• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Constant Nausea
0

20 posts in this topic

Recommended Posts

flowerqueen    26

Has anyone had problems with nausea even though they are gluten and wheat free. When I was first diagnosed apart from feeling constantly hungry my reflux and stomach problems vastly improved. Recently however, I have felt nauseous much of the time and stomach ache, gas etc. Also every few weeks I wake very early with an overwhelming urge to vomit and get a cold sweat with it. It usually settles down after about an hour, following fennel tea and going to the bathroom. As far as I know, I'm not consuming anything I shouldn't eat and am very particular in the kitchen (I have my own preparation area and utensils etc.). Any ideas? I do also have diabetes and a hiatus hernia.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


frieze    114

Has anyone had problems with nausea even though they are gluten and wheat free. When I was first diagnosed apart from feeling constantly hungry my reflux and stomach problems vastly improved. Recently however, I have felt nauseous much of the time and stomach ache, gas etc. Also every few weeks I wake very early with an overwhelming urge to vomit and get a cold sweat with it. It usually settles down after about an hour, following fennel tea and going to the bathroom. As far as I know, I'm not consuming anything I shouldn't eat and am very particular in the kitchen (I have my own preparation area and utensils etc.). Any ideas? I do also have diabetes and a hiatus hernia.

have you checked you blood sugar at these times?

Share this post


Link to post
Share on other sites
flowerqueen    26

have you checked you blood sugar at these times?

Yes I have and there doesn't seem to be anything too unusual. I manage my diabetes by diet alone at present, I'm bordering needing medication for it. My Hba1c tests are due this week. I have found that since I can no longer have my usual sources of fibre it's been more difficult to regulate my ideal levels.

Share this post


Link to post
Share on other sites
flowerqueen    26

Could be hormones fluctuating, or your hernia on an empty stomach, or blood sugar in combo with all of that.

Is there a chance your blood sugar is dipping too low in the middle of the night?

It's possible. It did dip one day when I was out walking the dog, recently. It was a day I'd only had soup at lunch time with a couple of rice crackers. Night time glucose dips are harder to check on. At the moment I've got that many theories going round my head I don't know what to think anymore.

Share this post


Link to post
Share on other sites
Ads by Google:


flowerqueen    26

Some people set an alarm to check glucose around 3 a.m.

If you can add beans or leafy veggies it helps with fiber and glucose regulation, for most.

Yes, also I think there's a wrist band you can buy that monitors glucose levels while you are asleep, don't know how much they are though. I eat beans and leafy veg etc. and of course, there's a chance that it's nothing to do with my glucose. I am restarting a food diary to see if that shows anything up.

Share this post


Link to post
Share on other sites


Ads by Google:


flowerqueen    26

Is nausea one of your glutening symptoms? Could you have become sensitive to lower levels of gluten than before?

I think the nausea was more to do with the lactose intolerance I developed about 2 years before I was diagnosed Coeliac. Although as I had so many nasty symptoms due to Coeliac it's hard to differentiate between them. At the moment my stomach feels like I've been accidentally glutened, but I don't know how, as I'm fastidious in the kitchen etc. Starting to wonder if gluten is hidden in something I don't know about. One thing I don't really know is how long symptoms persist if there's been some cross contamination.

Share this post


Link to post
Share on other sites
flowerqueen    26

I'd like to add something to original post....

Have you ever had a throat infection where your throat feels sore, swollen, throbbing and itchy and wish you could put your hand down your throat to give it a good scratch? Well that's what my stomach feels like right now - as well as the nausea.

Share this post


Link to post
Share on other sites


Ads by Google:


Bubba's Mom    103

It sound like it could be a food intolerance of some sort..if not gluten? Do you keep a food log/symptom diary? Write down what you eat and note any symptoms. Many food reactions are delayed so it's good to have a way to go back and see if there's a pattern.

Many of us find that we don't tolerate soy or dairy after omitting gluten. Most vitamins have soy. I had nausea problems a lot too, until I got rid of all traces of soy. It made a big difference.

