• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New Here!
0

8 posts in this topic

Hello everyone!

I am 32 years old, and just recently discovered I likely am gluten sensitive. Luckily, my doctor suggested that I might be and to try a gluten free diet. So, at least she should be on board when I tell her what I found out about my reaction.

Some background on myself: I've had migraines for years. I am very easily startled. When I was a child I was in the hospital for respiratory infections. I have anxiety and am easily depressed. My Father has had polyps and his mother died of colon cancer. I swear my Mom has some sort of mental issue, she can get *very* angry in a second. She also has the early signs of arthritis.

A recent stressful situation at my job triggered "the big D". I had it nearly every day. Even after the stress was gone I was having cramps and D and gas after eating. I go scared since it wouldn't go away, so I went to the doctor, thinking I might have IBS. > She told me to try going gluten free. She didn't think I had Celiac (and I don't either) but did recommend me to try gluten free. She also gave me some anti-diarrhea medication.

Well, I was reluctant to try this out to be honest. And at first I didn't think I needed to, as I was OK after just one dose of the medication she gave me. I was OK for maybe 2 weeks, but then got sick again... Then my boyfriend mentioned low carb lifestyle, and I just decided to go ahead and do them both. Lower carbs and no gluten.

It is amazing how fast the "big D" went away! I also was no longer waking up anxious. About 2 weeks in, my Mom made some spaghetti, my favorite! I thought, well I can eat a little and be fine!... Yeah right! I was ill again the next morning, and the morning after woke up anxious again. >> This was my wake-up point. I am 99% sure this is what is wrong with me! I actually was happy to know it. Happy to find all the information and know that maybe this will help me more than with just digestion. It would be wonderful to be rid of at least some of my anxieties!

So, I have a follow-up appointment with my doctor on the 24th. I'm hoping I can talk her into getting me the genetic test. I also want my parents to get tested. I really think they could have it to.

I hope I didn't write too much. I just wanted to share what I have discovered so far!

I'll be here a lot I am sure!

~Christina

PS - I told my Mom I can't have regular pasta anymore, but she is willing to try the rice pasta and keep it just for me. <3

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:

Without testing, there is no way your doctor could determine whether you are celiac or gluten intolerant. It is a pity she didn't test you for celiac before suggesting you try the gluten free diet. Depending on how long you have not been eating gluten, it is probably too late to get a definitive answer.

I am certainly glad that eating gluten free has had such a dramatic effect on your symptoms. Yes, anxiety is a symptom that many celiacs suffer from and it does generally resolve when they go gluten free, although not necessarily immediately. One of the interesting aspects of eating gluten free for those who are gluten sensitive is that many symptoms that have been accepted as "normal" suddenly resolve, as if by magic. So that those who didn't think they had symptoms find out that, in fact, that did - they just did not recognize them :rolleyes:

The genetic test, as you may know, does not tell you if you have celiac; it can only tell you whether or not you are predisposed to develop it. If your parents have the same predisposing genes as you, it could point to celiac. The better test for your parents would be to have the celiac testing done since you inherited the gene(s) from one or the other (or both).

Stay gluten free and stay well, and post as long and often as you like - there is always someone here who will read and try to help with any questions. Also, read as much as you can about how to keep gluten out of your life. :)

0

Share this post


Link to post
Share on other sites

Without testing, there is no way your doctor could determine whether you are celiac or gluten intolerant. It is a pity she didn't test you for celiac before suggesting you try the gluten free diet. Depending on how long you have not been eating gluten, it is probably too late to get a definitive answer.

...

The genetic test, as you may know, does not tell you if you have celiac; it can only tell you whether or not you are predisposed to develop it. If your parents have the same predisposing genes as you, it could point to celiac. The better test for your parents would be to have the celiac testing done since you inherited the gene(s) from one or the other (or both).

Stay gluten free and stay well, and post as long and often as you like - there is always someone here who will read and try to help with any questions. Also, read as much as you can about how to keep gluten out of your life. :)

Oh, it is a shame about the testing. As I will not be willing to eat gluten again willingly and make myself sick just for a test.

But maybe I can suggest my parents get tested since they are still eating 'normally'.

Thank you so much for the kind reply! I know that this isn't going to be easy and I know it will take time for my body to heal. I just have high hopes, since so much of what I read relates to me perfectly!

Today I am lethargic, but still feeling better on the inside. I'm trying to stay positive. ;)

0

Share this post


Link to post
Share on other sites

Hello.

I am new here as well.

I have had GI symptoms that come and go, and various doctors through the years have suggested food preservative allergies, lactose intolerance, and stress reaction. When I am fine...I am fine. But when my GI symptoms (diarrhea, gas, bloating, cramping, pain under the ribs, nausea) my life is a living hell.

However, as many of you may well know, there is an attitude with doctors that unless they can diagnosis "it", "it" does not exist.

Since doctors have not been able to help me, I have done my own research and I suspect a malabsorption problem, and I wonder if Celiac Disease is the ultimate cause.

I am going to a naturopathic doctor in a couple of weeks (at this point I have nothing left to loose going to alternative medicine). My question is this: have any of you had moments of a few months of feeling well, then, BOOM, 2 -4 weeks of GI distress that makes you just want to stay home near your bathroom?

Thank you.

0

Share this post


Link to post
Share on other sites

Welcome to the site Wysterya and LMB,

@LMB, yes that is something happened to me at time, being better and then worse.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Dessert thread

Easy yummy bread in minutes

How bad is cheating?

