• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

An Aussie G'day!
0

11 posts in this topic

Hi all, I am a 23 year old female from Geraldton, Western Australia. I have had positive blood work, am awaiting my biopsy results and have had a positive reaction to my new gluten-free diet. I have been gluten-free for only two weeks!!! I am working on creating new eating habits, being very careful and not being tempted (as yet). But I am feeling healthier everyday, so I don't feel I could be tempted. Still have a lot to learn, so if anyone has any advice they would like to offer that they maybe wish they receive when starting this diet that would be great! :)

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Don't be in a hurry to eat at restaurants until you have mastered the nuances of the diet.

Don't go running out right away and buying substitute gluten free foods for everything you are used to eating. Eat a mostly whole foods diet to start, along with a good gluten free bread and some gluten free pasta. Save the scrutiny of supermarket labels for a later time :)

Buy a crockpot and put it to good use (along with a crockpot cookbook - if necessary - although you can throw a bunch of things in a crockpot and it will usually come out good if you are at all used to cooking.

Develop a thick hide and don't be offended at how people react to your diet. Don't make a big deal of it either - just a simple "no thank you" when refusing food will often work, or "I don't feel well when I eat that". It is not necessary to educate the whole world to gluten free although in some circumstances it will be appropriate. The exception to this is when you start eating in restaurants and then you must tell them you are celiac or they will think you are following the fad, trendy, gluten free way of eating and won't take enough care with your food. They must know that gluten will make you sick, that you have celiac disease and will take you seriously.

So glad you are feeling better gluten free. Keep up the good work, and welcome to the board. :)

0

Share this post


Link to post
Share on other sites

Don't be in a hurry to eat at restaurants until you have mastered the nuances of the diet.

Don't go running out right away and buying substitute gluten free foods for everything you are used to eating. Eat a mostly whole foods diet to start, along with a good gluten free bread and some gluten free pasta. Save the scrutiny of supermarket labels for a later time smile.gif

Buy a crockpot and put it to good use (along with a crockpot cookbook - if necessary - although you can throw a bunch of things in a crockpot and it will usually come out good if you are at all used to cooking.

Develop a thick hide and don't be offended at how people react to your diet. Don't make a big deal of it either - just a simple "no thank you" when refusing food will often work, or "I don't feel well when I eat that". It is not necessary to educate the whole world to gluten free although in some circumstances it will be appropriate. The exception to this is when you start eating in restaurants and then you must tell them you are celiac or they will think you are following the fad, trendy, gluten free way of eating and won't take enough care with your food. They must know that gluten will make you sick, that you have celiac disease and will take you seriously.

So glad you are feeling better gluten free. Keep up the good work, and welcome to the board. smile.gif

I was def in too much of a hurry to eat out I think..and taking too many 'risks'. I am not being careful enough and paying the price! especially experiencing bad 'brain fog' atm. But at least I am realising and know now that I have a LOT to improve on.

I think it is good advice to just say "no thanks" to food.. cos I feel like coeliac is all I talk about lately (I must sound annoying as).

I am struggling to find more wholegrains in my diet and squirm at paying $7 for a loaf of gluten-free bread or for a small box of gluten-free cereal. Why does it have to be so expensive.

Oh and I have been using my slow cooker heaps lately! Heaps easy.

Thanks for your comments and advice.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Join the WA Coeliac Society ..

New members are provided with a resource kit that includes:

•Coeliac Australia's Handbook

•Coeliac Australia's Recipe Book

•Coeliac Australia's Ingredient List for label reading

•Information on gluten free foods and eating out in WA

•A back issue of The Australian Coeliac

They also run workshops and supermarket tours ....

Yes I will need to do this. I really need the extra support!

0

Share this post


Link to post
Share on other sites

Hello from Perth! It took a bit for us to understand how important an unprocessed foods diet was for us. We were living in the States and recently moved to Australia, in part because living gluten free is proving to be much easier for us here. We really enjoy going to all the farmer markets that are available here. If you do get cravings, just go for some of the gluten free stuff made in Australia. They make some very nice gluten free foods here. I would love to hear more about gluten free in Geraldton, as we want to head up that way. We are planning a trip to Esperance soon, and we have had no trouble travelling throughout the Southwest. Of course, we primarily go to markets and make our food, but we often stumble on some really great gluten free eats here. We love Australia's awareness of gluten free!

