• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Thyroid Tests Should I Ask For?
0

3 posts in this topic

My gastro doc was unwilling to diagnose me as Celiac. My blood work was negative (he only did the transglutamnase IgA AB) and my biopsy was "indeterminate." He said the villi was only slightly blunted. I've since found out he only did a couple of biopsies. He told me to go gluten free for 4 months, come back to see him, and if I felt better he'd say I have Celiac.

I've been gluten free for about 3.5 months. I really can't say I feel better. The first couple of weeks I felt better and then it went down hill from there. I've given up dairy. I'm avoiding soy, but it seems to creep in. I'm afraid to have to give up corn, just because of how much stuff it's in. I'm still on PPI's which probably aren't helping anything either. I've started to slowly taper them to avoid the acid rebound problems.

Anyway, I'm not complaining about my digestive issues. I actually want to know what thyroid tests I should ask for. I'm seeing my family doctor for my yearly physical on Wed. I'm thinking I should get my thyroid checked. Gastro doc did a TSH test, which was in range. So if someone could let me know which tests to ask for that would be great. Thanks.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I would try to get an EMA test out of him (or someone else) since that one is pretty definitive. And if your intestines are "only slightly blunted", what does he think caused that? The evil intestine fairy?? Sheesh! I hate it when doctors dismiss a diagnosis but don't look into other causes. That tells me they are either lazy, or pretty sure it's celiac but think a gluten-free diet is "too hard" to follow.

Anyway, I found out I had Hashimoto's just over a month after my celiac diagnosis. I found celiac helped with my GI issues in terms of the pain after eating and bloating. It also helped reduce the frequency of my migraines and I had a bit of new hair growth. On the other hand, it has done nothing to help my fatigue, skin, or aches and pains which I attribute to Hashi's or something else (I'm being checked for Lupus). My C only changed when I started synthroid; much better now.

So, you're right. Hashi's and celiac have quite similar symptoms, and hypothyroidism could definitely be the cause.

Thyroid tests:



  • TSH (thyroid stimulating hormone) - if it's high, or even high normal, it means your pituitary gland has to send out extra stimulants to get an underactive Thyroid working
  • T4 - main thyroid hormone, if it's low or normal (with a high TSH) you could be hypo
  • TPOAb (Thyroid Peroxidase Antibody) - If it's high, your body is attcking the thyroid and indicates Hashi's
  • T3 - active thyroid hormone, if low, could indicate a problem converting T4 to usable T3

Good luck. I hope you feel well soon.

0

Share this post


Link to post
Share on other sites

I would try to get an EMA test out of him (or someone else) since that one is pretty definitive. And if your intestines are "only slightly blunted", what does he think caused that? The evil intestine fairy?? Sheesh! I hate it when doctors dismiss a diagnosis but don't look into other causes. That tells me they are either lazy, or pretty sure it's celiac but think a gluten-free diet is "too hard" to follow.

Anyway, I found out I had Hashimoto's just over a month after my celiac diagnosis. I found celiac helped with my GI issues in terms of the pain after eating and bloating. It also helped reduce the frequency of my migraines and I had a bit of new hair growth. On the other hand, it has done nothing to help my fatigue, skin, or aches and pains which I attribute to Hashi's or something else (I'm being checked for Lupus). My C only changed when I started synthroid; much better now.

So, you're right. Hashi's and celiac have quite similar symptoms, and hypothyroidism could definitely be the cause.

Thyroid tests:



  • TSH (thyroid stimulating hormone) - if it's high, or even high normal, it means your pituitary gland has to send out extra stimulants to get an underactive Thyroid working
  • T4 - main thyroid hormone, if it's low or normal (with a high TSH) you could be hypo
  • TPOAb (Thyroid Peroxidase Antibody) - If it's high, your body is attcking the thyroid and indicates Hashi's
  • T3 - active thyroid hormone, if low, could indicate a problem converting T4 to usable T3

Good luck. I hope you feel well soon.

Hi nvsmom,

Thanks for getting back to me.

My gastro doc seems only interested in doing a colonoscopy. I had one done 8 years ago and nothing was found, but he keeps insisting. It's frustrating. Given my family history you'd think he'd be a little more receptive to the idea of Celiac. In his defense he's the one who ordered the antibody test and biopsy in the first place. I went to him because I was having really bad heart burn and trouble swallowing. As for the family history, my grandmother had a section of her digestive tract removed (can't remember where exactly) in her seventies. My mother had a terrible time with D and also had her gallbladder out. My aunt once told me she had to sit on the toilet to eat ice cream. Gross I know, but relevant. In fact, my daughter is the first female in my family to not issues with dairy. Then, of course, there was my ITP.

