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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does A Gluten Free Diet Actually Cure Celiacs Disease?
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Richterface    0

Allow me to introduce myself. My name is Jerick and I was diagnosed with celiacs disease when I was 16yrs old ( I am currently 22 - Also I haven't seen a digestive dr, or gastrologist in 5 years for follow up for my celiac condition. However I have decided to take control of my health and have scheduled an appointment at a local digestive disease dr in the area).

I haven't been dedicated to my diet and therefore my health has taken a poor turn. I've gained and lost a great deal of weight, I suffer from depression and constipation. In the past I have followed my dietary restrictions by not eating wheat but I haven't been as careful with cross-contamination and hidden gluten ingredients.

I have decided to research my disease and see what steps are necessary for hopefully curing my intestine and living a long life. However since I've taken the time to study up on my condition I have been met with nothing but uncertainty and fear. My question today has to do with an article from chicago medical center for celiacs disease found here. I am particularly upset by the following statement; " While healing may take up to 2 years for many older adults, new research shows that the small intestines of up to 60% of adults never completely heal, especially when adherence to the diet is less than optimal."

From what I understand and have read from various sources celiac's can heal by adhering to a gluten free lifestyle. However studies still show that 60% of people never completely heal therefore the leaky gut condition, and inflammation is still prevalent leading to early death and other autoimmune disorders. So does this mean that the gluten free diet isn't working? Is there anything else that could be done to cure my condition?

The Select Carbohydrate diet states that our bodies are unable to due to the ingredients found in "gluten free foods" based on Corn, Rice, and Tapioca. The listed ingredients are harder for the body to break down therefore causing bacteria to grow which causes the intestines to inflame, leading to negative consequences in Celiacs.

I am writing to everyone today in hopes there is anyone or group of individuals that could help clarify and lend some advice as to how I should approach a gluten free diet. I feel so pulled and frustrated I would just like some peace of mind.

I am willing to adhere to the SCD lifestyle diet however I do not have the funds to purchase all the food processors and blenders necessary.

Thank you for your time!

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kareng    1,992

First - you hardly qualify as an "older adult". :D

Second - It does say when adherence to the diet is not followed

Go to the GI. Maybe get another endoscopy to see where you are. Follow a strict gluten-free diet. That is the only "cure". You could get a repeat endoscopy in 2 years and see if you healed.

The other thing is that you really aren't cured. You will still have Celiac, even if your intestines have healed. You cannot go back to eating gluten after healed. You will just get a damaged intestine again.

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IrishHeart    1,633

I agree with Karen regarding seeing a GI doctor right away and getting serious about your gluten-free diet.

You should understand that Celiac, which is an autoimmune disease, means there is no "cure" (you will always have celiac disease), but there is a treatment (the strict gluten-free diet) which will put the symptoms into remission.

You feel lousy because you are not following the diet, hon --and risking serious complications.

You do not necessarily need to follow the SCD diet to adhere to a safe gluten-free diet.

Just follow a gluten-free diet, which includes NO RYE, BARLEY or any wheat derivatives. Oats MUST BE certified gluten-free. I notice you said you just avoid wheat.

You need some guidance from a GI doctor, some follow up blood work and a better understanding of what a true gluten-free diet is.

You are in the right place!

I suggest you learn about cross contamination and hidden sources of gluten so you can see what steps you need to take.

All this information is in this thread:

I hope this will help you get started. Best wishes!

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Allow me to introduce myself. My name is Jerick and I was diagnosed with celiacs disease when I was 16yrs old ( I am currently 22 - Also I haven't seen a digestive dr, or gastrologist in 5 years for follow up for my celiac condition. However I have decided to take control of my health and have scheduled an appointment at a local digestive disease dr in the area).

I haven't been dedicated to my diet and therefore my health has taken a poor turn. I've gained and lost a great deal of weight, I suffer from depression and constipation. In the past I have followed my dietary restrictions by not eating wheat but I haven't been as careful with cross-contamination and hidden gluten ingredients.