Welcome to gluten free living!

0

Share this post


Link to post
Share on other sites




Ah yes, Aus, home of the gluten-free corn thins! I get corn thins at a local organic market near DC. They make a nice sub for rice cakes. Corn tortillas are a nice sub for bread and generally much cheaper than a gluten-free bread. You can rinse them in water and nuke them or warm them in covered skillet to soften.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

0

Share this post


Link to post
Share on other sites

Hello from Perth! It took a bit for us to understand how important an unprocessed foods diet was for us. We were living in the States and recently moved to Australia, in part because living gluten free is proving to be much easier for us here. We really enjoy going to all the farmer markets that are available here. If you do get cravings, just go for some of the gluten free stuff made in Australia. They make some very nice gluten free foods here. I would love to hear more about gluten free in Geraldton, as we want to head up that way. We are planning a trip to Esperance soon, and we have had no trouble travelling throughout the Southwest. Of course, we primarily go to markets and make our food, but we often stumble on some really great gluten free eats here. We love Australia's awareness of gluten free!

Welcome to gluten free living!

WOW that is a big move! Glad to hear you are enjoying it. I think I am lucky to be in Australia as I have been discovering great gluten free foods... sometimes I think it would be a bit easier to live in the city (as there are more options).

But Geraldton isn't too bad.. there are quite a few restaurants that cater Gluten-free that are great! And Woolworths, Coles and most IGA supermarkets here have vast gluten-free sections. There is also the farmer's markets.

Some restaurants you may want to visit in Geraldton are, (Geraldton restaurants are more expensive than Perth)

L'Italliano's - has amazing gluten pasta, they also occassionally have gluten-free pizza bases but never had them the two times I wanted it!! So yet to try. But if you called in advanced and booked I am sure they could ensure they have it.

Salt Dish - has the freshest and most flavoursome food. Only open for breakfast and lunch, Tues-Sat. Although, a bit expensive - it is probably my favourite treat! Has gluten-free items marked on the menu, and there is a few.

Tide's Restaurant - Overlooking the City (good way to see surroundings), yet to try but have heard only good things. My dietician, who is coeliac recommends it.

Also, a cute place to visit is Culinary HQ, they sell gourmet foods but you can buy pre-made meals to dine-in or takeaway but you can actually buy the sauces, toppings, and some of the ingredients to make the meals yourself. The staff can tell you what is gluten-free. And they also sell delicious macarons (naturally gluten-free).

But I am a bit of a foodie myself so I feel lucky I enjoy making (and eating) whole foods which helps. I also buy my veg from a vegie stall from a local.. tastes so much better.

Hope that helps with your Geraldton visit!! If you want help with more info about geraldton, I'd be happy to help.

0

Share this post


Link to post
Share on other sites

Ah yes, Aus, home of the gluten-free corn thins! I get corn thins at a local organic market near DC. They make a nice sub for rice cakes. Corn tortillas are a nice sub for bread and generally much cheaper than a gluten-free bread. You can rinse them in water and nuke them or warm them in covered skillet to soften.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

My biopsy results did come back positive so I have been gluten-free for about 2-3 months (not long).

Yes, I love corn thins.. I acutally have them for lunch today. They are great because they are high in fibre and can replace bread! I normally top mine with hommus, ham and tomatoes.. mmm. I am yet to find a corn tortilla that I like, do you know any good brands? I found a gluten-free wrap (a bit similar to lebanese bread), I plan to make a pizza with it!!

In the new year, I will cut out dairy and alcohol for a while I think and see if that helps as I am still experiencing some sickness :(

0

Share this post


Link to post
Share on other sites




My biopsy results did come back positive so I have been gluten-free for about 2-3 months (not long).

Yes, I love corn thins.. I acutally have them for lunch today. They are great because they are high in fibre and can replace bread! I normally top mine with hommus, ham and tomatoes.. mmm. I am yet to find a corn tortilla that I like, do you know any good brands? I found a gluten-free wrap (a bit similar to lebanese bread), I plan to make a pizza with it!!

