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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Endoscopy On Monday
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7 posts in this topic

Hello. I have hashimoto's and also was having a lot of bloating. My endo ran some celiac labs and my tgg iga was 37 and my ttg igg was 39. Greater than 10 is positive.

I have my endoscopy on monday. What should i talk to the gastro about prior to the procedure eg. How many biopsies, etc. Thank you!!!!!"

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For best results ask for 6 or more, and from the duodenal bulb.

Also, ensure the doctor takes samples, even if damage isn't visible to the eye. Some will NOT take samples if they don't see it, which is stupid, since they are looking for microscopic villi damage.

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Thank you all!! I plan on talking with the doctor before and making sure she takes six biopsies. Leaving soon, i'm nervous!!!!

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Im not sure the number of biopsy's they should take as I am fairly new to this myself.

Just wanted to wish you good luck and keep us posted xoxo

Jody

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Well it's done!!! Was super easy, completely knocked out so didn't know what was going on. I guess my intestine looked normal but she took six biopsies. She also said where my esophagus meets my stomach was a bit abnormal so she took a biopsy to check for barrets disease.

I asked about what if my biopsy was negative but my labs positive. She said they could check another blood test, i think the genetic one and i also could try a gluten free diet to see if the ttg iga comes down.

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Karinp, my GI told me that my intestines looked totally normal after my procedure and made a follow-up three month appointment. They mailed a copy of the initial results, which showed inflammation.

Two weeks later her nurse called and said the biopsied showed Celiac, and to start a gluten-free diet. They sent a very not-helpful three-page photocopied pamphlet indicating what is and is not generally gluten-free. When I asked if I should come in for a follow-up sooner, the nurse said no, and that I couldn't anyway - the GI takes the whole summer off!

So... it may take a while, but your biopsy results should be helpful. And I'm glad you're done - it's a good feeling!

In the meantime, now that your tests are done, I'll recommend what folks here recommended to me - no reason not to go ahead and start the gluten-free diet now.

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    •  Oh good luck with your challenge and I hope you're able to feel better soon!   Yes, I am well aware of Michael Marsh and his thoughts  and they are certainly in the back of my mind.  I was on gluten for 5 months when I had the most recent antibody testing. Admittedly my TTG was the highest I've ever seen it but it's still a 7 and the reference range goes up to 20.
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    • Why?  Why bother to get tested?  A gluten challenge can be brutal and long (8 to 12 weeks for the blood test and 2 to 4 weeks for the endoscopy): http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ I just had anemia which prompted my doctor to run a celiac panel.  I waited 7 weeks for my endoscopy due to work constraints.  I ate gluten like crazy (I knew I had celiac disease in my heart).  At the end of those 7 weeks, I had all the classic gut symptoms which took over a year to resolve.  Even a glutening has triggered new  (I think) additional autoimmune issues.  I would urge you to to carefully consider the benefits of a challenge based on your current AI issues.  At least talk to a good doctor.   My hubby has been gluten-free for 16 years -- long  before my diagnosis and he does not know if he actually has celiac disease, but we know gluten makes him sick.  He chooses to never do a challenge.   As far as healing or seeing results.  It varies as we are all different.  My anemia, with supplements, resolved within three months but other issues took more than a year and I already had a good handle on the gluten free diet. Finally, reducing gluten is not an option for a celiac.  Anything over 20 parts per million can trigger a celiac disease flare-up for most celiacs. I hope this helps.  Just be sure you really research this throughly is my non-medical advice.    
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