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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gene Testing Positive
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6 posts in this topic

I got my olderst daughter's results from Enterolab in just now and here they are:

Gluten Sensitivity Gene Test

HLA-DQB1 Molecular analysis, Allele 1 0201

HLA-DQB1 Molecular analysis, Allele 2 0503

Serologic equivalent: HLA-DQ 2,1 (Subtype 2,5)

It explains that she got an allele from each parent and that gluten sensitivity or celiac disease may be more severe. Can someone interpret this a little more clearer for me? She has no symptoms except for migraines since 6th grade. My husband has NO symptoms of gluten intolerance whereas I have been very ill the last 2 years and now know that gluten was causing the havoc in my body. I barely got out of bed for a year but I am now in the healing process. So if my daughter continues to ingest gluten, can celiac disease devolop? Thanks for input!

Also should I gradually get her off of gluten, she is a teenager and this will be a real, real disappointment to her. It actually will be very difficult for her.

Edited by ShannonA
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Perhaps a trial week where she does not consume gluten, then see if that gets rid of the migraines ? Then reintroduce, and see if they come back ? It's easier to reason with someone when they can feel cause and effect.

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Perhaps a trial week where she does not consume gluten, then see if that gets rid of the migraines ? Then reintroduce, and see if they come back ? It's easier to reason with someone when they can feel cause and effect.

So should I be worried about this because what I have been through in the last 2 years was horrific now I get these results and I am kind of freaking out. I never want anyone to go through what I went through so maybe I am being overly worried. I am just getting back enough energy to tend to my children and I now I get these results and it scares me to think that they would ever go through what I went through because of gluten causing so much damage to a body. I literally felt like I was dying a slow horrid death. Should I not be as worried being she really doesn't have many symptoms?
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So should I be worried about this because what I have been through in the last 2 years was horrific now I get these results and I am kind of freaking out. I never want anyone to go through what I went through so maybe I am being overly worried. I am just getting back enough energy to tend to my children and I now I get these results and it scares me to think that they would ever go through what I went through because of gluten causing so much damage to a body. I literally felt like I was dying a slow horrid death. Should I not be as worried being she really doesn't have many symptoms?

I think a lot of us feel like that. I almost vomited when I found out he was gene+. And the half gene he got wasn't MINE.

In our case we will test every year. I see signs in my son, especially as I remember my stomach aches and behavior as a kid. We're coming to a point where we're going to have to draw a line and force a gluten-free trial on him, regardless of antibody test results.

I have no idea where we'll go from there.

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The migraines can be caused by something other than gluten. That is why I suggested, take out the gluten seriously for a week or two, then re-introduce it, and see what happens.

Don't freak. Just because she has the genes, doesn't mean she's got celiac or gluten intolerance. It means she just has a greater probability of developing it, and now that she has a 1st degree relative with it, that probability is higher. But it also means that she is more likely to be recognized as having a gluten problem, doctors will be looking for it more likely if they bother to read family history, and if you put this option to her the right way, she may be more likely to avoid gluten on her own, or get diagnosed, and avoid all your problems.

When I stopped eating it, I spoke to a lot of family members, some with chronic health problems, but it didn't make that big an impression on them. I'm convinced I'm a third generation gluten intolerant/celiac just from my family history, because of all the associated diseases that were showing up, but people have different motivations for what they will do about their health. Every time I watch morning television for a few minutes, and see all the ridiculous ads for heartburn medications and painkillers and anti depressants I wonder how many of these drug consumers really have a gluten problem.

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Thanks for the input! We'll do a trial, I think :)

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
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    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
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