This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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Hi all. Thanks in advance to anyone who reads this long post. I'm a 23 yo female.
I have had quite the year in terms of health issues. here's a recap, which actually starts senior year in high school:
may 2012 - had horrible bouts of constipation that came out of no where. something I had never experienced before. tested positive tTg IgA = 38.3 where >20 was positive. I also had Gliadin antibodies and EMA tested which were both negative. Important to note: I did not see these test results until this past November! my pediatrician never told me or my mom, I just discovered them in my online portal.
october 2015 - still dealing with random periods of horrible constipation. they seemed to correlate with stress. always seemed to have terrible canker sores. History of real bad migraines. Had another tTG IGA test which was now negative.
March 2016 - had barium follow through xray to see why I am always constipated and irregular. nothing abnormal with this test.
April 2016 - got seriously injured from running. shin splints that made it impossible for me to even walk to class. was prescribed ridiculous amounts of ibruprofen and naproxen (800mg twice a day) probably the cause of my gastritis
June-August 2016 - shin splits are not healing. doctors run slew of tests to see if I have a malabsorption issue or blood clotting issues, I had positive anti ccp antibodies (this is a rheumatoid arthritis blood marker) and iron deficiency (though not anemic). Another celiac panel was ran and DGP was negative and tTg was BARELY positive: 4 where >=4 was weak positive and >10 strong positive. This time I had an endoscopy which found intestinal metaplasia of the stomach, gastritis and duodenitis. no villi blunting so I was told no celiac.
September 2016- was prescribed prilosec for the metaplasia. I thought screw it, I'll try eating gluten free for 8 weeks. I felt GREAT. first time in forever that my stools were normal and regular and my stomach was emptying it self in a normal timely manner. Not sure if this was from the diet or the prilosec.
october 2016: had a little ER trip after a night of drinking due to brown colored urine - had high billirubin in urine, was not told what this meant, I'm assuming alcohol poisoning
November 2016 - Weaned off prilosec. found those strong positive tTG IGA blood lab from high school, freaked out, and demanded I be re tested. Did gluten challenge for 12 weeks until February 2017 and re tested, tTG IGA was negative, B12 was borderline very low, still have iron deficiency and low vitamin D. EMA was never tested.
summary of symptoms I've had: constipation, stomach takes forever to digest, canker sores, iron deficiency, borderline low B12, low vitamin D, gastritis, migraines, anxiety, tingling numbness and bone pain in lower legs--> possibly due to shin splint injury not healing properly. keratosis pilarsis(chicken skin) on my upper arms which I've had for as long as I can remember. Moodiness --> I can be a real grouch when my insides are bothering me.
Currently: I feel like crap. My shins aren't healed after a whole year. I've been prescribed pepcid because my primary suspects the metaplasia/inflammation/ulcers are not healed. I often have pain on my right side abdomen below the rib cage, is something wrong with my liver? am I a hypochondriac at this point? Lately I've been having very fatty oily stools that stick to the toilet bowl. I know this is a sign of malabsorption, heck I lost 3 pounds in 10 days this month, obviously not on purpose! I'm 110 pounds, I'm going to evaporate! My primary told me this week to try the pepcid along with gluten free and dairy free diet, I am to report back in a month. I'm seeing a rheumatologist next week to sort out the positive anti ccp test, I'm not sure if I should ask to get celiac retested( i know i have to eat gluten for this) and ensure the EMA and DGP are done. I've only had one completely complete panel (in high school) and since then 2 negative ttg iga's and 1 barely positive. What the heck? I just want one day where I'm not worried about how much my stomach is going to hurt. I'm only 23, this has been consuming my life for the past 5 years.