I've been wondering lately if my issues are with a casein intolerance. That will blunt the villi too. I did tell the gastro doc that when I was young I had issues with dairy (couldn't have a milk based formula) but in my teens I started drinking milk and eating cheese and was fine. Now dairy seems to be a real problem again.

I've been thinking I need to purposely gluten myself to make sure it's Celiac and not a casein intolerance. Except that I'm a little afraid to do that. I have to see the grastro doc on the 27th and I'm not sure what to tell him. I'm not feeling better yet, so I just don't know. I might just let him do his stupid colonoscopy.

I will ask the family doc for the T3, T4, and TPOAb. I think she'd be willing to do that.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,792
    • Total Posts
      932,466
  • Member Statistics

    • Total Members
      64,273
    • Most Online
      3,093

    Newest Member
    midwayliz
    Joined
  • Popular Now

  • Topics

  • Posts

    • Your issues is probably with the carbs then. there is a alternative. best pricing is miracle noodle. For Konjac rice substitute. Konjac flour works with some people others it does not. https://miraclenoodle.com/collections/miracle-noodle-rice-products There is a trick to cooking it but they make no carb noodles, and rice. I use the rice to make all kinds of rice like dishes like my mothers mexican fried rice etc. It does have a tad off texture and flavor but comes close. If your looking for no carb breads Julians Bakery makes some pretty decent breads but you HAVE to toast them to use them. I just found them a month ago....First time eating a bread in 2 year, and first time in as long as I can recall eating one that did not make me feel bloated and fat. No carbs, no sugars, no yeast, no dairy, no soy, and very low sodium...... Been eating french toast, vegan cheesy bread, bread with almond butter and sugar free jam I have honestly been in food heaven since I found it. BTW some celiacs can not tolerate any grains very rare but it happens.    OH and on what I have is really bad Ulcerative Colitis, so I have a bunch of other trigger foods that cause inflammation, bleeding, distention, constipation, gas, bloating etc. Carbs/sugars is a huge one for me fructose, glucose, sucrose.
    • They rotate growing rice and oats in the same crop. I unfortunately am intolerant to oats.  I have Dysbiosis according to a stool test, which is why I am quite sensitive to gluten among other foods.  May I ask what AI you have that makes you sensitive to carbs? I have been in and out of the doctor since November 2016 with chronic pain.  Trying to figure out what is going on with my gut, it's terrifying. I tried Dynasty jasmine rice from Thailand the other day which was recommended in 2009 by someone on here and a few hours later had the worst low blood sugar attack I'd ever had in my life. I am severely underweight due to the pain and I think this happened because I ate a bit too much (I LOVE rice) upon my first introduction back into my diet.  Even so I reacted just as I do when I ingest gluten (intense anxiety/hard to breathe/fast heart beat/constipation/intense pain under my ribs) So I don't think Dynasty is a safe brand, not for me at least. I only react this way to gluten. My other food sensitivities, the symptoms pop up around 24 hours later and are completely different. 
    • Thanks so much for the information. I tried Dynasty jasmine rice which was a recommendation from a sensitive individual on here. The post I believe was from 2009 so there's plenty of time for practices to have changed. I only ask this here again for updated information as I tried the Dynasty brand and got sick. I do not have Celiac disease (according to an Endoscopy) however, I have been gluten-free for 2 years and only ate a cookie or a donut maybe a few times a month for a year and a half before I was tested. I actually like going without gluten as I get less low blood sugar attacks and rarely ever get migraines. Not to mention, before I had the Endoscopy I was fasting for 2 days with no food or drink while I received other tests while I was in the hospital. I also got a colonoscopy at the same time so I had to clear my system out completely. My doctor believes I have a non-Celiac gluten sensitivity due to my symptoms after ingesting gluten. I was diagnosed with Dysbiosis so it could be my body lacks the correct bacteria to break down gluten. I have several other food intolerances including dairy and oats which many facilities process along with rice. 
    • Hi   I'm in the UK so brand recommendations probably no help to you, although we have Uncle Ben's over here which is fine to my knowledge. I have to say I approach rice on the assumption that it should be safe unless I hear otherwise, that may not be the best approach if as you say you're particularly sensitive and want to cover all the bases. The exception to this is the precooked rice you can find over here in pouches designed for the microwave. That can be a problem.  If you have a brand you normally use or that's readily available you could try googling it to see if anyone has reported issues and of course contacting them directly to check with them. This forum is also worth searching in that way as over the years there's been many accounts from users of their experiences with different brands and products so you could try searching a brand name with them.
  • Upcoming Events