• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
CarolinaKip

I'm A Grandmother!

Rate this topic

Recommended Posts

Hi everyone! I'm a grandmom! My son welcomed his son on August 30! My thoughts beyond loving every minute of it. I'm wondering if the Celiac gene hit him, you know?

My children do not show signs and their DR said to wait for signs or symptoms before they are tested.

How many of you are concerned about passing the gene on? This baby boy is such a blessing and while holding him, I wondered silently...did I pass this on to you?

Anyone relate??

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Congratulations to you! And, yes, I share your concerns--the genes, as well as the triggering, of celiac always worry me.

I have to mention, though, that I believe your doctor is wrong not to test your children for celiac. Many celiacs are asymptomatic, but damage could still be occurring to their villi. By the time the damage is done, some of it may be irreversible (such as neurological damage). Your children SHOULD be tested regardless of whether or not they show symptoms. With regard to your new grandbaby, maybe he will escape the legacy. However, with the celiac vaccine on the horizon, he will probably have little to worry about.

  • Upvote 1

Share this post


Link to post
Share on other sites

Yes, I can relate, but probably not in the fashion you expect.

Congratulations on having a Grandson! How cool is that?!!? Yay!

I am childless but find genetics fascinating.

I'm the youngest of 5 children with my mother being the gene carrier. I suspect that her father had celiac disease but that's never been confirmed. My maternal grandfather had 9 children and 40 grandchildren. My paternal grandparents had 8 children and 38 grandchildren.

None of my siblings have celiac disease, and neither have my cousins, nieces, nephews, aunts or uncles on the maternal side. I had 1 maternal cousin that died prematurely from MS, and 1 aunt that died in her 70's but she drank like a fish and never treated her breast cancer. (Big hx of breast cancer on the maternal side.)

On the paternal side, I had an aunt die of leukemia in her 30's, but the rest of my father's siblings lived long lives. Dad died at age 58 from lung cancer, but he was a heavy smoker.

I'm in my 50's. My mother lived until she was 87.

If I were in your shoes, I'd understand the worry. Mom felt horrible that I inherited this from her, but it didn't develop until I was in my 50's. I know a dietician that has had celiac disease since she was a child. She's in her 50's.

Anyway, there have been similar life expectancies on both sides of the family tree.

You'll be watching out for him and so will your DS and DIL. Enjoy the little miracle, and don't worry, that never helps. Think about buying him cowboy boots or a shovel, all those things boys love, instead. Congrats! Yippee!

  • Upvote 1

Share this post


Link to post
Share on other sites

Thanks! :) I did want my children tested, my daughter is all for it, but my son does not want to. They both saw what I had to go through and how sick I became. I'm pushing for them to go. They will all be living with me and eating some gluten-free because that is all I cook. However, if tested, they eat enough gluten outside the home to count. I lost both my parents and all grandparents, so I won't know which side I recieved this gene. None of my family members from either side has Celiac. I have 4 siblings and they are neg for celiac. I do have a sister with lupus.

I'm loving being a grandmother..he is so beautiful and we are so blessed!

Share this post


Link to post
Share on other sites

Hi everyone! I'm a grandmom! My son welcomed his son on August 30! My thoughts beyond loving every minute of it. I'm wondering if the Celiac gene hit him, you know?

My children do not show signs and their DR said to wait for signs or symptoms before they are tested.

How many of you are concerned about passing the gene on? This baby boy is such a blessing and while holding him, I wondered silently...did I pass this on to you?

Anyone relate??

Congratulations on having a Grandson! Feel Bleesed

I can understand your worry, I have two G/Children.

It won't be long soon we will have medicines for Celiac,more over once we know the problem it's easy to tackle, we must feel blessed we know, it took me 18 years of pain to know I am celiac.

Don't worry enjoy the little master, and as "Marilyn R" said Think about buying him cowboy boots or a shovel, all those things boys love, instead.smile.gif

Share this post


Link to post
Share on other sites
Ads by Google:


Congratulations! My mom was shocked how wonderful having grandchildren is. She says she loves them like her own children but has the benefit of having to do less work for them. ;) LOL

Although autoimmune diseseases are more commonly found to run in families, it's not a sure thing. On my mother's side, I have a cousin with celiac and another with RA. On my dad's side, my grandma had thyroid problems, and her sister was celiac. My parents appear to be(have been) fine, and my children tested negative too.