Short temper thread

Non celiac wheat sensitivity article

http://www.nature.com/ajg/journal/vaop/ncurrent/full/ajg2012236a.html

0

Share this post


Link to post
Share on other sites
Ads by Google:


Thank you for the tips and all the links!

Unfortunately it is too late for me to get the test. I am going gluten-free already. The Doctor just suggested it and didn't mention a test. :/ But, I will be seeing her again on the 24th and I will see what she says. Though, I am not willing to become ill again just for a test. :P

I'm definitely cooking more! Plan to dig out the old crock pot and use it! If I can make enough for leftovers it will help. I got used to just cooking for myself, so leftovers were not common here. I'll get there though. I am just thankful it doesn't seem to be anything I can't handle. Not easy, no. But I am trying to not allow it to get me down and just focus on healing and feeling better!

0

Share this post


Link to post
Share on other sites

That's fine to not get tested. If you can stick to the diet without a formal diagnosis there is no need for the test. It's not like the tests get us any better treatment. I hope you feel better soon. :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,094
    • Total Posts
      928,876
  • Member Statistics

    • Total Members
      63,484
    • Most Online
      3,093

    Newest Member
    Lakme
    Joined
  • Popular Now

  • Topics

  • Posts

    • https://www.starbucks.com/menu/food/hot-breakfast/gluten-free-breakfast-sandwich "It's all prepared in a certified gluten-free environment and sealed for your safety. We then warm and serve it in its own oven-safe parchment bag to avoid any cross-contamination."
    • Hi all. Thanks in advance to anyone who reads this long post. I'm a 23 yo female.  I have had quite the year in terms of health issues. here's a recap, which actually starts senior year in high school: may 2012 - had horrible bouts of constipation that came out of no where. something I had never experienced before. tested positive tTg IgA = 38.3 where >20 was positive. I also had Gliadin antibodies and EMA tested which were both negative. Important to note: I did not see these test results until this past November! my pediatrician never told me or my mom, I just discovered them in my online portal.   october 2015 - still dealing with random periods of horrible constipation. they seemed to correlate with stress. always seemed to have terrible canker sores. History of real bad migraines. Had another tTG IGA test which was now negative.  March 2016 - had barium follow through xray to see why I am always constipated and irregular. nothing abnormal with this test.  April 2016 - got seriously injured from running. shin splints that made it impossible for me to even walk to class. was prescribed ridiculous amounts of ibruprofen and naproxen (800mg twice a day) probably the cause of my gastritis June-August 2016 - shin splits are not healing. doctors run slew of tests to see if I have a malabsorption issue or blood clotting issues, I had positive anti ccp antibodies (this is a rheumatoid arthritis blood marker) and iron deficiency (though not anemic). Another celiac panel was ran and DGP was negative and tTg was BARELY positive: 4 where >=4 was weak positive and >10 strong positive. This time I had an endoscopy which found intestinal metaplasia of the stomach, gastritis and duodenitis. no villi blunting so I was told no celiac.  September 2016- was prescribed prilosec for the metaplasia. I thought screw it, I'll try eating gluten free for 8 weeks. I felt GREAT. first time in forever that my stools were normal and regular and my stomach was emptying it self in a normal timely manner. Not sure if this was from the diet or the prilosec. october 2016: had a little ER trip after a night of drinking due to brown colored urine - had high billirubin in urine, was not told what this meant, I'm assuming alcohol poisoning  November 2016 - Weaned off prilosec. found those strong positive tTG IGA blood lab from high school, freaked out, and demanded I be re tested. Did gluten challenge for 12 weeks until February 2017 and re tested, tTG IGA was negative, B12 was borderline very low, still have iron deficiency and low vitamin D. EMA was never tested.  summary of symptoms I've had: constipation, stomach takes forever to digest, canker sores, iron deficiency, borderline low B12, low vitamin D, gastritis, migraines, anxiety, tingling numbness and bone pain in lower legs--> possibly due to shin splint injury not healing properly. keratosis pilarsis(chicken skin) on my upper arms which I've had for as long as I can remember. Moodiness --> I can be a real grouch when my insides are bothering me.  Currently: I feel like crap. My shins aren't healed after a whole year.  I've been prescribed pepcid because my primary suspects the metaplasia/inflammation/ulcers are not healed. I often have pain on my right side abdomen below the rib cage, is something wrong with my liver? am I a hypochondriac at this point? Lately I've been having very fatty oily stools that stick to the toilet bowl. I know this is a sign of malabsorption, heck I lost 3 pounds in 10 days this month, obviously not on purpose! I'm 110 pounds, I'm going to evaporate! My primary told me this week to try  the pepcid along with gluten free and dairy free diet, I am to report back in a month. I'm seeing a rheumatologist next week to sort out the positive anti ccp test, I'm not sure if I should ask to get celiac retested( i know i have to eat gluten for this) and ensure the EMA and DGP are done. I've only had one completely complete panel (in high school) and since then 2 negative ttg iga's and 1 barely positive. What the heck? I just want one day where I'm not worried about how much my stomach is going to hurt. I'm only 23, this has been consuming my life for the past 5 years.   
    • For me rice became a problem for a couple years.  Grapes were a problem also.  Neither of them are a big problem now.
    • Just heard from someone who got one.  Hers was heated in the original bag.  I guess not all Starbucks have well trained employees.  Sigh.  We must always be vigilant
    • The thing I saw said they are supposed to be able to heat them in the little package they come in.  Then just hand you the packaged sandwich.
  • Upcoming Events