• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Doc Probably Calls Me The Crazy Mom
0

11 posts in this topic

My son had a scope/biopsies today and I just read something about using a die to better project the villi in the lab to get an accurate count. Is this familiar to anyone and do you think I can call on Monday and request the die or do you think that puts me on crazy-mom status and it's too late? My son has been off wheat/gluten for weeks now (except for xanthan gum, which he reacts to, in his toothpaste, which he tries his best to swallow ;-)) Anyway, my gut is celiac but from everything I've read about diagnosing in kids, it's really hard once their bodies start to repair. Unfortunatelyl for me, my gut instinct no matter how obviously backed by food elimination diet isn't good enough for some of my family members that my son comes in contact with (That's a whole other convo!) --I'm sure we all feel like a clear answer would make things much more simple!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I'm not sure about the dye but unfortunately, in order for the biopsies to be accurate, your son would have had to be eating gluten for weeks before the test. :(

0

Share this post


Link to post
Share on other sites

My son has been off wheat/gluten for weeks now (except for xanthan gum, which he reacts to, in his toothpaste, which he tries his best to swallow ;-))

Some people react to xanthan gum, but it is gluten-free.

0

Share this post


Link to post
Share on other sites

I'm not sure about the dye but unfortunately, in order for the biopsies to be accurate, your son would have had to be eating gluten for weeks before the test. :(

I know--the GI didn't want me to put him back on a wheat diet. I probably have a false hope that they could still see some of the damage leftover. They are checking a couple other things w his scope (enzymes and signs of reflux) but my guess is that those will check out fine and then we will have to talk about doing another endoscopy paired with a long food challenge. I'm grasping at anything to try to avoid that.

Some people react to xanthan gum, but it is gluten-free.

I keep reading different info on it. I see that it's gluten free (lots of resources on this website) yet have found others saying its cross contaminated at some point. Since my son reacts to it, I had just assumed the latter...... Wonder what else in xanthan gum could be causing him trouble? Any idea why many people with celiac disease or gluten sensitivity react to it? Thanks!

0

Share this post


Link to post
Share on other sites

If I understand the OP question, the dye that is used is added AFTER the biopsy specimen has arrived at the lab for processing. Dyes are commonly used to make the variations in the tissue easier to see and as part of the testing process. The patient is not exposed to those dyes. They are just a part of the tissue examination process. (I am a medical transcriptionist who types up the reports from these procedures.)

0

Share this post


Link to post
Share on other sites
Ads by Google:


Some people react to corn and the are sometimes concerned about zanthan gum because it is cultured on corn. So it is corn cc that is the concern there.

0

Share this post


Link to post
Share on other sites

I would suggest you do two things. A: Remember that caring for your children, and discussiong their medical needs in regards to the latest research is NOT crazy. B: Quit letting your family members opinion interfere with how you care for your children. Chances are you are doing an awesome job, esp, if you are reading about biopsy dyes, etc. I have a ton of family that seems to disagree with what I talk about regarding my kids health. My Mom told me that my youngest daughter didn't have Asthma, and then cried a few months later when she watched my DD have an attack and realized she was very wrong. Nobody is with your kids as much as you are. If it helps your child, then keep it up, regardless of what the biopsy results say, esp given the feedback above about consuming gluten before the biopsy.

0

Share this post


Link to post
Share on other sites

Some people react to corn and the are sometimes concerned about zanthan gum because it is cultured on corn. So it is corn cc that is the concern there.

Thank you!! I thougth it was wheat so great to know it's corn (which is also already out of our diets b/c my boys were reacting to whole corn, syrup, etc.) Didn't realize it was part of that family! Thanks!

0

Share this post


Link to post
Share on other sites

I would suggest you do two things. A: Remember that caring for your children, and discussiong their medical needs in regards to the latest research is NOT crazy. B: Quit letting your family members opinion interfere with how you care for your children. Chances are you are doing an awesome job, esp, if you are reading about biopsy dyes, etc. I have a ton of family that seems to disagree with what I talk about regarding my kids health. My Mom told me that my youngest daughter didn't have Asthma, and then cried a few months later when she watched my DD have an attack and realized she was very wrong. Nobody is with your kids as much as you are. If it helps your child, then keep it up, regardless of what the biopsy results say, esp given the feedback above about consuming gluten before the biopsy.

Thank you SO much! Seriously brought tears to my eyes; I probably shouldn't need your pep talk but I totally did. Thank you!

0

Share this post


Link to post
Share on other sites

If I understand the OP question, the dye that is used is added AFTER the biopsy specimen has arrived at the lab for processing. Dyes are commonly used to make the variations in the tissue easier to see and as part of the testing process. The patient is not exposed to those dyes. They are just a part of the tissue examination process. (I am a medical transcriptionist who types up the reports from these procedures.)

Thanks Miss Mellie! Yes, I read the dyes were used to analyze the biopsy too. Sorry I wasn't clear on that. So, do you think I could call and request that they use the dye? I guess it never hurts to ask.

0

Share this post


Link to post
Share on other sites

Thanks Miss Mellie! Yes, I read the dyes were used to analyze the biopsy too. Sorry I wasn't clear on that. So, do you think I could call and request that they use the dye? I guess it never hurts to ask.

You won't need to ask them to use it. It is standard procedure to use dye in the examination process. :-)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,748
    • Total Posts
      932,163
  • Member Statistics

    • Total Members
      64,201
    • Most Online
      3,093

    Newest Member
    CRReid
    Joined
  • Popular Now

  • Topics

  • Posts

    • After their seven-month-old baby died weighing less than 10 pounds, a mother and father in Beveren, Belgium, are standing trial on charges that they starved the child by negligently providing an alternative gluten-free diet, with no medical supervision. The couple, who ran a natural food store, put their son Lucas on an alternative gluten-free, lactose-free diet, which included quinoa milk, despite doctors describing it as unsuitable for developing infants. View the full article
    • At least in Caucasian Irish people!
    • Thank you so much for the reply, the book recommendations and the link. Really useful and I appreciate it.  Will definitely look into them.  Thanks again. 
    • an allergy test for tap water sounds quite suspicious, i've never seen any type of water listed as part of a food allergy test panel. i can't imagine how that is possible to test for, sounds like it would be a extremely rare allergy also doesn't tap water vary depending where you are. do you have a reaction to drinking water? what are your symptoms when you eat those foods?
      if it was an IgE allergy test, i believe the blood test more commonly has false positives than the skin scratch test but false positives are very common for both thats why there is usually a disclaimer saying that it may not be nesscessary to cut out all positive results especially if you have no allergic reaction after eating it. you allergist may be able to offer you some kind of allergen immunotherapy or a dietician referral.
      if you had the IgA/IgG food intolerance/ sensitivity testing, the same type of testing that is promoted a lot on instagram, it is not scientifically accurate. the positive results just indicate food you have been exposed too which are then wrongly interpreted as meaning they are allergies. so i definitely wouldn't make any significant diet chances based those results. other than an elimination diet there is no accurate testing for food intolerances although it would be great if there was. its possible that you could coincidently be intolerant or allergic to some those positive foods or you may have no problem with them.
      https://aacijournal.biomedcentral.com/articles/10.1186/1710-1492-8-12  
    • Are you sure TTG IGA was 1? Anyway, a high on any one test should lead to a gastroenterologist doing an endoscopy to confirm celiac. Your not supposed to go gluten free until after all testing is done. Your results show high for dgp iga and dgp igg. Not a doc, my opinion only.
  • Upcoming Events