Just remember it's not a sure thing, but if there are problems you'll be there to help recognize them sooner so he can stay healthier.

Congrats again.

Share this post


Link to post
Share on other sites

Congratulations! Grandchildren are so special. I have four and what amazes me is that the two oldest (16 & 19) still like to "hang" with us. :) Cuddle up grandma and enjoy!!! :D

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,929
    • Total Posts
      943,564
  • Member Statistics

    • Total Members
      67,193
    • Most Online
      3,093

    Newest Member
    ddinidaho@gmail.com
    Joined
  • Popular Now

  • Topics

  • Posts

    • I’m 62 and have just now been tested for Celiac.  My Titer was negative, I have zero IGa and too much IGg (16) which is an indicator of intolerance at the very least and may indicate the need for another endoscopy. He also tested for EPI (exocrine pancreatic insufficiency) which was negative.  I just had a colonoscopy/endoscopy last year as a part of being diagnosed w/ Gastroparesis. I also have (among other things which I’m not sure are as relevant) - T2 Diabetes, Hashimotos Thyroiditis (late 30’s) Chronic Kidney Stones (since age 40), Osteoporosis (way before Menopause and not well controlled), and Gallbladder disease.(was removed) I’m discovering that all those I listed may be related in some way, and related to Celiac.  I haven’t seen the gastro doc for followup since the testing (obtained results from lab) so I’m not sure what he’s going to recommend.  Here’s where it gets scary... my daughter has many of the same things. She was just diagnosed with EDS (Ehlers-Danlos Syndrome) at 32.  She was diagnosed w/Glucose intolerance at 15, had her Gallbladder removed at 20, PCOS at 22, and Gluten intolerance at 30 (no testing, just her gastro’s recommendation). She’s been diagnosed w/Gastroparesis, POTS,  MAST Cell Activation Disorder, Peripheral Neuropathy, (lost use of her bladder and has a neuro stimulator) - all in the last year.  Too much coincidence for me.  This has to be all related. I keep reading more and more studies linking all these things (like EDS and Celiac) together. My daughters  geneticist is blown away by the multiple overlapping and co-morbid conditions we have and tells us it’s not uncommon. She also says research is expanding.  Sadly, the specialist docs seem baffled and can’t even begin to address our issues, and only help to manage the symptoms - sometimes. And every “Disease/Disorder” has a “diet” or protocol, and they are all at odds with each other - very frustrating.  I guess the moral of this story is to let others know that there’s a lot more to all this than meets the eye. Don’t let anyone tell you you’re fine if you have what seem to be strange unrelated symptoms. You’re not crazy. Keep fighting for understanding and knowledge. Be an advocate for yourself, you’re loved ones,  for us all.      
    • Nice to know that Disney makes an effort to take care of people with allergies or special diets (like gluten free!): https://publicaffairs.disneyland.com/walt-disney-parks-resorts-receives-honors-allergy-friendly-fare/
    • Wow, I also had pyloric stenosis that was misdiagnosed for some weeks as an infant (and almost died from it).  I also have Raynauld’s and I started following celiac diet, finding an immediate improvement of my symptoms.  I thought I was the only one that had all 3 of these diagnoses.   Interesting.
    • If you are lucky enough to travel in the Spanish-speaking world, just about anywhere you go, you will very likely run into a some version of chicken and rice, or ‘Arroz con Pollo’ as it appears on countless menus. This Cuban-style version relies on annatto oil to give it a red color. You can make your own annatto oil by putting achiote chili seeds in vegetable oil and heating it up for a few minutes over the stove. Cool and store. This version of chicken and rice is tasty, gluten-free and keeps well in the freezer. View the full article
    • I was diagnosed with celiac at the end of October. My DGP IgA was tested September 12th and was 127. I just got it retested and it was 135. I have been eating gluten free since I was diagnosed. I thought the numbers should be going down. How long does it usually take for the numbers to start dropping? Right now I feel like I must be getting cross contamination somewhere.
  • Upcoming Events