• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New Here!
0

8 posts in this topic

Hello everyone!

I am 32 years old, and just recently discovered I likely am gluten sensitive. Luckily, my doctor suggested that I might be and to try a gluten free diet. So, at least she should be on board when I tell her what I found out about my reaction.

Some background on myself: I've had migraines for years. I am very easily startled. When I was a child I was in the hospital for respiratory infections. I have anxiety and am easily depressed. My Father has had polyps and his mother died of colon cancer. I swear my Mom has some sort of mental issue, she can get *very* angry in a second. She also has the early signs of arthritis.

A recent stressful situation at my job triggered "the big D". I had it nearly every day. Even after the stress was gone I was having cramps and D and gas after eating. I go scared since it wouldn't go away, so I went to the doctor, thinking I might have IBS. > She told me to try going gluten free. She didn't think I had Celiac (and I don't either) but did recommend me to try gluten free. She also gave me some anti-diarrhea medication.

Well, I was reluctant to try this out to be honest. And at first I didn't think I needed to, as I was OK after just one dose of the medication she gave me. I was OK for maybe 2 weeks, but then got sick again... Then my boyfriend mentioned low carb lifestyle, and I just decided to go ahead and do them both. Lower carbs and no gluten.

It is amazing how fast the "big D" went away! I also was no longer waking up anxious. About 2 weeks in, my Mom made some spaghetti, my favorite! I thought, well I can eat a little and be fine!... Yeah right! I was ill again the next morning, and the morning after woke up anxious again. >> This was my wake-up point. I am 99% sure this is what is wrong with me! I actually was happy to know it. Happy to find all the information and know that maybe this will help me more than with just digestion. It would be wonderful to be rid of at least some of my anxieties!

So, I have a follow-up appointment with my doctor on the 24th. I'm hoping I can talk her into getting me the genetic test. I also want my parents to get tested. I really think they could have it to.

I hope I didn't write too much. I just wanted to share what I have discovered so far!

I'll be here a lot I am sure!

~Christina

PS - I told my Mom I can't have regular pasta anymore, but she is willing to try the rice pasta and keep it just for me. <3

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Without testing, there is no way your doctor could determine whether you are celiac or gluten intolerant. It is a pity she didn't test you for celiac before suggesting you try the gluten free diet. Depending on how long you have not been eating gluten, it is probably too late to get a definitive answer.

I am certainly glad that eating gluten free has had such a dramatic effect on your symptoms. Yes, anxiety is a symptom that many celiacs suffer from and it does generally resolve when they go gluten free, although not necessarily immediately. One of the interesting aspects of eating gluten free for those who are gluten sensitive is that many symptoms that have been accepted as "normal" suddenly resolve, as if by magic. So that those who didn't think they had symptoms find out that, in fact, that did - they just did not recognize them :rolleyes:

The genetic test, as you may know, does not tell you if you have celiac; it can only tell you whether or not you are predisposed to develop it. If your parents have the same predisposing genes as you, it could point to celiac. The better test for your parents would be to have the celiac testing done since you inherited the gene(s) from one or the other (or both).

Stay gluten free and stay well, and post as long and often as you like - there is always someone here who will read and try to help with any questions. Also, read as much as you can about how to keep gluten out of your life. :)

0

Share this post


Link to post
Share on other sites

Without testing, there is no way your doctor could determine whether you are celiac or gluten intolerant. It is a pity she didn't test you for celiac before suggesting you try the gluten free diet. Depending on how long you have not been eating gluten, it is probably too late to get a definitive answer.

...

The genetic test, as you may know, does not tell you if you have celiac; it can only tell you whether or not you are predisposed to develop it. If your parents have the same predisposing genes as you, it could point to celiac. The better test for your parents would be to have the celiac testing done since you inherited the gene(s) from one or the other (or both).

Stay gluten free and stay well, and post as long and often as you like - there is always someone here who will read and try to help with any questions. Also, read as much as you can about how to keep gluten out of your life. :)

Oh, it is a shame about the testing. As I will not be willing to eat gluten again willingly and make myself sick just for a test.

But maybe I can suggest my parents get tested since they are still eating 'normally'.

Thank you so much for the kind reply! I know that this isn't going to be easy and I know it will take time for my body to heal. I just have high hopes, since so much of what I read relates to me perfectly!

Today I am lethargic, but still feeling better on the inside. I'm trying to stay positive. ;)

0

Share this post


Link to post
Share on other sites

Hello.

I am new here as well.

I have had GI symptoms that come and go, and various doctors through the years have suggested food preservative allergies, lactose intolerance, and stress reaction. When I am fine...I am fine. But when my GI symptoms (diarrhea, gas, bloating, cramping, pain under the ribs, nausea) my life is a living hell.

However, as many of you may well know, there is an attitude with doctors that unless they can diagnosis "it", "it" does not exist.

Since doctors have not been able to help me, I have done my own research and I suspect a malabsorption problem, and I wonder if Celiac Disease is the ultimate cause.

I am going to a naturopathic doctor in a couple of weeks (at this point I have nothing left to loose going to alternative medicine). My question is this: have any of you had moments of a few months of feeling well, then, BOOM, 2 -4 weeks of GI distress that makes you just want to stay home near your bathroom?

Thank you.

