• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Neurotransmitter Testing Results
0

6 posts in this topic

Recommended Posts

ShannonA    2

My Naturopath completed a neurotransmitter test on me and I just got the results in. Of the 14 neurotransmitters tested only 4 are functioning properly. The ones that are not are serotonin, 5-HIAA, tryptamine, GABA, PEA, tyramine, dopamine, DOPAC, norepinephrine ,epinephrine. He stated that this is very bad and he does not know how I am even functioning. Really. I said only by the grace of God. He also said now that we know I am gluten sensitive, I believe celiac too even though test was negative, that it most likely did attack me neurologically, hence all of my neuro issues. I also have tingling in my face and sometimes numbness on my lip. I questioned that and he said yes from nonfunctioning transmitters. Still daily head pain but not the on fire brain feeling unless I eat anything except soups and 3 fruits. Also he said there is no way I could sleep through the night with these results, I haven't been able to sleep without meds in 1 1/2 years, So the answer is to get on some supplements and I would see results within a month but start having more energy in 1 week. Here's the problem.....I can't tolerate the supplements. I get flu like symptoms along with a migraine. I have been on a soup & veggie diet for 6 weeks and 3 fruits only being able to tolerate just that. He said that is most likely due to the transmitters being all out of whack. I really didn't want to have to go to a medical doctor, but should I bring these results and is there meds that can increase all of these transmitters? Side effects are horrible but I finally have answers now I want to be fixed! I had no idea all the damage that could come from gluten, it's scary. I'm just so confused as to what to do.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Takala    413

1. Eat gluten free.

2. Go to the health food store vitamin section, or even a drugstore or grocery, and read carefully the ingredients on a basic B complex vitamin supplement. You are looking for the words "gluten free." Same for a calcium/D/magnesium supplement. "gluten free."

3. Take the supplements after you have eaten something that agrees with you. Not on an empty stomach. If any supplement bothers you, don't take it anymore. A migraine means this is the wrong supplement for you.

4. Have patience, it takes the neurological damage some time to resolve, but, if you eat clean and supplement carefully, you will heal up. Don't overdo it and start taking a dozen different things all at once.

5. Sleeping. Best way to sleep is to tire yourself out with late afternoon exercise, then eat a decent meal with some fat in it, and don't do caffeine late in the day.

5b. Sleeping. Say, did anyone test your thyroid function ?

6. Search your day's routine for cross contamination sources, such as cosmetic lotions loaded with wheat, or pet foods and licking animals. Or other people's kisses when they haven't brushed their teeth yet. Some of us neuro people are very sensitive, and have to go to more ridiculous lengths to avoid gluten than a regular gluten- avoider. Sometimes, for example, I have to clean my steering wheel off because my husband ate a burger with a bun and he was driving my car as I ate my packed lunch. This is why I keep a spritz bottle of water, and a roll of paper towels in the back, it's not just for the mirrors. I try to keep exposure to a minimum, because I believe it has a cumulative effect over the day.

Share this post


Link to post
Share on other sites
ShannonA    2

I have tried so many vitamins and have reacted to all except liquid geritol. There is always corn, soy, or lactose or something else in them that I react to. I haven't found any that do not have those somewheres in the ingredients. The last one I bought was Country Life vitamin B comlpex and had achy flu like symptoms/migraine for the 4 days that I took them. It's really crazy when I think about it. I did find a magnesium that I could tolerate and I drink a protein shake with lots of vitamins by Natures Sunshine. I've been on that 6 months. Should the neuro transmitters levels increase being gluten free? I am SO praying for a miracle :)

Share this post


Link to post
Share on other sites
GottaSki    459

Your body can not produce neurotransmitters without amino acids that you acquire from your food. Celiac Disease disrupts this process because your digestive system is not properly breaking down nor absorbing food.

As your digestive system heals from removing gluten you should begin to absorb nutrients better which will allow your body to breakdown food into the amino acids needed to produce neurotransmitters.

You mention eating soup and fruit. Do you have a sufficient amount of protein in your diet. It is difficult to get all the essential amino acids without meat - especially if you are having trouble with grains and legumes.

Were the supplements you were trying to take amino acids? I take amino acid supplements to help produce nor-epinephrine - the lack of nor-epinephrine is one part of the fibromyalgia pain puzzle. I've had good luck with "Source Naturals" brand as far as being Gluten, Dairy and Soy free -- if you can't tolerate the supplements you were given, perhaps you can find out which amino acids were in them and purchase a different brand that you'd be able to tolerate. There are also supplements that have a combo of the essential amino acids - I don't take those anymore, but I think I used "Country Life" - any brand that doesn't contain your intolerances should be fine.

Good Luck :)

Share this post


Link to post
Share on other sites
ShannonA    2

Your body can not produce neurotransmitters without amino acids that you acquire from your food. Celiac Disease disrupts this process because your digestive system is not properly breaking down nor absorbing food.

As your digestive system heals from removing gluten you should begin to absorb nutrients better which will allow your body to breakdown food into the amino acids needed to produce neurotransmitters.

You mention eating soup and fruit. Do you have a sufficient amount of protein in your diet. It is difficult to get all the essential amino acids without meat - especially if you are having trouble with grains and legumes.

