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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Had To Laugh - Most Idiotic Blog Ever
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13 posts in this topic

So I started NAET therapy at the recommendation of my dietician who is certified to practice it. She wanted to see if it will clear up some of my other emerging sensitivities and thought I'd be a good candidate. Not sure if it'll work but I'm trying to keep my mind open to see if I'll feel better. Anyway, I decided to try to do some research on NAET therapy and Celiac disease and I found the most ridiculous blog I've ever seen in my life...I got some chuckles out of it and I'm hoping that you guys will too...

"In 2005 or so I was diagnosed by stool test as positive for Celiac. The symptoms I had at the time were feelings of early fullness when eating and constipation, as well as anxiety and overall poor health. I went on a gluten free diet which improved my symptoms almost immediately. Was on this strict gluten free diet for 3 years until I came across an alternative energy-based treatment for allergies called NAET. (naet.com.) I

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Or, she has it and the biopsy missed it.

Or, she's ncgs.

Or, she had a leaky gut.

Gee, wonder what those "other" stomach problems are...?

Yeah, I love some of the stuff out there about gluten. Frightening.

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Wow, a stool test hey...

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She probably tested originally through Enterolab, which can detect a gluten intolerance but can not diagnose Celiac.

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Muscle testing proving she doesn't have gluten intolerance or Celiac? These poor people who throw so much money at these "cures".

I find these things rather sad, not funny.

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I, too, find these types of "medical scams" sad.

People in pain will try anything to get well. (I know, I was one of them)

There is no scientific or medical evidence that NAET or muscle testing or hair analysis etc. will "diagnose, cure or treat" anything at all. I saw one Pub Med article about one case of NAET, but the evidence is weak. It concluded "This case report highlights the possible benefit of NAET for children with food allergy. Randomized clinical trials should be encouraged to study the effectiveness of NAET in treating food allergy."

"possible" benefits.

There are no clinical trials reported.

If you have concerns or questions about any diagnostic method, you may wish to contact the American Academy of Allergy, Asthma, and Immunology (AAAAI).

Here is a list of questionable "allergy testing" methods.

http://www.faiusa.org/page.aspx?pid=389

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My mother is a smart lady with a degree in Psychology and an MBA.

She has done NAET.

She thinks it helped, for a short while. She has tried everything EXCEPT getting proper thyroid antibody tests (she's hypo), vitamin panels, and a Celiac panel.

She willingly eats around foods that bug her (and it's weird what gets her...leaky gut I'm sure); but claims eating gluten-free is too inconvenient.

She has horrible back and hip pain, urgent bm's, terrible allergies.

She keeps going to a quack Chiro who keeps doing quack things. The redeeming factor is at least the massages work well.

How can a smart person be so dumb??

I hope she doesn't lurk here.

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If she did have celiacs, why would she be shouting "Eureka! I'm cured!" if she's having the symptoms again after going back to gluten? A gluten-free diet cured her of her ailments, she went back to gluten, and now she's having medical problems again. Duh?

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I, too, find these types of "medical scams" sad.

People in pain will try anything to get well. (I know, I was one of them)

There is no scientific or medical evidence that NAET or muscle testing or hair analysis etc. will "diagnose, cure or treat" anything at all. I saw one Pub Med article about one case of NAET, but the evidence is weak. It concluded "This case report highlights the possible benefit of NAET for children with food allergy. Randomized clinical trials should be encouraged to study the effectiveness of NAET in treating food allergy."

"possible" benefits.

There are no clinical trials reported.

If you have concerns or questions about any diagnostic method, you may wish to contact the American Academy of Allergy, Asthma, and Immunology (AAAAI).

Here is a list of questionable "allergy testing" methods.

http://www.faiusa.org/page.aspx?pid=389

Hair analysis can diagnose drug use!!! :lol: :lol: :lol:

:P

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Yeah, I find it sad too. I was on the other side of it years ago when even my doctors didn't know what to do with me. I saw a Kinesiologist, on the advice of my sister, who did muscle testing on me and "identified" several food intolerances. Interestingly, "wheat, oats, barley, and rye" were among those. I followed his advice, which also included eliminating sugars, artificial sweeteners, caffeine, a few other things--and took the expensive supplements he "prescribed".

I didn't see much of a difference--of course a few of the supplements contained gluten. This was a couple years before I was diagnosed. If I knew then what I know now.....

I know a few people who have been helped by NAET, but after my personal experience, I wouldn't put much stock in it.

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Hair analysis can diagnose drug use!!! :lol: :lol: :lol:

:P

Would you call that a "diagnosis"? really? I would call that

"forensic analysis"...but why split hairs? ;)

And you know full well I was talking about diagnosing food allergies and specifically, in that context.... you little scamp. :P

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you little scamp. :P

It's a condition....

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
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