Also, digestive enzymes and probiotics help a distressed digestive system a lot.

Share this post


Link to post
Share on other sites
flowerqueen    26

It sound like it could be a food intolerance of some sort..if not gluten? Do you keep a food log/symptom diary? Write down what you eat and note any symptoms. Many food reactions are delayed so it's good to have a way to go back and see if there's a pattern.

Many of us find that we don't tolerate soy or dairy after omitting gluten. Most vitamins have soy. I had nausea problems a lot too, until I got rid of all traces of soy. It made a big difference.

Also, digestive enzymes and probiotics help a distressed digestive system a lot.

Thanks, you've more or less confirmed my own suspicions about food allergies although I still can't tolerate dairy products and don't eat them. I did wonder about soya products and I've just recommenced my food diary that I started before being diagnosed Coeliac. I have just purchased some probiotics (gluten/wheat/dairy free/soy free) so I've got my fingers crossed. It's more reassuring when other people have the same symptoms, even though it doesn't take away the pain and discomfort.

Share this post


Link to post
Share on other sites
GFinDC    609

You might have an H.Pylori infection going on. You could get a test for it and try some natural remedies. Gluten CC is a possibility too, and also other food intolerances might be the problem. Do you eat a little protein with every meal, and especially before bed?

I checked on the wrist watch glucose monitors once and the were about $1500 without insurance.

Share this post


Link to post
Share on other sites
Takala    413

I think maybe you should call your doctor and have a talk about this hernia, because these night time symptoms sound as if something is going on in there when you lay down. The gas and reflux would be really aggravating that.

You may be a very sensitive person who can not tolerate certain gluten free replacement foods, esp. those with that dreadful supposedly gluten free codex wheat starch. Or you could just be reacting to one of the replacement grains or starches. I didn't know that flax bothers me until I was gluten free for quite awhile, I never had any inclination to eat the stuff, but manufacturers put it in a lot of commercially prepared items. Also, watch out for oats, even the supposedly gluten free ones, as some celiacs react to those, also. We replaced our salt recently because iodized salt here in the USA is turning up with dextrose in it, and I kept having mild reactions to the plain boiled rice and rice noodles made in it, and the only reason I figured that out was that I stopped all rice for a week and the symptoms stopped, then somebody here made a post about their new iodized sea salt box having dextrose in it, and I checked, and I had not caught that my spouse had purchased the same brand with the new label ingredients. Yeah, supposedly they are supposed to call it out if the dextrose, which is derived from grain starch, is sourced from one of the major allergen groups, but it's more likely the stuff is imported from a country which is not consistent. I checked many stores around here, and every single iodized salt in every brand on the shelves now has dextrose in it. WTF. :angry::ph34r: I mean, who batch -tests SALT for trace glutens ?

Share this post


Link to post
Share on other sites
bartfull    565

Remind me to check the brand of sea salt I get. It has nothing added to it at all. (I can't remember the brand but it comes in a clear plastic bag with pale turquios, dark blue, and red writing. It also says it is not heated or something to that effect.)

Share this post


Link to post
Share on other sites


Ads by Google:


flowerqueen    26

You might have an H.Pylori infection going on. You could get a test for it and try some natural remedies. Gluten CC is a possibility too, and also other food intolerances might be the problem. Do you eat a little protein with every meal, and especially before bed?

I checked on the wrist watch glucose monitors once and the were about $1500 without insurance.

I was checked for H.pylori a while back and it came back negative. I can't eat anything after my evening meal as I have a hiatus hernia and it would cause problems if I ate at bedtime. I think I've seen a wrist watch glucose monitor in UK, will check out the prices. It may be possibility it's CC even though I'm careful, I've spoken to Coeliacs UK today and we were discussing the possibility of it being other food intolerances that may have surfaced. Many thanks.

