarly, when you are forced to plan each meal in advance or risk not having anything in the house you can eat, it's easier to keep the house stocked with veggies and all that good stuff. I am starting to actually have a positive relationship with food.

> As a combination of all of the above, I have lost 5 pounds in less than a week.

  • Upvote 2

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


kareng    1,992

Let's see:

I look 20 years younger

My boobs are more perky

My wrinkles are gone

:ph34r: Ok.....Maybe not but

I feel better & more perky!

More energy!

My blasted anemia that made me feel dizzy and I couldn't get enough oxygen to my brain is gone!

I have tried new foods I didn't know existed and like some of them!

I have a great excuse not to eat the rubber chicken at an awards banquet!

  • Upvote 2

Share this post


Link to post
Share on other sites
Adalaide    361

It was a complete fluke that I was even tested for celiac. I'm not sure I would have accepted it if it didn't just happen while I was out like a light. It happens to be one of the best things that has ever happened to me.

I don't feel amazing exactly, but compared to a year ago I feel great.

I have enough energy to leave my house a few days a week and to be out of bed most days which is awesome!

I'm eating healthy (more or less) for the first time in my life and it feels pretty darn good.

  • Upvote 1

Share this post


Link to post
Share on other sites
jerseyangel    409

I'm still alive.

Thank goodness for that :)

For me, gone is the anemia that I had for years (despite supplements), tingling and numbness in my lower legs, face and arm, night sweats, constant nausea (when I worked outside the house I never ate breakfast because of it), chronic diarrhea, fatigue, brain fog <_< , easy bruising, in the last 6 months before diagnosis unexplained weight loss. My gynecologist poo-poo'd the idea that my endometriosis was linked somehow but I wonder.

I lived with all that for 20 years--medical tests always came back normal so I managed to work around it thinking it was just me.

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:


bartfull    565

I no longer eat the junk food full of chemicals that would have killed me in the long run whether I had celiac or not.

And I feel closer to my Mom even though she passed away several years ago. She had celiac, and now that I understand how badly she suffered I wish I could tell her. But she knows...

  • Upvote 1

Share this post


Link to post
Share on other sites


Ads by Google:


ndw3363    15

Peter, I'm with you on the migraines! Only time I get them now is if I get accidentally glutened. Let's see, I'm healthier than I've ever been, I'm finally at a mostly normal weight and able to stay at it without much effort (I finally self diagnosed when I was losing weight very quickly and couldn't afford to lose another pound), I get compliments on my skin and hair all the time, I no longer have to live with bloating and gas all the time, blood sugar has stabilized. And ya know, I guess I don't bruise as easily as I used to either - didn't think of that until I saw someone else mention it!

  • Upvote 1

Share this post


Link to post
Share on other sites
nvsmom    332

Without trying I lost 15lbs in 2 months while still eating icecream a few times a week.

My belly is essentially GONE! I thought it was middle aged belly fat. lol

No more stomach aches every day.

No more migraines.

Bathroom trips aren't nearly as ...smelly.

Share this post


Link to post
Share on other sites


Ads by Google:


Sunny600    1

I don't have abdominal pain anymore. After being subjected to a bunch of tests as a teenager because of it, my mom finally told me it was "normal" to have "aches and pains". Well, guess what? It's NOT normal!

Tilley

  • Upvote 1

Share this post


Link to post
Share on other sites
lovegrov    148

No DH, mouth blisters gone, and it was celiac disease, not non-Hodgkins lymphoma, causing my illness. And I quit smoking while I was ill.

richard

  • Upvote 1

Share this post


Link to post
Share on other sites
LauraB0927    31

No more acne, no more chest pains, no more acid-reflux - and best of all, I've been able to lose all that stubborn weight that wouldn't come off before!!!! 16 pounds down and a couple more to go!!!! I'm going to look great for my wedding next year!!!

  • Upvote 1

Share this post


Link to post
Share on other sites
Darn210    174

I don't have to worry (for my daughter's sake) what the side effects are on a lifetime's worth of medication . . . 'cause seriously, how do they really know what being on a medication for 80 years would do to you?

  • Upvote 1

Share this post


Link to post
Share on other sites
Gfreeatx    9

I love this thread!! Two years after my diagnosis:

I no longer pass out when I simply try to stand up.

I am free from my migraines, neuropathy and heart palpatations.

I have become an even better cook and eat healthier than I ever did before.

My recent biopsy shows I now have a normal small intestine when my original showed Marsh 4 destruction!! :D

Share this post


Link to post
Share on other sites


Ads by Google:


Persei V.    8

I'm eating way healthier

Stomach is fine, I rarely feel bloated

I learned how to cook a handful of very delicious (and healthy) dishes

Share this post


Link to post
Share on other sites
psawyer    687

I posted before about migraines, but here is another thing. I have not vomited after eating in twelve years. It was a common occurrence, sometimes after eating just a few bites.