Were the supplements you were trying to take amino acids? I take amino acid supplements to help produce nor-epinephrine - the lack of nor-epinephrine is one part of the fibromyalgia pain puzzle. I've had good luck with "Source Naturals" brand as far as being Gluten, Dairy and Soy free -- if you can't tolerate the supplements you were given,

perhaps you can find out which amino acids were in them and purchase a different brand that you'd be able to tolerate. There are also supplements that have a combo of the essential amino acids - I don't take those anymore, but I think I used "Country Life" - any brand that doesn't contain your intolerances should be fine.

Good Luck :)

Yes I eat chicken with every serving or fish depending on what kind of soup I made. Plus the protein shake, I know that's what has gotten my mornings to be the best part of the day. So glad to know all this info, thank you so much! I'll compare the supplements he gave me to see what amino acids I need. Thanks!

Share this post


Link to post
Share on other sites
Ads by Google:


GottaSki    459

Yes I eat chicken with every serving or fish depending on what kind of soup I made. Plus the protein shake, I know that's what has gotten my mornings to be the best part of the day. So glad to know all this info, thank you so much! I'll compare the supplements he gave me to see what amino acids I need. Thanks!

Great! Sounds like you should begin improving - unfortunately it can take time - hang in there :)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,921
    • Total Posts
      938,703
  • Member Statistics

    • Total Members
      65,850
    • Most Online
      3,093

    Newest Member
    rachellelnd@gmail.com
    Joined
  • Popular Now

  • Topics

  • Posts

    • Ah yes... dry beans. I am fortunate to live near a plant that only processes beans, pulses and rice (Western Rice Mills if you're on the west coast). I doubt that they test, but I would suspect that the biggest part of the risk with that type of food is in the plant where they pack them, as things like barley pearls and wheat berries are often sold as dried goods and would probably be done on the same lines. I would agree that dry beans could be problematic depending on source. 
    • No, Armour has always been gluten free.  The formulation changed a few years back and during the switch, there was a shortage.  That has long since resolved.  Forest Pharmaceuticals (manufacturer of Armour) was bought out by Activas in 2015.  They increased the price!  Now it is comparable to synthetic.   Imtried to find a good and reputable source about the history of thyroid replacement.  Here is one link -- the story is pretty accurate, but the site is trying to sell you stuff.   https://thyroidpharmacist.com/articles/the-history-of-natural-desiccated-thyroid-medications/  
    • If she is now at a public school, accommodations can be made for disabilities.  Here is a link that explains a 504 plan and an IEP, but you will have to investigate based on your state.   https://www.foodallergy.org/education-awareness/advocacy-resources/section-504-and-written-management-plans https://www.understood.org/en/school-learning/special-services/504-plan/the-difference-between-ieps-and-504-plans http://kidshealth.org/en/parents/504-plans.html https://www2.ed.gov/about/offices/list/ocr/504faq.html i am not very knowledgeable about this subject, so I encourage you to contact your school district for help.  Your doctor might be a good resource too.   You might consider homeschooling until she has been diagnosed and has received treatment.  The Department of Education can direct you to homeschooling resources.  There are lots of wonderful programs out there and you can get financial support.   I wish you all well!  
    • You make a good point about being neurotic. I'm slowly getting better. I guess time will tell. But thank you for the insight.   As far as roommates go, that's a good idea. I've definitely been thinking about that. But these guys are my best friends and the process of getting a new roommate this late in my schooling might be hard. Although, I will keep my eye out for the opportunity. 
    • Hello I understand what you are going thru. My son almost died from going 27 years without figuring out it was gluten and then corn causing all the illness. I brought him to Drs, none of them figured out gluten intolerance. Oh they told us he had everything else. Then as time went on, he found out he has issues with corn. Corn has identical genetic make-up as gluten.  Corn is sneaky and everywhere. Contact the manufactures, ask them if there is a chance of contamination or corn ingredient in their products. My son gets neurological problems when gluten/cornized. Anxiety, obsessive thoughts, can not think. He had to be taken out of school and homeschooled. He just found out the digestive enzymes he was taking contain an enzyme that is grown on barley. Enzymedic basic.  My suggestions for you are, seriously go find another place to live. You need your mind and health to continue school. If you don't and continue living where you are, school will suffer. In your spare time, find out all you can about gluten and what other foods act like gluten in the body. Like I said, corn has the same genetic make up as gluten, some people can not eat rice either. This is something that is doable, it is just becoming very aware of what goes in the mouth. Please find another place to live. You don't need to deal with those jerks, you have enough going on with school and health. There might be other people in your school that are celiac or gluten sensitive. Find them, post notes up, start a newsletter about gluten free lifestyle. I bet there are many people that would welcome that newsletter.  You don't need to do this alone!   You are the most important person in your life, you deserve to feel good and be respected! Stay away from those that don't respect you. Search out those that will.  Eating out is something that can be done, find those places that will work with you. Ask to have burgers or meat cooked on aluminum foil. Fresh veggies, fruits all gluten free. Again, research restaurants in your area willing to work with you. Even call the manager and talk to them. All the best to you!  Hang in there.   
  • Upcoming Events