• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Something Is Wrong...
0

6 posts in this topic

Heh. Well, I have no idea what the heck is wrong with me. For over a month, I have been in pain. My stomach is constantly hurting. I don't know where to start. I can eat a big greasy meal and have to go to the bathroom, almost instantly after eating. It puts me in agony for the rest of the day. I figured quickly not to eat that way. But I still slip up and do it from time to time. I'm a southern gal who likes her fried food I guess.

It's always been that way. I took nothing from it, just figured I shouldn't eat it. I've eliminated dairy for the same reasons. It hurts my stomach, gives me very loose stools.

Well, like I said... I'm constantly hurting now. It does not matter what I eat. If I eat a piece of toast, it happens. If I eat meat, it happens. Veggies, same story.

It was suggested that I go gluten free. That it might not solve my issues right away but it could help.

Does any of this sound like it could be helped by a gluten free diet? Do I need to take any kind of tests or something? I just want to be healthy. I know that if my body is attacking me (loose bowels, back pain, fatigue, obesity) then I'm going at it wrong. KWIM?

Thanks for reading all this. I had less than 4 hours of sleep, went to the dr and she wasn't that helpful... I have a UTI, am in pain, and I just want relief. *sigh* I want to feel GOOD for once.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hey I am so sorry your feeling this way. I know exactly how you feel. I can tell you that I had/have reoccurring UTI infections. Do you still have your gall bladder? Your symptoms also sound like gall bladder issues as well. I recommend going to a Gastroenterologist before you change anything else. You have to be eating gluten for The test to be accurate or at least thats what I was told for my test. I do think It would benefit you to go gluten free even If your test come back negative. That is My personal opinion based on how Its helped me :)

I hope you figure out something soon. I am still learning myself.

1

Share this post


Link to post
Share on other sites

Don't go gluten free or gluten light until after you have had celiac testing done. You can call your GP and ask them to run the complete panel. Most doctors will refer you to a GI for an endo if you are positive on the blood panel but some doctors, if the results are highly positive, will diagnose based on that. There are false negatives though so do give the diet a try after all testing is done no matter what the results.

1

Share this post


Link to post
Share on other sites

Thank y'all. :) Well, I'll be eating my bread then! ROFL! And my cereal. ;) But I'm definitely willing to go gluten-free after we figure out what's wrong... I know I need a change in diet anyways. KWIM?

0

Share this post


Link to post
Share on other sites

Hi Nikki,

I agree, the testing for celiac should come first. It is much easier to do testing now before you go gluten-free. After going gluten-free it may be too painful to go back on gluten for the testing.

Your symptoms do sound like they could be celiac. A celiac blood antibody test panel is the first thing to get. An endoscopy is sometimes done after that but it is not always nessecary depending on the doctor you see. They may diagnose you after a positive blood antibody tests and a positive response to the gluten-free diet.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Dessert thread

Easy yummy bread in minutes

How bad is cheating?

Short temper thread

Non celiac wheat sensitivity article

http://www.nature.com/ajg/journal/vaop/ncurrent/full/ajg2012236a.html

0

Share this post


Link to post
Share on other sites
Ads by Google:


Get your gallbladder checked. After i went gluten free, i still had pain in my side that i had for about 6 or so years before that. They kept saying it wasn't it, then i had the HIDA scan done and lo and behold it was working at 5%. By the time i got it out, the assistant surgeon said it looked dead.

I still can't eat greasy foods, however that is due to my GERD.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,377
    • Total Posts
      935,763
  • Member Statistics

    • Total Members
      65,067
    • Most Online
      3,093

    Newest Member
    pauline11
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thanks so much, friends!  JMG, I'll try to get hold of that licorice, almost everything I read gives it glowing reviews.  I miss Bertie Bassets licorice (it contains wheat) so it will be nice to have some licorice again.  Thanks Whitepaw for those ideas, I must admit I'm getting rather fed up with my low fat menu but it seems the best way to keep the pain at bay so it is nice to have something else to cook.  I don't know if I have picked up another intolerance, but you could be onto something there.  And I know what you mean icelandgirl, we've been through so many tests and treatments it all becomes a blur!  My doctor isn't expecting to see me again unless things aren't better within the month, but I might bring my gastro appointment forward if needs be. Actually, in the end yesterday didn't go quite as badly as I'd envisaged it would, which makes me think that some of my pain, bloating and nausea are down to the ompremazole - it does warn that can happen on the packet.  When it says 1 in 10 people get these symptoms I always seem to be that 1 in 10!  I don't have any more burning pain or acid reflux (at least yet) but  I'm still losing weight which slightly troubles me.  That said, when I think of how I normally eat I must be down at least 500 calories a day.  JMG will know from another thread that I have a sweet tooth and at the moment the thought of eating a bar of chocolate makes me feel very sick indeed... Oh no - hope that doesn't mean I have developed a chocolate intolerance! I bought some 10g ompremazole tabs yesterday from Boots, having had nothing yesterday, and I've taken one at breakfast time.  So far so good.  I think I might take these for a few days then taper off. Thank you so much guys for accompanying me on what would otherwise be a lonely journey.  
    • Update: I have been taking Chanca Piedra (specifically, Royal Break-Stone, by Whole World Botanicals) on an empty stomach in the morning for the liver-gall bladder and surprisingly my lips are almost normal. I know the peeling lips may be caused by different issues but I hope this info helps someone.
    • Hi Cristiana, I'm so sorry that you are still not feeling well.  When do you go back to your Dr? I wish I could help more, but it's so hard to know what was what when I was on the PPI.  I was diagnosed with celiac and h. Pylori on the same day so I was already feeling awful.  Then I was put on 2 antibiotics with the  PPI.  I do remember feeling terribly nauseous, but just assumed it was the antibiotics.  When I started tapering, I still wasn't feeling well.  It really took months before I started to feel decent.  But I assume that it was the celiac. I really hope you start to see some improvement...((((hugs))))
    • @scorpio it has now been almost 2 years and I am curious if you ever found something that worked for you. My boyfriend suffers from EC as well and I am desperate to find a resolution for his sake. He's been dealing with it for over a year now and it is taking a toll on his work and social life.   Any updates would be helpful
    • I am going through the diagnosis stage as well. My family has strong history for celiac disease, and while I always had discomfort and other symptoms ( some of which i didnt know about) I wasn't tested until recently because I was DEATHLY afraid of needles. The results are highly positive but I am still getting a biopsy in early August. From what I have learned about it is that the endoscopy is beneficial to looking for not only signs of celiac but also other diseases that have similar symptoms to celiac. Because of your mixed result it wouldn't hurt to get a biopsy but it really is personal preference. I understand what you are going through and didn't like the idea much either but I really think it is something that can help you in the long run. P.S. There are lots of testing being done for new medications or other ways to "cure" celiac other than a gluten-free diet. It is my understanding that this can only be covered by insurance with a confirmed diagnosis (biopsy) but I don't need to get into that. The bottom line is that a biopsy is confirmatory especially since the doctors could see in the intestine, so to me, I feel better knowing that there's no chance of going gluten-free for nothing.
  • Upcoming Events