Share this post


Link to post
Share on other sites
flowerqueen    26

I think maybe you should call your doctor and have a talk about this hernia, because these night time symptoms sound as if something is going on in there when you lay down. The gas and reflux would be really aggravating that.

You may be a very sensitive person who can not tolerate certain gluten free replacement foods, esp. those with that dreadful supposedly gluten free codex wheat starch. Or you could just be reacting to one of the replacement grains or starches. I didn't know that flax bothers me until I was gluten free for quite awhile, I never had any inclination to eat the stuff, but manufacturers put it in a lot of commercially prepared items. Also, watch out for oats, even the supposedly gluten free ones, as some celiacs react to those, also. We replaced our salt recently because iodized salt here in the USA is turning up with dextrose in it, and I kept having mild reactions to the plain boiled rice and rice noodles made in it, and the only reason I figured that out was that I stopped all rice for a week and the symptoms stopped, then somebody here made a post about their new iodized sea salt box having dextrose in it, and I checked, and I had not caught that my spouse had purchased the same brand with the new label ingredients. Yeah, supposedly they are supposed to call it out if the dextrose, which is derived from grain starch, is sourced from one of the major allergen groups, but it's more likely the stuff is imported from a country which is not consistent. I checked many stores around here, and every single iodized salt in every brand on the shelves now has dextrose in it. WTF. :angry::ph34r: I mean, who batch -tests SALT for trace glutens ?

Share this post


Link to post
Share on other sites
flowerqueen    26

I think maybe you should call your doctor and have a talk about this hernia, because these night time symptoms sound as if something is going on in there when you lay down. The gas and reflux would be really aggravating that.

You may be a very sensitive person who can not tolerate certain gluten free replacement foods, esp. those with that dreadful supposedly gluten free codex wheat starch. Or you could just be reacting to one of the replacement grains or starches. I didn't know that flax bothers me until I was gluten free for quite awhile, I never had any inclination to eat the stuff, but manufacturers put it in a lot of commercially prepared items. Also, watch out for oats, even the supposedly gluten free ones, as some celiacs react to those, also. We replaced our salt recently because iodized salt here in the USA is turning up with dextrose in it, and I kept having mild reactions to the plain boiled rice and rice noodles made in it, and the only reason I figured that out was that I stopped all rice for a week and the symptoms stopped, then somebody here made a post about their new iodized sea salt box having dextrose in it, and I checked, and I had not caught that my spouse had purchased the same brand with the new label ingredients. Yeah, supposedly they are supposed to call it out if the dextrose, which is derived from grain starch, is sourced from one of the major allergen groups, but it's more likely the stuff is imported from a country which is not consistent. I checked many stores around here, and every single iodized salt in every brand on the shelves now has dextrose in it. WTF. :angry::ph34r: I mean, who batch -tests SALT for trace glutens ?

I have not dared to have any gluten free codex wheat starch as I've always been sensitive to wheat. I have recently been eating a cereal with flax in, and I did wonder whether it could be that, but I've wondered about a lot of things. I am keeping a food diary to see if it highlights anything. It's very odd putting dextrose in salt, not heard of that before.

Share this post


Link to post
Share on other sites
frieze    114

I was checked for H.pylori a while back and it came back negative. I can't eat anything after my evening meal as I have a hiatus hernia and it would cause problems if I ate at bedtime. I think I've seen a wrist watch glucose monitor in UK, will check out the prices. It may be possibility it's CC even though I'm careful, I've spoken to Coeliacs UK today and we were discussing the possibility of it being other food intolerances that may have surfaced. Many thanks.

do you have the head of your bed elevated?

Share this post


Link to post
Share on other sites
flowerqueen    26

do you have the head of your bed elevated?

