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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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reneer024

I Have A Great Accupuncturist In Berkeley Ca.

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About two and a half years ago, my sister found out she had Celiac Disease, about a year ago I was diagnosed as well-kind of- my general practioner diagnosed me over the phone. I have to go through the public health care sector for health care because of a couple pre-exisisting conditions so my doctor thought it would be easier to diagnosis me in a more casual manner, because they only do intestinal biopsies to diagnose not the blood test. Anyway, I have been suffering from neurological symptoms for the past year as well as the usual pain that comes along with the disease and I was DESPERATE for help. I am not usually one to turn to Eastern medicin, but desperate times call for desperate measures. I started a Google and Yelp search in my area - Berkeley Ca- I found an accupuncturist with a five star rating and rave reviews. I honestly thought "Yeah, right. He can't be THAT good", well he is. Accupunture pretty much saved my life. My symptoms and body toxcicity was and is still so bad that I am on an 18 month treatment plan. My irritability has decreased significantly, I can go to the bathroom easier, I sleep better, I am no longer fatigued every day, after treatments I have no pain for days. I suggest to anyone looking for help or treamment or even reliefe. GO TO ACCUPUNCTURE! It helps so much, that I can not emphasize enough to you how much it has helped me. I am still on an active treatment plan but after two months, there is already imporovement. I am paying out of pocket because of my health care situation, but most health insurance companies will pay for your visits. For anyone in my area or even in the bay area, willing to travel, the Redwood Clinic in Berkeley is absolutely amazing. Dr. Sordean has helped me so much already. I hope this helps a few of you out there, who are suffering.

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    • I feel the same.  Every so often, someone will roll their eyes.  I try not to discuss it unless I have to,  only because I don't love having the topic of conversation become me, but others seem genuinely curious.  Every so often I have a pity party over not being able to just pick up a sandwich at the deli when I'm rushed, or having to pass up all the good desserts on the cart, but mostly it's no big deal.  Maybe, like you, I know how lucky I am that I have something that can actually control and solve - without medications, chemo, surgery, etc.  
    • I can't remember, but it was a few years ago and maybe it had Maltodextrin in it, or maybe it was the 'flavorings' - which I never eat unless it's from a company like Kraft or McCormick that labels clearly.  But given that you eat it safely, maybe I'll contact the company for a clear answer.    
    • So the simple explanation is - You eat gluten.  It travels along and gets to your small intestine.  For some reason, your small intestine feels it is an invader.  but instead of making antibodies that "attack" the gluten, the small intestine cells make antibodies that attack itself.  Sort of misguided, but that's what happens.  Now these antibodies are in the small intestines .  It can take weeks to make enough of them in the small intestine for them to make it to the blood stream in big enough numbers to show up on a Celiac blood test.  So, one meal of gluten, after a long period gluten-free, probably wouldn't effect the level of antibodies in the blood.  
    • Hi - I think some of the issue here may be stemming from confusion about the word "exposed" and the two things in bold above -- while you are very strict about eating gluten, am I right that you've been accidentally eating some and for the past month have accidentally been not-gluten-free?  If so, that likely is the cause of your cognitive problems, which I'm sure must be really difficult.  It sounds like you're on the right track with trying to make sure you get this accidental gluten ingestion eliminated from your environment.  Have you checked all your meds, hand moisturizers, etc. (I don't worry about most care products, but I do care about what goes on my hands)?  Dedicated toaster, cutting board, non-stick cooking utensils and pots? Also, is your thyroid ok?  As auto-immune disorders seem to run in packs, it's not unusual to have Hashimotos Hypothyroidism and Celiac together. As far as communicating the issue to others (your original question), I think it's fair to say to those who know you well that this is a side effect of an accidental glutening, and as for others, I think you can just let it go.  Chances are they don't see your struggles as intensely as you feel them. Bringing it to their attention may even make it more of an issue.  
    • my thinking was that if I ate gluten tonight again , then the reaction would be there tomorrow not that there would be gluten for them to find exactly. So from what your saying It would make sense - i.e. if my body was going to react to gluten with antibodies then by eating gluten say tonight it would mean they would be in my system tomorrow. Now of course they could be in my system anyway from the gluten I ate a few days ago , but it would be more of a sure thing if id eaten it the day before I would have thought.
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