In the new year, I will cut out dairy and alcohol for a while I think and see if that helps as I am still experiencing some sickness :(

HI Brownie

Mission brand corn tortillas are what I like. They have white corn and yellow corn varieties. I like the yellow corn versions better. The yellow are thinner and more flexible. Corn Thins with peanut butter are a great snack! Or with guacamole. I get them in Maryland in Hyattsville a the Yes Organic Market. Just in case someone local is looking for them, I know you are near the source of them though.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,378
    • Total Posts
      935,770
  • Member Statistics

    • Total Members
      65,070
    • Most Online
      3,093

    Newest Member
    Catseyez
    Joined
  • Popular Now

  • Topics

  • Posts

    • The full celiac panel includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA   You can either have a gastroenterologist order the full celiac panel plus whatever else they typically test for, or you can order your own test at a site like walkinlab.com. At walkinlab.com it's called the celiac comprehensive test and costs $298.00 (not covered by insurance). Then if any one test comes up high you can give it to your gastroenterologist so they can do an endoscopy. The blood draw is done at your nearest Labcorp. Personally I'd make an appointment at the gastro so they can order their other blood tests and just insist on the full celiac panel also. There's any number of things it could be, not just celiac. If you don't get diagnosed you probably won't stick with a 100 percent gluten free diet for the many months required to see if it works. Good luck in your search.
    • You could certainly try.  Just remember that, if the mix doesn't have xanthum gum, you may need a little.  
    • Maybe the 20 mg. was too strong for you and increasing symptoms?   I have a very low threshold for most meds, and do better on child sized doses.   If you tolerate the 10 mg., that may be the way to go just to get symptoms under control and get stabilized.  Or maybe 10 mg. every other day, if that works. I read that food intolerance symptoms can take 24 to 48 hours to show up.   Can you think of what you were eating in the week before all this started?   I have always used dairy to settle my stomach, so until I figured out the dairy intolerance I was using a small glass of warm milk whenever my stomach was upset.   It provided immediate relief, but caught up with me hours later.   It was kind of hard to believe that milk was the cause when it was so effective in immediate symptom management.    I had also increased chocolate, coffee, and peanut butter right around the same time.  They don't seem to be intolerances (or maybe they are in huge quantities!), but they were irritants, so I needed to avoid them to get things to settle down.  Now that I'm approaching the 3 month point and starting to do better, I have been able to drink coffee with soy milk to buffer, have a little chocolate, and sample some peanuts without much distress.  Perhaps the hardest part of all of this is the time it takes (why forever?!), and how limited one's diet must be for so long in order to stabilize.  I was so sick of eating the same thing for so many weeks, that I started dreading the next meal.  I agree that symptoms and recovery become a blur.  I started making notes on a calendar so I could be more objective and accurate in looking back to assess my symptoms, what I'd tried, and progress.  Otherwise, I just couldn't tell what really did and didn't work.   What seemed like a week ago was really 2 or 3 ... I know you know what I mean! Do follow up with your doctor as need be.  I find that GI docs aren't that helpful for this sort of thing as it's minor in the general scheme of GI things.  My PCP basically told me it was trial and error, as it's different for each one of us.  He could only guide me in meds.   
    • I am sorry that you are all having to go through this. I know all too well the neuro issues she is going through. The world seems so hopeless under that gluten cloud. But it does lift.  There isn't much a neurologist is going to be able to do except to encourage her to be as strict as possible.  It would be a good idea to have your GP or GI do a vitamin and mineral panel if that hasn't already been done. We do sometimes need supplementation while healing as some nutrients do have an impact on the nervous system function. What I find helps me the most is knowing that it is the gluten and it will pass. It is a horrible feeling when it is happening and is hard on ones loved ones.  All you really can do to help her is to remind her that it is the gluten that is making her feel so bad. Try to provide distractions and understanding. If you haven't already do read the Newbie 101 thread at the top of the Coping section it has a lot of good info for you.  These episodes will come less often as accidental glutenings become less frequent. Ask any questions you need and feel free to vent on the tough days.
    • Reviving this thread as I am in search of better care for my child, diagnosed this spring with off the charts antibodies. She experiences significant mood effects from gluten and all I get from her GI and ped are blank looks - they aren't familiar with the idea that it can affect one's mental or emotional equilibrium or brain. (I would bet that if we scanned her brain, there would definitely be some evidence of damage.)  Obvs we have her 100% gluten-free and are very cautious, but given that even the slightest glutening sends her into despair and suicidal ideation, I am looking for a doctor that *does* understand the connection and can give us better guidance so I can feel more confident that she'll stay safe until her gut heals. Any recommendations (in SF bay area, or anywhere really) would be welcomed! 
  • Upcoming Events