Share this post


Link to post
Share on other sites
T.H.    404

My son can get through the day without having a screaming fit.

My daughter is no longer so depressed that she can see nothing good about herself.

I have discovered that I don't actually dislike crowds or feel the need to isolate myself like I used to when I was sick all the time. Who knew that something I thought was 'just me' was actually gluten!

Share this post


Link to post
Share on other sites
bartfull    565

I have saved a lot of money on toilet paper. :lol:

Share this post


Link to post
Share on other sites
NGG    0

My daughter and I both feel so much better, obviously, but the best thing to me is that my daughter is eating such a better variety of foods, and much healthier foods. She snacks on apples dipped in (natural) peanut butter now. No more crackers for every snack! I swear she ate nothing but crackers and bread before, but I saw her snacking on carrot sticks earlier too, and she said they tasted good. It's too bad she had to be forced to improve her diet due to this, but it is good that her diet has improved regardless. She'll be healther both for avoiding gluten, which makes her so sick, but she'll be healther on top of that because she's eating so well.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,905
    • Total Posts
      938,589
  • Member Statistics

    • Total Members
      65,818
    • Most Online
      3,093

    Newest Member
    Ccllcc46
    Joined
  • Popular Now

  • Topics

  • Posts

    • Sometimes this happens, odd as it might be, you have to be eating gluten for the test first off daily. We call it a gluten challenge. Second some people due test negative on the blood test but can have celiac which is why we consider the endoscope and biopsy the golden standard. Also the gluten test back when you had it done previously was much less accurate then it is now days or at least it seems.  Do you have your numbers? We have had many cases where the doctor said it was negative...and the idiot could obviously not read the test cause when member posted their lab forms we can see it obviously positive. What ever the case we know what the issue is now and your on your way to getting better. Unlike most AI disease we know the cure and fix for celiac is a strict gluten free diet. So you can now begin you road to healing......and yeah I know that feeling of finding out the nerve issues....sadly nerve damage is VERY slow to heal unlike gut damage. But it has it's odd messed up benefits, I have most coordination back but it comes and goes in waves. Funny thing, I can grab stuff out of the oven or burn myself and the reaction to it delayed or non existent pain wise. So they do not bother me. I can cut my hand and go "oh look I should super glue that back together" without the pain, I just logically deal with it and do not have much panic or pain unless it is VERY deep.
    • This has been my life for the past three years! Oh man! I have had every muscle and nerve test known to man and...nothing. The doctors finally stopped trying and just referred me for cognitive behavior therapy.  I'm still confused about the negative blood test though?
    • Thank you @Megamaniac - I don't hear about chest tightness as a symptom of being glutened, so it's good to hear of someone else. My current symptoms aren't bad, just annoying. It's hard to tell if it's anxiety tightening my chest, or something else. But since it's only been happening since I ate that damn tortilla, my guess is it's gluten-related. My doctor made me have an echocardiogram and stress test to rule out cardiac issues before he would do the endoscopy (this was a couple of years ago). I learned that telling a doctor "my chest tightness gets worse when I walk up a hill" makes everything else grind to a hart until the heart gets checked out!
    • They use the same fryers for everything, so the fresh fried corn tortilla chips are gluten contaminated when they get dropped in the fryers.....
    • Yes, gluten ataxia is one form where it effects your brain and nervous system. I lose feelings in my hands and feet, have all kinds of muscle issues when even traces get introduced via CC or walking through the bakery section of the grocery store -_ - Last time I got glutened at a restaurant back in 2016 I got home and lost full motor control and collapsed on the floor and started vomiting unable to move my body.

      Your veggie issues made me think of a few other things. I can not eat those veggies in the produce section, they put some kind of veggie wax on them that makes me vomit no matter what, makes a waxy film in my stomach and they float.....I have to buy farmers market fresh, or canned no salt (del monte canned no salt spinach is my number 1 vitamin a and k staple in omelettes) Other members have issues with glyphosate and have to have organic produce that is not treated on the farm with these chemicals. Some members develop histamine response issues so foods are limited by histamine number and how they are prepared. Just a few things to consider. UPDATE I suggest supplementation to deal with those nerve issues. Celiac causes issues with b-vitamins, magnesium and a bunch of others. So supplementation works wonders. Here are my suggestions Liquid Health Stress & Energy + Liquid Health Neurological Support 1 tbsp each 3 times a day in a beverage like tea.] Either Doctors Best Magnesium or Natural Vitality Calm. If you have constipation issues calm is suggested. Note start off small dose like 1/4 tsp slowly raise the dose to the full amount. Some of use need more or less, depending on activity levels etc.
        Liquid Health Vitamin D drops might be needed, some of use have issues with this also.
        We suggest starting off eating whole foods only, dropping dairy and oats (some of us react to oats just like gluten). You can try introducing processed gluten free foods later.
  • Upcoming Events