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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Celiac/gluten After Pregnancy?

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I have been questioning gluten intolerance or celiac disease for a little while now and while putting pieces of my puzzle together one big thing that sticks out is I had a few neurological symptoms a few months after having my daughter via c-section...I also had HORRIBLE pain for MONTHS (like 6months)...saw my OB numerous times and she was stumped because everything looked great and she sent me for a sono to see if I had anything going on inside but results came back fine. Fast forward to my third pregnancy and my hair and eye lashesh began falling out (I wrote a big intro/symptoms on the pre-testing board) and they have check my thyroid amongst other systems numerous times...

I have hair loss, eyelash loss, brittle toe nails, mouth sores, dizziness (like vertigo), brain fog, bloating, shaky feeling inside, weight loss/lack of weight gain, poorer vision, and occasional tachycardia with no known source.

I have seen specialist after specialst...I have had enough blood work to save someone's life, I have had a brain MRI, EKGs, EEGs, CT Scans and they only abnormalities found were that I am Vit D deficient and Iron deficient...I added my blood work to my symptoms as began questioning gluten intolerance or celiac disease...

Anyway...my question is: has anyone had their syptoms show up as a result of pregnancy more specifically a c-section?

I was wondering if the trauma to my intestines could have not necessarily caused this issue but brought it to light??

Side note: baby #2 was c-section baby #3 was vbac

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Both pregnancy and surgery alone can trigger celiac.

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Although I have likely had celiac since I was about 8 or 9, I was not diagnosed until 2010. I began to have severe symptoms when I was about 3 to 4 months postpartum with my 2nd in 2008 (bloating, sharp abdominal pains, insomnia, joint pains, etc.) I became pregnant with my 3rd shortly after this and I went into "remission" I think...although looking back, during my 3rd pregnancy I craved gluten free rice chex. It was when I was postpartum with my 3rd that things got really bad...abdominal symptoms and joint pains returned but then I began to develop ulcers in my mouth and throat, bruise all over, lost a bunch of hair, began to run a daily fever, arthritis....all of my symptoms went away once I was gluten free. I am now postpartum with my 4th, my first baby since being gluten free, and I feel better than ever. Being gluten-free has also had a huge difference in my milk production. I hope that everything works out for you.

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    • It's good to know it was of use, thanks for letting me know   All the best, Matt
    • Hi Matt,   Thank you very much for a thorough response. Your link seems to cover pretty much all the questions one might have in my current situation. I appreciate it.   Have a wonderful day, Lex
    • I am worried about the cost but I think having that test done would help me rule things out. Either way I need to see a G.I my issues are getting out of control.
    • Thank you for all the information. I am sorry for the late reply to everyone. I have been feeling worse and worse lately. Got the blood test results, it came back negative. Seeing a G.I specialist in three months (too long for me :/) I've been keeping a food diary and realize I feel worse after eating gluten. After the G.I I want to start the diet. I'm going to call him and see if I can get seen sooner. The bloodwork said theres no signs of inflammation and they don't suspect it to be autoimmune but they want me to do the diet anyway. I wish I had answers because my vision is getting worse, cramping, nerve pain and trips to the bathroom are amplifying. Meh. Also I have a vitamin d deficiency so I am taking d3 2000iu with vitamin b12. Thanks for the help! 
    • I'm sorry you are dealing with this. My son deals with food intolerances that are not identified by any biomarker as well. I hear the same response from doctors in that, "if the food makes him feel bad then it's probably best to avoid the food." (Thanks for your insight doc!) His symptoms are not dermatological though. His symptoms are mostly neurological and psychiatric with some bloating and mild digestive issues. He loses his mind quite literally if he digests gluten. Also develops what is known as a stereotypy, involuntary movement of hands. He is otherwise a normal child. We are unable to obtain any kind of diagnosis though.  I know you're avoiding a lot of foods right now, but don't get discouraged. It's just a way of life and you're doing the right thing. Right now we are avoiding foods such as soy, all types of grain, chocolate, dairy and nightshades. I have limited his iodine intake as well. I have personally found that gluten, iodine and soy cause intensely itchy blisters and joint pain for me. Perhaps have you tried cutting back on iodine intake?
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