• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New And Worried
0

6 posts in this topic

Recommended Posts

kelly97    0

Hi All, I was diagnosed last Monday with Celiac Disease. My oncologist sent me to a GI doctor to do further investigation, so I was double scoped (looking for tumors). The biopsies the doctor took showed duodenal mucosa with abnormal villous architecture and increased intraepithelial lymphocytes. And my colonic mucosa with crypt architectural distortion with no evidence of colitis. Essential, he says I meet the gold standard for celiac disease. My oncologist is sending me for another CT & I also have to do a capsule camera swallow test.

I'm just worried. I've lost 25% of my body weight and continuing to go down. I currently only weigh 93lbs. They say I have malabsorpsion. I'm currently taking pancreatic enzymes since May. And just switched a week ago to gluen-free. I've been seeing an oncologist since May - my ct scan in Apr showed multiple reactive mesenteric lymph nodes with stranding, and hypoattenuated lesions/cysts on my liver. And I was diagnosed with MS a couple of yrs ago. I have constant fatigue with off and on fevers and all sorts of other symptoms.

I just can't help but wonder if all of this is related.

Does anyone else have mesenteric lymph nodes reactive or enlarged from Celiac Disease? Or have stranding in their mesentery from it? Not sure if it's related to the probable cancer or if Celiac's could cause it. And not sure how long I've had Celiac's so...as I've read - it could cause intestinal cancers?

Thanks for helping,

Kelly

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I think you are on the right track and would encourage you to keep going. I think a gluten free diet can help you. Learn all that you can and read every label. I hope soon you will be writing to say that your health is improving.

Diana

Share this post


Link to post
Share on other sites
rosetapper23    236

Please send me a personal message, because I may have information that could help you. I have celiac disease and also have metastatic cancer to my lymphatic system.

Share this post


Link to post
Share on other sites
GFinDC    609

Hi Kelly,

I don't have those issues but I do know that celiac can affect any part of the body, including the liver. Weight loss is a classical sy6mptom of celiac disease due to the malabsorption,, although some people gain weight also. The good news is that many times just changing your diet will resolve many celiac related symptoms. Here are a couple links with reference information.

Celiac Disease and Liver Diseases

Liver Disease and Celiac Disease

You might want to watch this video by William Li. He has done research that suggests diet can affect the development of cancer and possibly prevent it. There is also an Eat to Defeat Cancer website for diet tips. It is not a gluten-free diet though, so you would need to be aware they are sometimes recommending things we can't eat. Celiacs need to avoid eating wheat, rye and barley. Sometimes people also react to oats. Starting the gluten-free diet can be confusing. But it is simpler if you stick with whole foods for a few months at least. The labels on whole foods say things like "chicken" or potatoes" or "green beans" and nothing else. Well, sometimes the frozen veggies say "green beans, water, salt". That is ok. Three or fewer ingredients is generally a good thing. After you have been on the gluten-free diet for a while you can add processed foods like gluten-free bread, and gluten-free this and that. A simple diet is easier to understand and troubleshoot than a complicated diet, ie many ingredients is bad.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

http://www.celiac.co...celiac-disease/

Newbie Info 101

http://www.celiac.co...ewbie-info-101/

What's For Breakfast Today?

http://www.celiac.co...reakfast-today/

What Did You Have For Lunch Today?

http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?

http://www.celiac.co...ooking-tonight/

Dessert thread

http://www.celiac.co...399#entry802399

Easy yummy bread in minutes

http://www.celiac.co...ead-in-minutes/

How bad is cheating?

http://www.celiac.co...t-periodically/

Short temper thread

http://www.celiac.co...per-depression/

Non celiac wheat sensitivity article

http://www.nature.co...jg2012236a.html

Share this post


Link to post
Share on other sites
kelly97    0

Thanks Diana, Rose, & Paul. And thanks, Paul, for posting all of those websites that I can go to do research. I'm definitely that kind of person. I always want to know everything I can about my disease.

And Rose, I sent you a personal message - at least I think I did - not 100% for sure how everything works on this particular forum just yet.

I made a wallet size card that I can take with me to the grocery store to look for ingredients that I'm not allowed to have - not just the basics ones like wheat, barley, rye, but the other stuff like modified food starch, dextrin, maltodextrin, etc.

I'm still wondering if Celiac's causes reactive / enlarged mesenteric lymph nodes or stranding...

-Kelly

Share this post


Link to post
Share on other sites
Ads by Google:


frieze    113

Other causes of mesenteric lymphadenopathy that characteristically demonstrate central low attenuation at CT are Whipple disease (31) and the cavitating mesenteric lymph node syndrome of celiac disease (32,33). Whipple disease is a systemic bacterial infection. The causative organism is Tropheryma whippelii. Lymph nodes affected in Whipple disease have a high fat content and this is responsible for the low CT attenuation value, usually between 10 and 20 HU. The lymphadenopathy responds to antibiotic therapy, and response to treatment may be evaluated with serial CT. The lymphadenopathy associated with the cavitating mesenteric lymph node syndrome of celiac disease also has a low CT attenuation value. However, these lymph nodes are truly cavitating nodes. These nodes regress when the underlying celiac disease is treated with a gluten-free diet. In cases of celiac disease, the distinction between the CT appearances of the mesenteric lymphadenopathy is important, as celiac disease is also associated with a higher incidence of lymphoma. Mesenteric lymphadenopathy in patients with celiac disease always raises concern about the development of lymphoma, and the cavitating appearance of the nodes leads to the correct and treatable diagnosis.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0