• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Brain Issues
0

17 posts in this topic

Hello Peeps,

One of my most noticeable symptoms during my time with undiagnosed celiac was memory loss. It was mostly an issue with remembering faces. I am happy to say that being gluten free has restored my memory, and removed the social anxiety that comes with not remembering people you've know for years. I'm wondering what is the root cause of the neuro issues with celiac...Is it the auto-immune response attacking the brain or is it malnutrition from malabsorption that leads to the brain issues. Anyone know?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:

At the conferences I've attended, it's been pointed out that the blood flow to the frontal lobes is reduced in celiacs who eat gluten. Also, plaques can form throughout the brain. Take a look in the articles section of this site, because there are some interesting articles on neurological damage to the brain.

0

Share this post


Link to post
Share on other sites

I have been thinking about this a lot lately. I have spent many years working with people with special needs and am continually finding links with gluten sensitivity and/or celiac disease. For example many people with Down Syndrome have Celiac Disease. I also read recently that women with Celiac Disease are more likely to have children with Autism.

I just finished reading a book, "Pretending to be Normal", about a woman who has Asperger's Syndrome but did not find out until she was an adult. It got me thinking about "weird quirks" I've had throughout my life. When I was a kid I hated wearing socks because "the seams hurt my feet" and to this day I literally can not stand the sound of people rubbing their feet on the carpet. These could be linked to Sensory Perception Disorder. My mother told me that when I was young I would throw the worst tantrums for hours over what seemed like absolutely nothing and that she could not get me to stop. It makes me wonder what link is here that we are missing, and if we could figure it out we might really be onto something. Also, a little off subject but what about scoliosis? Could this be due to celiac disease and malnourishment?

I know that is a whole lot of slightly disconnected thoughts, but it's just really been on my mind lately.

0

Share this post


Link to post
Share on other sites

I think that it is auto immune and not malabsorption since the symptoms come on quickly upon accidental ingestion of gluten.

1

Share this post


Link to post
Share on other sites

For me gluten ( and soy) has caused "brain" issues. My neurologist stopped short of diagnosing ataxia mainly because she could not believe my issues were caused by soy ( I had only been gluten free for about 8 months at the time) :rolleyes: .

All I know is when I am glutened or ingest soy I have memory/ataxia/ brain issues .

0

Share this post


Link to post
Share on other sites
Ads by Google:


I think that it is auto immune and not malabsorption since the symptoms come on quickly upon accidental ingestion of gluten.

That is the case for me also. I also have what are called UBO's, or Unidentified Bright Objects which are lesions that are diagnostic of the autoimmune attack on the brain.

0

Share this post


Link to post
Share on other sites

I've been wondering about this too. My son has pretty bad motor delays and I've always been very clumsy, in addition to forgetful and flaky before my diagnosis. I know in young children fat is essential to the developing brain. So I do think the malabsorption of fats could play into it. I think the brain needs fats on an ongoing basis, so it might just shut some wings off, the way you would close rooms in a big house if you only had so much wood to burn.

0

Share this post


Link to post
Share on other sites

My son has ADHD and scored "lower" on long term memory 92 even though his full scale IQ is 118. The doctor believes that his celiac was triggered two to three years ago which was exactly when we noticed a huge drop in reading scores and reading comprehension. Math no problems at all. All other scores at or above grade level. Reading/ memory in the second to early third grade range. He is in the fourth grade. So I definitely think celiac plays a huge role in all of this( oh and I must say that the testing was done 2 weeks prior to his official celiac diagnosis.

0

Share this post


Link to post
Share on other sites

Hi

A bit late coming to this, I know, but with gluten I used to have balance issues. Only a little but enough to be a nuisance and make me self conscious - comparable to getting up after a large glass of wine! Also slightly clumsy, knocking myself on things. I also do one morning a week requiring mental arithmatic and with gluten the numbers are in a thick soup in my brain. Happy to say without gluten my balance is fine and my brain agile.