0

Share this post


Link to post
Share on other sites

Welcome to the site Wysterya and LMB,

@LMB, yes that is something happened to me at time, being better and then worse.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Dessert thread

Easy yummy bread in minutes

How bad is cheating?

Short temper thread

Non celiac wheat sensitivity article

http://www.nature.com/ajg/journal/vaop/ncurrent/full/ajg2012236a.html

0

Share this post


Link to post
Share on other sites
Ads by Google:


Thank you for the tips and all the links!

Unfortunately it is too late for me to get the test. I am going gluten-free already. The Doctor just suggested it and didn't mention a test. :/ But, I will be seeing her again on the 24th and I will see what she says. Though, I am not willing to become ill again just for a test. :P

I'm definitely cooking more! Plan to dig out the old crock pot and use it! If I can make enough for leftovers it will help. I got used to just cooking for myself, so leftovers were not common here. I'll get there though. I am just thankful it doesn't seem to be anything I can't handle. Not easy, no. But I am trying to not allow it to get me down and just focus on healing and feeling better!

0

Share this post


Link to post
Share on other sites

That's fine to not get tested. If you can stick to the diet without a formal diagnosis there is no need for the test. It's not like the tests get us any better treatment. I hope you feel better soon. :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,400
    • Total Posts
      930,339
  • Member Statistics

    • Total Members
      63,822
    • Most Online
      3,093

    Newest Member
    Tara@yardgarden.ca
    Joined
  • Popular Now

  • Topics

  • Posts

    • MelissaNZ,  Has your daughter been checked for vitamin deficiencies??? Vitamin D deficiency symptoms include urinary incontinence, oral candidiasis (thrush), skin rashes, bumps on the backs of arms, joint pain, distended stomach and short stature.  Bones can't grow much without vitamin D.  Vitamin D deficiency causes delayed gastric emptying (food doesn't move through the gastrointestinal tract at a normal speed and the intestines bloat) which explains your daughter's delayed reaction to the cake.   Vitamin A deficiency is also a cause of bumps on the back of the arms. Vitamin A deficiency causes vision problems. Vitamin A and D are both fat soluble vitamins.  Absorption of fats is a problem for Celiacs.  So is absorption of B vitamins and important minerals. B Complex vitamins are water soluble and must be replenished every day. Skin rashes are associated with several B vitamins like niacin (B3), B12, and thiamine (B1).   I went through a period of severe malnutrition prior to diagnosis.  It was not a pleasant experience.  I had symptoms similar to your daughter's, including the incontinence, which resolved on vitamin D supplementation.   Please, please have your daughter tested for vitamin D deficiency.  And have her B vitamins checked as well.  Celiac Disease causes malabsorption.  Malabsorption causes deficiency diseases.  Newly diagnosed Celiacs need to be checked for deficiencies.   I hope this helps.  
    • I will try to make my long story short, I have been searching my whole life for a diagnosis,  I have seen pretty much every doctor possible I even went through a spinal tap recently because they thought I had multiple sclerosis,  when I was younger I was always throwing up and having stomach problems, a couple hospital visits they thought I had appendicitis, I started having a neurological symptoms as well as  anxiety and depression,  The fatigue was just over bearing,  I was having numbness and tingling and muscle spasms all the time eventually started having seizures,  which kind of cycled through and stop happening after a couple months,  and then it dawned upon me my brother has celiac pretty severely, my grandmother also has celiac, my dad does as well, I don't know why I never thought that it could be my issue, for the last week I have   Been gluten-free and steering clear of cross-contamination,  my dizziness is improved my fatigue is improved as well as rashes I was getting on my arms  and sides,  I have no more muscle jerks or spasms, The problem is I have horrible insurance and I cannot afford testing, so I am at least trying to do it an home blood test,  I know it's not very accurate on telling me if I have celiac or not,   But the thought I may never know for sure if I have it is very daunting.  My family keeps telling me you don't need  to spend thousands of dollars to have a doctor tell you you can't eat something you already know you can't. Just was wondering if anybody else has been in my position and seeing if anybody has a vi just was wondering if anybody else has been in my position and seeing if anybody has advice,  I don't want to be known as one of those people who believe they have something and people with the disease frown upon them it's a very scary thing to think about. 
    • ...ON a side note this is quite easy, you can make your own out of any gluten-free Bread mix, I recently started using a coconut flour blend for this.......Most often people associate caraway with Rye Bread so you just add caraway seeds to the dough and a bit more vinegar to sour it a tad and BAM gluten-free Rye Bread knock off. I think Authentic Foods even has a additive to put in bread mixes to make it taste like Rye Bread....Or you can buy it preamade, I have issues with all the other ingredients but as for one of the best gluten-free Breads out the Canyon House makes a Rye like bread https://canyonglutenfree.com/buy-gluten-free-bread-products/Gluten-Free-Rye-Deli-Sandwich-Bread.html  
    • Took me less than a minute, although why did they need our addy and phone?
    • As mentioned before you said she had rashes, have they checked if that is DH? That is a positive sign of celiac and those with the DH manifestation can have problems getting a postive with the gut biopsy.   Here are some links. https://celiac.org/celiac-disease/understanding-celiac-disease-2/dermatitis-herpetiformis/ https://www.gluten.org/resources/getting-started/dermatitus-herpetiformis/ Please read up on this. She can get the rash tested for the disease if it is DH.
  • Upcoming Events