I have decided to research my disease and see what steps are necessary for hopefully curing my intestine and living a long life. However since I've taken the time to study up on my condition I have been met with nothing but uncertainty and fear. My question today has to do with an article from chicago medical center for celiacs disease found here. I am particularly upset by the following statement; " While healing may take up to 2 years for many older adults, new research shows that the small intestines of up to 60% of adults never completely heal, especially when adherence to the diet is less than optimal."

From what I understand and have read from various sources celiac's can heal by adhering to a gluten free lifestyle. However studies still show that 60% of people never completely heal therefore the leaky gut condition, and inflammation is still prevalent leading to early death and other autoimmune disorders. So does this mean that the gluten free diet isn't working? Is there anything else that could be done to cure my condition?

The Select Carbohydrate diet states that our bodies are unable to due to the ingredients found in "gluten free foods" based on Corn, Rice, and Tapioca. The listed ingredients are harder for the body to break down therefore causing bacteria to grow which causes the intestines to inflame, leading to negative consequences in Celiacs.

I am writing to everyone today in hopes there is anyone or group of individuals that could help clarify and lend some advice as to how I should approach a gluten free diet. I feel so pulled and frustrated I would just like some peace of mind.

I am willing to adhere to the SCD lifestyle diet however I do not have the funds to purchase all the food processors and blenders necessary.

Thank you for your time!

In my opinion, there are too many factors for one to say "just eat a 100% gluten free diet and you will be fine". New studies have shown that corn gluten is absolutely unsafe for gluten sensitive people. Two years ago, i went "gluten-free". Fast forward to the present, i still have many food intolerances, most likely linked to having a leaky gut. And along with my leaky gut, i have an overgrowth of candida. I've been where you are at, looking to this forum for a simple answer. But here lately i've realized there is no simple answer because everyone's situation is different. I've noticed a lot of people with celiac disease will not accept that the studies on this disease are still evolving, and they continue to eat nothing but processed "gluten-free" foods on a daily basis. Ignorance is bliss, and i especially can vouch for that. I lived it.

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psawyer    687

The corn question is far from absolute. I have been diagnosed for 12 years, and have been eating corn for all that time. I have been retested via biopsy, and found to have normal, undamaged villi. If corn is the same as other gluten, how did I possibly heal? Why am I still very healthy, and symptom-free, after 12 years of eating gluten-free, but consuming corn and rice?

Some people with celiac disease are also intolerant to corn (and other foods), but I seem to prove that this is not universal.

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IrishHeart    1,633

First of all, neither Karen nor I suggested "nothing but processed gluten free foods on a daily basis".

In fact, I often suggest a whole foods diet to people, until they learn what they can and cannot tolerate.

Your leaky gut, candida overgrowth and other food intolerances are not necessarily what the OP is dealing with.

And not every celiac has issues with corn.

Corn gluten is not harmful to celiacs ---as far as we know.

You are correct in that we do not know all there is to know about this disease process and recovery, but the majority of celiacs do just fine still consuming grains.

This young man has not even followed a true gluten free diet yet, so he has not even begun to heal.

A visit to the GI doctor will reveal what is happening in his gut. He can have a test for SIBO (small intestine bacterial overgrowth) after he finds out if his gut if even healing.

Let's not get him worried about candida or other food intolerances until he knows where he stands.

He's already pretty worried right now.

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First of all, neither Karen nor I suggested "nothing but processed gluten free foods on a daily basis".

I did not mention Karen or you at all.

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The corn question is far from absolute. I have been diagnosed for 12 years, and have been eating corn for all that time. I have been retested via biopsy, and found to have normal, undamaged villi. If corn is the same as other gluten, how did I possibly heal? Why am I still very healthy, and symptom-free, after 12 years of eating gluten-free, but consuming corn and rice?

Some people with celiac disease are also intolerant to corn (and other foods), but I seem to prove that this is not universal.

I stand corrected. Thank you.

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Richterface    0

Thank you all for your input and advise. I will wait for further diagnosis. I've decided to go ahead and just stick to a gluten free/SCD. I just hope I haven't caused too much damage. I am pretty ashamed of my lack of knowledge and general care for my health. I have begun to taking L-glutamine for villi health, probiotics as an anti-inflammatory, and a daily vitamin supplement to cover the rest of my bases

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GottaSki    459

Welcome!