I have taken this as a warning of what could happen in the future without being gluten free - gluten directly affects my brain!

0

Share this post


Link to post
Share on other sites

There are many articles about neurological impairment, gluten ataxia and celiac.

I think it may be both ---autoimmunity and the complications of long term UnDXed celiac disease and malabsorption.

Many vitamin, mineral and amino acid deficiencies can cause memory issues..

I had so many of them myself for 3 horrible years and suffered what I call "gluten head" (and they come back if glutened accidentally)

One says:

"patients who develop neurological dysfunction should be carefully screened for these. However, malabsorption does not satisfactorily explain the pathophysiology and clinical course of many of the associated neurological disorders. Other mechanisms proposed include altered autoimmunity, heredity, and gluten toxicity"

That citation is found here:

http://www.ncbi.nlm.nih.gov/pubmed/12151653

Here are some other articles:

http://www.livingwithout.com/issues/4_12/ataxia-2366-1.html

http://www.livingwithout.com/issues/1_11/untreated_gluten_sensitivity-1800-1.html

and

https://sites.google.com/site/jccglutenfree/theneurologicalmanifestationsofgluten

0

Share this post


Link to post
Share on other sites

I have been thinking when my body picks up gluten, or something else it doesn't like, it just shuts off getting nutrients.

Diana

0

Share this post


Link to post
Share on other sites

"Gluten Head" - that's what it is !!! New medical term, I think :P .

0

Share this post


Link to post
Share on other sites

"Gluten Head" - that's what it is !!! New medical term, I think :P .

Copyrighted by IrishHeart 2011

first used in a conversation with EatMeat4Good.

(she'll vouch for me) :D

I call what I lived in Gluten Head Hell

(will probably be the title of my book.)

Cracked up my GI doc with that one. He asked if he "could use it". I said "Go for it dude"

but give me props when you do.

.

(not really funny back then "during it" --not funny at all)

0

Share this post


Link to post
Share on other sites

The Op hasn't been back since "he" posted this. Wonder if the "gluten head" caused him to forget his password? :)

This happened to me. I made a Facebook page and promptly forgot the password. Then realized I had entered the email wrong, too!

0

Share this post


Link to post
Share on other sites

Another aspect of Gluten Head - when glutened on waking in morning I have to go through the days of the week to work out what day it is! Had no idea this was caused by gluten until gluten free!

0

Share this post


Link to post
Share on other sites

I'd have conversations with my colleague, turn to my computer to start working on whatever we'd discussed (literally seconds late), and then have to ask her what we were talking about. Happily, 2 + years gluten free and I am now *much* better at remembering.

Hi

A bit late coming to this, I know, but with gluten I used to have balance issues. Only a little but enough to be a nuisance and make me self conscious - comparable to getting up after a large glass of wine! Also slightly clumsy, knocking myself on things. I also do one morning a week requiring mental arithmatic and with gluten the numbers are in a thick soup in my brain. Happy to say without gluten my balance is fine and my brain agile.

I have taken this as a warning of what could happen in the future without being gluten free - gluten directly affects my brain!

Me too. I used to crash into everything, I couldn't handle walking in crowds because I had so much trouble not walking into people who were walking towards me. It was really scary reading about gluten ataxia and how bad some people had it and it was what made me so dedicated to going strictly gluten free even without a diagnosis. It took about 6 months to resolve. Scary how it can affect the brain.

