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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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I'm Celiac, Could My Sis Be Gluten Intolerant?
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2 posts in this topic

Hello everyone!

Since you are all so incredibly knowledgeable and have helped me out so much thus far, I'd figure I'd throw this one out there...

In May I found out that I was Celiac - I definitely was the atypical kind since I didn't experience GI symptoms before diagnosis. We found out that my mother has the DQ2 gene and my younger sister had the Celiac panel done and tested negative. I started the Primal diet (I posted about it in another section) and after seeing my success with it, my sister decided to go along with me to help her lose weight. She had been on the Primal diet for about two weeks and decided to have a cheat day last Friday and had croutons in her salad. She became sick with abdominal pains and constipation for three days.

Could she have had a masked gluten intolerance that we didn't know about? Just like I never suspected Celiac disease for me? Is it possible for one sibling to be full blown Celiac and the other one gluten intolerant? I figured that with intolerance, it would have popped out and reared its ugly head before now. Clearly her body doesn't "appreciate" gluten now and she should just go gluten-free, but she keeps asking me if her reaction could just be attributed to the fact that her body hasn't had gluten in two weeks. She's willing to go gluten free but just wants some feedback regarding if this could be an actual intolerance or her body just re-adjusting to something just added back into her diet. Any thoughts?

I've also suggested to her to create a profile on here and start asking some questions since you guys are amazing!!!

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Hi Laura and pass a welcome to your Sis!

It is not possible to become intolerant of gluten by removing it from one's diet. I have seen a several references to this over the past year and it is not true. There are MANY foods we don't eat on a regular basis - if we developed an intolerance every time we didn't eat a particular food for some time - EVERYONE would be intolerant of seasonal fruits and vegies - EVERYONE would be intolerant of certain meats and grains that aren't in their diets on a regular basis.

There are a couple possibilities. One she is Non Celiac Gluten Intolerant. Another would be that she had "silent celiac" trigger at some point and perhaps isn't making enough antibodies yet for detection in blood. I could probably think of a few more scenarios if she needs convincing. Make sure she had a Total IgA in her Celiac Panel - if she is low on Total IgA, all other IgA tests are not valid.

I would guess she might have a few other improvements in her health given more time gluten-free &/or will become even more sensitive to gluten exposure.

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