Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Celiacs, Have You Tested Repeatedly For Trace Of Blood In Urine?

1desperateladysaved

Recommended Posts

1desperateladysaved Proficient
1desperateladysaved
Posted

When I have had urine tests, I have had a trace of blood in my urine. I think as far back as high school, and perhaps before. That would be more than 30 years.

The MD would always figure it was a trace and not getting worse. It might have to do with my period which was coming or going in a week or so. My anemia was thought perhaps a result of this small amount of consisten blood loss.

Has anyone else experienced this symptom? Did it go away when you went gluten free?

Over the past 5 , when I was testing every month or two, twice my urine tested negative for trace of blood. I am working up my curiousity now, because I have not had it tested since going gluten free.

DT

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


missmellie Newbie
missmellie
Posted

The only thing I can for sure is you're not the only one. I have experienced the same thing and have had multiple tests to find the cause. They finally said "well, some people just have little amounts of blood in their urine and we don't know why." I guess the important thing is to rule out potential serious causes.

Link to comment
Share on other sites
1desperateladysaved Proficient
1desperateladysaved
  • Author
Posted

. They finally said "well, some people just have little amounts of blood in their urine and we don't know why."

Yeah, I have heard that too.

Link to comment
Share on other sites
ravenwoodglass Mentor
ravenwoodglass
Posted

Yes to blood and in my case also protein. Since I had extreme edema before diagnosis I figure it is from some kidney damage. I don't worry about it since it has been a finding for years.

Link to comment
Share on other sites
lynnelise Apprentice
lynnelise
Posted

Do you take asprin or advil? I was told by my doctor that occassional use can cause traces of blood in your urine.

Link to comment
Share on other sites
heather806 Rookie
heather806
Posted

Yes! For years...was even sent for ultrasounds of the kidneys etc. No cause found. My brother and father have it too. They haven't been tested for celiac though.

Link to comment
Share on other sites
1desperateladysaved Proficient
1desperateladysaved
  • Author
Posted

Do you take asprin or advil? I was told by my doctor that occassional use can cause traces of blood in your urine.

I don't think I have since my pregnancies began 24 years ago!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tennisman Contributor
tennisman
Posted

I did about 5 urine tests last year and all had traces of blood , my gastro doctor thinks I have kidney stones . I did also read a vitamin k deficiency can cause traces of blood in the urine and my GP doctor told me sometimes celiac's have a vitamin k deficiency .

Link to comment
Share on other sites
Finally-45 Contributor
Finally-45
Posted

Frequent urinary tract infections and cystitis are problems for women with Celiac.

Link to comment
Share on other sites
1desperateladysaved Proficient
1desperateladysaved
  • Author
Posted

I did about 5 urine tests last year and all had traces of blood , my gastro doctor thinks I have kidney stones . I did also read a vitamin k deficiency can cause traces of blood in the urine and my GP doctor told me sometimes celiac's have a vitamin k deficiency .

Interesting. Thanks, I am considering this.

Link to comment
Share on other sites
1desperateladysaved Proficient
1desperateladysaved
  • Author
Posted

Frequent urinary tract infections and cystitis are problems for women with Celiac.

I was tested for infections, but it was negative.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      120,995
    • Most Online (within 30 mins)
      7,748
    FatimaFarhan
    Newest Member
    FatimaFarhan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • GardeningForHealth
      10 years later, my celiac is progressing

      By GardeningForHealth · Posted

      As a side note, it seems that medical science has evolved in the past 5-6 years regarding Celiac Disease, and I am now catching up. It seems that anything that disrupts the microbiome sufficiently enough can--in genetically susceptible individuals--lead to Celiac Disease. I have been reading now that antibiotics, excessive simple carbohydrates such as refined sugars and starches, the manner of birth such as C-section vs vaginal delivery, the diversity of one's diet, the presence of certain bacteria or viruses, can all contribute to microbiome dysbiosis, which can lead to Celiac. This is fascinating research.
    • GardeningForHealth
      10 years later, my celiac is progressing

      By GardeningForHealth · Posted

      I mostly eat healthy. My diet has varied over the past 10 years but mostly consisted of meals I cooked at home made from scratch. Ingredients I used over the years include (not in order): non-wheat grains such as teff, sorghum, millet, and eggs, butter, cheese, some milk, meat (poultry, red meat, but very little processed meat), gluten-free baked bread (mostly Canyon Bakehouse brand), vegetables, fruits, nuts, legumes, peanuts, chocolate (not in the past 6 months). However, the mistakes I made in my diet are that I consumed too much sugar and carbohydrates from gluten-free baked goods that I baked myself at home such as gluten-free dessert items, and also I ate pretty much the same exact meals over and over, so a great lack of diversity in what I ate. I got lazy. I think this messed up my microbiome. The meals I ate were mostly healthy though. I always made sure to eat vegetables and fruits on a daily basis.  I have checked for nutrient deficiencies over the years and I am sometimes low in Vitamin D. I started supplementing it after that. What concerns me is the progressive nature of the food intolerances, which indicates the gut is not healing and has been leaking all along. 
    • TessaBaker
      Hair loss

      By TessaBaker · Posted

      It sounds like you're dealing with a complex situation, and I can understand how frustrating it must be not to have a clear answer. Gut health can indeed play a significant role in various aspects of our well-being, including hair health.
    • Celiac16
      Thiamine supplementation

      By Celiac16 · Posted

      I have found similar benefits from thiamine. I was diagnosed with celiac at 16 and never really recovered despite strict gluten and dairy free diet and no detectable antibodies on checkup bloodworks. I’ve tried stopping the b1 but start to feel bad again- I wanted my doctors to do more extensive testing for the different thiamine transporters and enzymes which would be a better indication if I was deficient or dependent on it but everyone dismisses it (there are know genetic mutations where you need to take it daily for life). I have looked into Thiamine Responsive Megablast Anemia and I have a lot of the more mild symptoms of the disease that manifest when thiamine isn’t given to the patient such as optic neuritis… I just find the parallels interesting. i think that celiacs could be a side issue of inflammation that resulted from vitamin deficiencies. I was eating a lot of sugar leading up to my diagnosis and since eating gluten free didn’t make me feel much better, I’m wondering if this was more the underlying issue (sugar heavily depletes b1). I usually take 1.5g thiamine a day.
    • Fluka66
      Waiting for urgent referral.

      By Fluka66 · Posted

      Thank you for your welcome and reply.  Yes I've been carefully reading labels looking for everything in bold and have been amazed by what I have seen. However Heinz tomato and basil soup is wheat free so I m thinking I already have ulcers?  The acid could be causing the pain . My pain always starts in one place then follows the same route through me . GP confirmed that is the route of our digestive system.  So much pain from stabbing to tearing. If I throw in milk with lactose it's horrific.  Many years of it now, won't go into details but been seeing a consultant for a supposedly different problem . Wondering what damage has been done over the years. Many thanks for your reply. Wishing you the very best.    
×
×
  • Create New...