0

Share this post


Link to post
Share on other sites

My motor issues have improved a lot in just a few weeks. The other day I was wearing shorts and I asked my husband if he noticed anything different. He looked down and immediately said, "There aren't any bruises on your legs"!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,118
    • Total Posts
      929,032
  • Member Statistics

    • Total Members
      63,530
    • Most Online
      3,093

    Newest Member
    Henry
    Joined
  • Popular Now

  • Topics

  • Posts

    • I think it depends on how severe the damage was. I know from reading other accounts that it can take months to "heal". My two year old had immediate improvement (like two weeks), but we were very lucky to have our pediatrition catch the celiac quickly (within two months of noticible symptoms). It sounds like you are doing an awesome job keeping him safe. The only things I can think of off the top of my head are play doh and shampoo. Those were two things we were warned about by our nutritionist based on age. Play doh is made with wheat and shampoo poses an issue because they don't always keep their mouths closed. Maybe check lotions, soaps, toothpastes, lip balm? It's crazy where gluten is hidden in things like art supplies too. Our guy is now three but still puts hands/toys in his mouth frequently enough to cause worry, so we carry baby wipes in the car and use constantly. Hand sanitizer (in my opinion based on similar peanut protein studies) doesn't kill the gluten protein. If he attends daycare or preschool I'd check there for sensory tables full of oats, play doh, art supplies, etc. If you feel comfortable that there's not cross contamination, I'd say he just needs more time to keep healing. We had our little man's celiac panel ran again after three months and then another six months gluten free. His ttg levels drastically improved each time. Good luck!! I hope he feels better soon; it's misery watching your kiddo feel sick!
    • My 4 year old son was diagnosed with celiac nearly 2 months ago (confirmed by endoscopy). He has been off gluten for at least 7 weeks. We have made our entire house/kitchen gluten free, I pack his lunch, snacks, etc. I don't know how we could be any more careful. He's also off lactose.  The severe pain and sleepless night have definitely improved but he still has daily abdominal pain, with fairly bad pain a few times per week. Is this typical? I feel terrible for him and am hoping he just needs more time to heal? Curious how long it took for your children to feel better?!  
    • I am trying to figure out what is happening to me as well. Here are my symptoms: As long as I can remember I have had stomachaches. Severe constipation (no bowel movements for anywhere from 2-3 weeks).  Then Sept. 2015 I had to have my gallbladder removed and that is when the real symptoms began: -Anxiety increased significantly -My bowel movements became more regular but varying to 3 to 4 times a day  to once every few days. Frequent stomach pain and nausea -head to toe hives, usually my back starts itching first -Dental health fell apart -feet swell significantly when I eat wheat (usually only eat wheat) -Regardless of change in diet and increased exercise I continued to gain weight. Really the only time I can lose weight is when I basically eat once a day.  -Fatigue I had my doctor check my thyroid and for celiacs.  I just got my test results back and all blood work looks normal except low hdl She tested my IgG and IgA, they look normal (these are the only tests that were given so far unless other tests have not come back yet)  Is there more I need to ask her to do? I have gone back and forth with eating gluten and did cut it back prior to the testing but it was not obsolete (I ate it for the last few days prior to taking the test). I notice a huge difference in the pain when I go gluten free, any advice for someone just trying to figure out what is making me miserable?  
    • I believe it is ~$20-25 CAD for the standard jar (600g) at Whole Foods here, so more expensive. This is however, a bargain compared to most other protein powders I see (upwards of $50 for similar amounts!). Packaged food, animal products and alcohol in Canada are stupid expensive, especially if you're off the "main line" (ie. Great Lakes/St Lawrence corridor) as I am. I'm probably a little less affected by this as I never did purchase much packaged food even pre-diagnosis... and now I buy almost none. Luckily in-season veggies are super cheap in most of Canada except the far north, where veggies don't really grow haha.
    • So I'm still learning. We buy harvest land ground turkey because I like their company, but today in the ingredients I saw vinegar. It doesn't say on the package if it's gluten free. So I went ahead and bought a different brand that doesn't list vinegar as an ingredient, just rosemary extract.  I know that not all vinegar is "bad" for us. Has anyone contacted their company to know if their vinegar is derived from grains? Their turkey has never bothered me, but I was a silent celiac before I was diagnosed so I'm afraid that I'll never know for sure if I'm getting gluten. That's a whole other topic....haha thanks!
  • Upcoming Events