• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
karinp

Endoscopy On Monday

Rate this topic

Recommended Posts

Hello. I have hashimoto's and also was having a lot of bloating. My endo ran some celiac labs and my tgg iga was 37 and my ttg igg was 39. Greater than 10 is positive.

I have my endoscopy on monday. What should i talk to the gastro about prior to the procedure eg. How many biopsies, etc. Thank you!!!!!"

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


For best results ask for 6 or more, and from the duodenal bulb.

Also, ensure the doctor takes samples, even if damage isn't visible to the eye. Some will NOT take samples if they don't see it, which is stupid, since they are looking for microscopic villi damage.

Share this post


Link to post
Share on other sites

Thank you all!! I plan on talking with the doctor before and making sure she takes six biopsies. Leaving soon, i'm nervous!!!!

Share this post


Link to post
Share on other sites

Im not sure the number of biopsy's they should take as I am fairly new to this myself.

Just wanted to wish you good luck and keep us posted xoxo

Jody

Share this post


Link to post
Share on other sites
Ads by Google:


Well it's done!!! Was super easy, completely knocked out so didn't know what was going on. I guess my intestine looked normal but she took six biopsies. She also said where my esophagus meets my stomach was a bit abnormal so she took a biopsy to check for barrets disease.

I asked about what if my biopsy was negative but my labs positive. She said they could check another blood test, i think the genetic one and i also could try a gluten free diet to see if the ttg iga comes down.

Share this post


Link to post
Share on other sites

Karinp, my GI told me that my intestines looked totally normal after my procedure and made a follow-up three month appointment. They mailed a copy of the initial results, which showed inflammation.

Two weeks later her nurse called and said the biopsied showed Celiac, and to start a gluten-free diet. They sent a very not-helpful three-page photocopied pamphlet indicating what is and is not generally gluten-free. When I asked if I should come in for a follow-up sooner, the nurse said no, and that I couldn't anyway - the GI takes the whole summer off!

So... it may take a while, but your biopsy results should be helpful. And I'm glad you're done - it's a good feeling!

In the meantime, now that your tests are done, I'll recommend what folks here recommended to me - no reason not to go ahead and start the gluten-free diet now.

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,420
    • Total Posts
      941,174
  • Member Statistics

    • Total Members
      66,343
    • Most Online
      3,093

    Newest Member
    Rosalieblue
    Joined
  • Popular Now

  • Topics

  • Posts

    • Umm Spicely is one of the few I trust, and they tested negative after some asshat came here claiming gluten on them last time. I wasted my money and time Nima Testing my spicely organic spices. I use them as a gluten free chef, and baker.

      I also have UC and I can tell you, anything but the smallest amounts of garlic, onions, or hot peppers will set off my UC. It HATES garlic and onions and I have to use them just slightly, spicy peppers it is picky some days it is alright with paprika in small amounts same with ancho, and tiny pinches of Cayenne other days even cumin might make it angery. It is a really picky disease, and you sort of have to stick to easy herbs on bad days for seasoning to appease the colon gods. PS Marshmallow Root, Aloe Vera inner filet juice, and Slippery Elm can be great so soothing the beast. I am doing the family turkey this year with poultry seasoning, and butter flavored coconut oil, avoiding garlic, only using a 1/4 sweet onion and a celery butt on the inside, and for flavor injecting it with liquid smoke and putting bacon over it. My keto dressing this year with my UC also has the onion omitted, just using poultry herbs and a bit of celery sauteed and pulsed ina food processor.

      I had to remove grains from my diet completely, fruits, sugars, carbs all caused my UC to flare up so they all had to go. I changed to a ketogenic diet.
    • I agree with the advice given.  You could also ask for the rest of the celiac panel since you were barely positive on the DGP IGG.  This will help determine if the slight positive was a fluke.  Make sure that you have been eating gluten for at least 8 to 12 weeks prior to the blood test.  If you had been gluten free, the tests would not be accurate (invalid).  All celiac disease testing requires you to be on a full gluten diet.   I personally tested positive on only the DGP IgA, but my result was not borderline like yours.   I am sorry that your result is not clear.  ☹️
    • We never eat at LAX.  We do bring our own food or purchase gluten-free snacks while traveling through various airports.  Often you can find fresh fruit options.  If going international, do not rely on any airline to remember to load a gluten-free meal. You may end up starving!  
    • Your celiac test results are normal.  But four weeks may not be enough time for your body to develop antibodies specific to a gluten exposure.   Celiac centers recommend 8 to 12 weeks for blood tests and only 2 to 4 for an endoscopy to obtain intestinal biopsies.  http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ Since you already have one AI issue, maybe you can go directly to an endoscopy.  This is something you need to discuss with your doctor as insurance has a say....ugh!   Even if negative for celiac disease, I would look to an autoimmune diet that may help relieve your AI flares.  I would encourage you to really rule out celiac disease first, if possible.  
    • Welcome!  While it may be true for you (your biopsies may have revealed damage while you had been gluten free), researchers recommend a gluten diet for all celiac tests.  Amounts and times may vary.    Why because experts really do not know how each individual reacts to gluten.  A person can heal in as little as two weeks or damage can last for months to years (for a variety of reasons,like refractory celiac disease or a hidden gluten sources). To insure the best diagnostic outcome, it is best to be prudent and be on a gluten diet.  😊 I am glad that you are doing well.  Nice to know that antihistamines can help reduce some symptoms of DH.  I do not have DH, but I do deal with chronic autoimmune hives.  Thank goodness for antihistamines!   Please continue to share your DH tips.  We do not have as many members who have DH and we could use your expertise.  
  • Upcoming Events