No need to be so hard on yourself - you have acknowledged the need to learn about Celiac Disease and are now dedicated to living gluten-free. While this disease can make anyone feel much older than they are, you are still a very young adult. To me, it sounds like you are set to succeed, heal and start feeling young again.

Happy healing to you :)

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IrishHeart    1,633

I did not mention Karen or you at all.

Nope, you didn't--you were very general, but since we both had just said "follow a strict gluten free diet" because he admitted he hadn't been--I just wanted it to be clear.

It's all good. :)

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IrishHeart    1,633

Thank you all for your input and advise. I will wait for further diagnosis. I've decided to go ahead and just stick to a gluten free/SCD. I just hope I haven't caused too much damage. I am pretty ashamed of my lack of knowledge and general care for my health. I have begun to taking L-glutamine for villi health, probiotics as an anti-inflammatory, and a daily vitamin supplement to cover the rest of my bases

You're doing all you can, hon! Get yourself a celiac-savvy GI to help you with proper care. Sounds like you're on the right path.

Best wishes, welcome to the forum and I hope you start to feel better soon!

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IrishHeart    1,633

While this disease can make anyone feel much older than they are,

true, true.

oh man, sometimes I have felt 103..... and other days, my perky self of 22 (in my head anyway....) :lol:

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GFinDC    609

@Richterface,

Well neat, I have a neighbor named Richter. He is in the Coat Guard though and older.

It's good you are taking the gluten-free diet and celiac disease seriously now. The damage builds up over time and can suddenly become much worse also. Sometimes people develop other autoimmune disease if they go untreated. But you can avoid all that by sticking to the gluten-free diet. Can you cook your own food? That is a big help in avoiding gluten. Eating out in restraunts is risky. Cooking your own whole foods is a big help in avoiding gluten. It doesn't have to be fancy food, simple whole foods are safer and are good tasting too. I added a bunch of links below that may help you get started.

@BridgeofSighs,

HI,

Corn is definitely a problem for some of us. The whole leaky gut thing does tend to cause various food intolerances in people. There is quite a range of food intolerances among the forum posters. Nightshades, corn, eggs, sals, soy, oats, grapes, carrots and some others too. Basically we can become intolerant to any food. corn doesn't bother me except for corn on the cob, but ground or flour is fine. BuI I have plenty of other intolerances to make up for corn. :) I hope you are feeling better and doing well with your diet. This is all a learning process for us.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Dessert thread

Easy yummy bread in minutes

How bad is cheating?

Short temper thread

Non celiac wheat sensitivity article

http://www.nature.com/ajg/journal/vaop/ncurrent/full/ajg2012236a.html

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kareng    1,992

Hey! Let's not overwhelm the poor guy (?) with all the foods that he could, maybe, find a problem with. Let's get him started being gluten-free for a few months,first! Then, if he is still having problems, go for it! :)

cm

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GottaSki    459

true, true.

oh man, sometimes I have felt 103..... and other days, my perky self of 22 (in my head anyway....) :lol:

Amazing the difference - I've felt over 90 more often then my real age throughout my 30s and 40s - but felt better than I did at 18 for eight whole months last year....gotta get that magic back - never knew how sick I'd been my entire life before I had that window of health - 'tis amazing what a body can tolerate before causing a real fuss ;)

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Jannyno1    0

The corn question is far from absolute. I have been diagnosed for 12 years, and have been eating corn for all that time. I have been retested via biopsy, and found to have normal, undamaged villi. If corn is the same as other gluten, how did I possibly heal? Why am I still very healthy, and symptom-free, after 12 years of eating gluten-free, but consuming corn and rice?

Some people with celiac disease are also intolerant to corn (and other foods), but I seem to prove that this is not universal.

You should take note that being intolerant of corn or rice is different to gluten intolerance, celiac disease. You seem to be on the right track.

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kareng    1,992

You should take note that being intolerant of corn or rice is different to gluten intolerance, celiac disease. You seem to be on the right track.

I think he was 'taking note" of that

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