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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Tongue
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bossley    1

Has anybody had a problem with your tongue feeling burnt? Just another little blessing that happens to me once in a while. It's not coated and it looks fine. I don't eat gluten,dairy,soy, I eat whole. I just started Bentaine HCL with Pepsin, and Mastic gum. Sometimes it feels sore.

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kwylee    49

OK, at the risk of sounding nuts, I'll share the following:

I've had that, and the burned tongue feeling eventually turned into a bout of CONSTANT dry mouth feeling that drove me crazy and lasted for months. Everyone kept just insisting it must be Sjogrens but tests were negative and I didn't have any other symptoms. It's under control now and only flares up occasionally but I've definitely seen the correlation between the mouth/tongue discomfort and my stomach, specifically low stomach acid. In fact, sometimes I wonder if that's what's behind the mysterious "syndrome" of Sjogrens, which my doctor says they call anything they just don't understand and therefore can't "cure". I searched for months, and in the end I tried a natural tonic I read about on the internet and within a day or so the symptoms were 95% gone and my "off" stomach issue was totally resolved. I still do it these days but just a few times a week. I'm like you, no gluten/dairy/soy and only whole foods. This tonic fills that bill:

2 TBSP Natural Apple Cider Vinegar (with the mother - like Braggs)

1/4 tsp Baking Soda

8 oz water

raw honey to taste (optional - the ACV/BS combo is actually a bit sweet on it's own - you don't need much honey, if any)

Back then, I would drink this just before eating breakfast, lunch and dinner. I think the tonic is more to help the body achieve a healthy pH. These days I've substituted seltzer for my water in the drink and it's like enjoying a softdrink (without all the known carcinogens of canned fizzy drinks). Worth a try!

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bossley    1

OK, at the risk of sounding nuts, I'll share the following:

I've had that, and the burned tongue feeling eventually turned into a bout of CONSTANT dry mouth feeling that drove me crazy and lasted for months. Everyone kept just insisting it must be Sjogrens but tests were negative and I didn't have any other symptoms. It's under control now and only flares up occasionally but I've definitely seen the correlation between the mouth/tongue discomfort and my stomach, specifically low stomach acid. In fact, sometimes I wonder if that's what's behind the mysterious "syndrome" of Sjogrens, which my doctor says they call anything they just don't understand and therefore can't "cure". I searched for months, and in the end I tried a natural tonic I read about on the internet and within a day or so the symptoms were 95% gone and my "off" stomach issue was totally resolved. I still do it these days but just a few times a week. I'm like you, no gluten/dairy/soy and only whole foods. This tonic fills that bill:

2 TBSP Natural Apple Cider Vinegar (with the mother - like Braggs)

1/4 tsp Baking Soda

8 oz water

raw honey to taste (optional - the ACV/BS combo is actually a bit sweet on it's own - you don't need much honey, if any)

Back then, I would drink this just before eating breakfast, lunch and dinner. I think the tonic is more to help the body achieve a healthy pH. These days I've substituted seltzer for my water in the drink and it's like enjoying a softdrink (without all the known carcinogens of canned fizzy drinks). Worth a try!

I'll try anything once. Did you take the HCL also?

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