Yes I do, I have lots of pillows too. I can't sleep flat on my back for obvious reasons. It's not always restful sleep though as I have arthritis in my spine and sciatica caused by my spine degenerating, making the nerves in my legs very painful.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,912
    • Total Posts
      938,645
  • Member Statistics

    • Total Members
      65,835
    • Most Online
      3,093

    Newest Member
    Shirley Ann
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello, I have been dealing with a mysterious rash for the past ten years that I am slowly beginning to think is DH.  It comes and goes, is itchy as all get out and shows up in all the areas that DH appears (elbows, back, torso, knees and base of neck).  It comes and goes over the years which has thrown me a little, but from what I can tell it can happen with DH? Anyways I went to an allergist, he was a jerk and told me it was not an allergy and to get a biopsy (which was done ten years ago when it first happened, but okay).  Me being at my wits end I called up a local dermatologist and got an appt for a biopsy.  I went in armed and ready with the info I have read here about the correct biopsy etc.  Well of course the dermatologist wouldn't give me the time of day Would not listen to the past history of the rash or look at photos, was in and out within five minutes and insisted on a scratch biopsy instead of a punch biopsy.  She simply said she would be highly surprised if it was DH.  I try to respect doctors so I pushed but I did not push hard enough.  She did the scratch biopsy against my recommendations.  So that brings us to today when I received a message that the biopsy showed an allergy and that they could either give me an order of prednisone or refer me to an allergist.  Now if you remember my local allergist sent me away and said it wasn't an allergy.  I am so done and I refuse to just keep medicating myself, I need to find the root cause.   So I have a physical tomorrow night with my regular doctor and I am tempted to just insist on a punch biopsy next to the rash for a proper biopsy.  Couple questions for you guys though.  If a scratch biopsy came back as an allergy could that possibly lead to gluten allergy (I know it doesn't prove that, but could it mean it could be gluten?).  Should I keep pushing for a punch biopsy? I am planning to go gluten free after this appointment anyways but I keep eating it to try and get a proper diagnosis.  I feel I should get a proper diagnosis, one to keep me on track, one to make sure that is what it is and also I did try gluten free for 30 days before and it didn't seem to help the rash.  But from what I have read that could have been to short of a time.  I feel I need a proper diagnosis to help me stay with it and keep on the right path.   Lastly, the rash definitely went through stages and is at an end stage, still itches like crazy but isn't as bad looking as when it started.  Does it matter when you take the biopsy as long as there is a rash it will potentially show?  I hope all this makes sense.  I am tired of being told I am crazy from doctors.  If they could find the solution I wouldn't be looking myself.  I would be very happy to be proved wrong but so far that has not happened and I just want an answer! So tired of being itchy!! Thank you very much for your help and listening!!!
    • I'm sorry I don't have much advice for you but I can relate in some ways. I've took generic Zoloft for about 10 years. When I was diagnosed celiac I worried about and researched my medications and am confident that they are safe for me. I have spent many years fighting depression and anxiety and have tried different meds but finally accepted I need the Zoloft and Xanax probably for life. I will say that most of our serotonin is in our stomachs and any time I switched meds or had to withdrawal my stomach issues were the worst. So please be careful with switching or stopping ( never cold turkey) any psychiatric medication. Also you could be sensitive to other grains. Gluten free bread does not like me. Also so far I have not found any one in the medical field that takes celiac seriously. I have been laughed at even and most don't have a clue what problems gluten does to us mentally and physically.
    • When does it matter if its gluten-free? ( likely is)  but she isn't eating it. She isn't 2 and put her fingers and paint brush in her mouth.  Are you or your son going to lick the glass?  Of course not.    Any paint can be be scraped off glass with a razor blade.  Some people use dry erase markers
    • Wow. I'm quite surprised that this is so highly heritable. I mean, I knew there was a genetic component, but most things I've read have said that it isn't very well understood and that other factors play a part.  This gives me a lot to think about.
    • The point is, celiac is mostly genetic, it can be dormant for years then come up. You can have it with no symptoms for years as it slowly eats away at your insides also. So you should have your kids eating gluten and get them tested. This way you know if they have active celiac. They should also be tested every year or so as there is a high chance they will get it.
  • Upcoming Events