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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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bjaded    0

Good morning all! I am 22 years old and 99.9% sure I have a gluten intolerance. I was born with a lactose intolerance and quite honestly I've always had tummy problems. (bloating, constipation, gas, diarrhea etc.) For the past year I've wondered if I had gluten problems but everything came to a head this month. I was sick immediately after eating anything with gluten. I developed stabbing pains in my stomach and headaches. There were times I would have to leave my desk at work 4 times or more do to an upset stomach.

I started doing research and kept a food journal and took pictures of my swollen tummy after eating gluten. I noticed with in 30 mins I would have awful symptoms. This week I have been eating gluten free to the best of my ability (only gluten free foods! hopefully I'm not accidentally digesting it.) But this is the best that I have felt in weeks!

My fiance still wants me to get testing because he is concerned but I know they are not all 100% conclusive. I've thought about just a dietitian. Where do I go from here? I'm not crazy am I? ha!

Thank you for your help!!

Jade

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Not crazy!!

If you can stand it for a bit longer it is worth carrying on with gluten to get blood work and a biopsy done.

I had been off wheat for years when I realized I had stacks of celiac symptoms, so blood work came back negative, and to be honest I expect my biopsy to be negative too.

I did do a gluten challenge, but only lasted 3 weeks, not the 6 weeks needed. The lab lost my results, so I tried again but lasted 5 days - it seems many people react more once they start gluten free, on the journey to sorting things out.

I think it is harder sometimes without a full diagnosis to get other things like annual blood work. I am struggling to get my kids tested, for example.

So - I would say do the tests, on gluten if possible, if you can.

It is also worth seeing a doctor to rule other conditions out.

That said, you wont be alone if you end up self diagnosed.

Hang in there and good luck

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GFinDC    609

Hi Jade,

I don't know if you are crazy or not, but many people do have celiac. :D It is much easier to get the blood antibody test panel done now, before going gluten-free. It is likely you would need to do a gluten challenge fora while if you do it later, and that could be very painful. Reactions to gluten seem to intensify after going gluten-free.

By the way, did you see which way the big white rabbit went? :)

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Dessert thread

Easy yummy bread in minutes

How bad is cheating?

Short temper thread

Non celiac wheat sensitivity article

http://www.nature.com/ajg/journal/vaop/ncurrent/full/ajg2012236a.html

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