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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Why I Still Eat Bread...
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81 posts in this topic

This gluten-free bakery makes things out of rice or corn flour, so I'm able to elimiate either wheat or gluten as the trigger, going to find out today...

frieze: it was some one I never met at a grocery store.

Thanks everyone. :)

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Really it is not bread that makes you not hungry....vegetables, fruits, legumes, beans, nuts, seeds - those foods make you full. Just elminate bread and start eating more of the food that I listed - I guarantee you will be fuller longer and be healthier.

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Really it is not bread that makes you not hungry....vegetables, fruits, legumes, beans, nuts, seeds - those foods make you full. Just elminate bread and start eating more of the food that I listed - I guarantee you will be fuller longer and be healthier.

Actually, eating a lot of those foods does make my stomach feel full (very fast) but I still feel starving, hungry, and tired. It's like feeling hungry but no room to put anything in my stomach.

Btw, just got a bunch of rice breads and cake, I already ate one rice bread and so far so good...

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Actually, eating a lot of those foods does make my stomach feel full (very fast) but I still feel starving, hungry, and tired. It's like feeling hungry but no room to put anything in my stomach.

Btw, just got a bunch of rice breads and cake, I already ate one rice bread and so far so good...

I'm starting to think the fullness/starving issue is more of a psycological one (no offense intended here). You'd be surpised on what stress and whatnot can do to you.

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Actually, eating a lot of those foods does make my stomach feel full (very fast) but I still feel starving, hungry, and tired. It's like feeling hungry but no room to put anything in my stomach.

Btw, just got a bunch of rice breads and cake, I already ate one rice bread and so far so good...

Could this constant feeling of being hungry/tired be psycological? No offense meant, but what you are describing sounds more mental than physical.

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That feeling of constant hunger is not all that unusual for us. It can be caused by the body not being able to absorb the nutrients it needs from the food we are eating.

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While I agree it could be a stress type thing, I wouldn't rule out physical too.

I know when I eat too much carbs, for me especially bread and sugar, I get a horrible full but hungry feeling.

I think I am better now I eat more whole foods, but I did realize I had gotten into the habit of eating after a meal.

It has taken a while, but now if I know I have eaten good food, I try and distract myself (load dishwasher, sort washing, call friend etc) and tell myself I could have something half an hour later.

If I ate junk, I was often still feeling hungry. Real foods, usually fine and forgot about it.

There is loads going on for you now I really hope you start to get some ideas how to move forward and some medical help.

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Just wanted to say....when you have a problem with gluten, it can cause very REAL psychological issues. Many of us here find that it causes anxiety and depression, some even suffer hallucinations from it. Eating disorders are also common on the board and a lot of people have found relief from the constant binge/purge/starve cycle when they went gluten free. Gluten causes serious neurological issues, don't let anyone try to convince you that it couldn't possibly be your problem!

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Hi Sandra,

The being hungry feeling could be related to blood sugar issues also. If t is, then eating bread / carbs is not good for you. You could ask your doctor to test you for blood sugar reactions. Or you could get a glucose meter for about $30 at a drug store. They make some pretty cheap ones now. The way to test is to test before eating, an hour after eating, and 2 hours after eating. you can also get an A1C test to check your average blood glucose for several months back.

It is sometimes hard for people to accept that gluten can cause them a problem, and that they need to change their eating habits. Parents don't want their children to be sick and sometimes won't admit even to themselves that they may have an illness. You need to do what is best for you and if that means eating gluten free then so be it.

Going gluten free may help stabilize your blood sugar. If you have blood sugar problems then you should eat some protein with every meal and avoid sugar and carbs. It would be a good idea to get some testing done first to see where you are at.

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If anything, my stomach has a psychological problem. :/

Because I'm feeling one thing and its feeling another, plus it still does not explain why only wheat flour hurts.

UPDATE:

So I got rice bread, I got a couple that are gluten-free and a few with 20-25% gluten.

I have so far tried BOTH rice breads/cakes, both with and without gluten and so far NO PAIN!!

So far it looks like gluten may not be the cause (but the baker said she used very little gluten in the ones that were suppose to contain gluten).

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Has it occurred to you that you could have an allergy/intolerance to something else in the bread? I can not have dairy among other things. Even a small amount of dairy makes me very ill. Most bread does contain milk or butter. I also can not have rye. And my daughter can't have flax. Bread contains a lot of ingredients!

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what about yeast?

How do I test for yeast?

I do know that the "fluffier" that bread, the more it hurts. Also, semolina/pasta (things made from durum wheat) really hurt.

So if gluten, rice flour, and whole wheat cereals do not hurt, how do I rule out the above?

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I had to stop eating several things before I finally realized I had to quit gluten. First was corn, as in tortillas, chips, etc. Next was pasta - just too much concentrated wheat. Then I started wondering about the wheat along with the corn in Mexican restaurants. But pizza was still my comfort food, so it couldn't be gluten, right??? I think it was just that I used to eat pizza with 'everything" on it, all that pepperoni, olives, mushrooms, sausage, not to mention the cheese and tomato, that helped the gluten to slide through. This is why we suggest you pare things down to single ingredients to test. What else do you eat with your cereal? Milk? fruit? Have you tried just eating dry cereal? And waiting to see what happens? Same with cake and cookies - so many more ingredients than just gluten.

This may or may not be true for you. Just throwing it out there. :)

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Pasta is pure water and wheat flour. O.O sometimes there are eggs but not always.

I agree with shroom, try to pair it down some. Say have a single bowl of cereal as a snack food (i do this with rice chex :)) and wait for about two hours before you try something else that day. Then test something again three days later (say this time cookies).

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Thanks, I will try that, but where do I get raw gluten or yeast?

I also have more "data" (list of foods I tried and reactions), I posted it here:

Elimination Diet So Far, Is It Gluten Or Wheat?

Does it look like it's gluten? Some of it is contradictory, all the lab reports seem to show I am NOT being injured/damaged or "dying"?

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Thanks, I will try that, but where do I get raw gluten or yeast?

I also have more "data" (list of foods I tried and reactions), I posted it here:

Elimination Diet So Far, Is It Gluten Or Wheat?

Does it look like it's gluten? Some of it is contradictory, all the lab reports seem to show I am NOT being injured/damaged or "dying"?

Have you tried to find an allergist who deals with food intolerances as well as true allergies? Mine saved my life since I show up false negative on celiac blood work. The allergist will start you out with 5 or 6 foods in pure form and then have you add in one food a week, in pure form, to see if you react. Although it is boring and time consuming it can help pinpoint reactions.

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Have you tried to find an allergist who deals with food intolerances as well as true allergies? Mine saved my life since I show up false negative on celiac blood work. The allergist will start you out with 5 or 6 foods in pure form and then have you add in one food a week, in pure form, to see if you react. Although it is boring and time consuming it can help pinpoint reactions.

Well, I do have an allergist, but he gave me a skin test and bloodwork, which came back negative. But he says that if I eat bread it would kill me, "don't eat bread". <-- his diagnosis.

I'm just kind of thinking about trying pure gluten on my own to rule that out but not sure how to do that.

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I used to feel that way about meat. I could eat all the fruits and veggies my stomach would hold, but unless I had meat, I still felt hungry, even though my stomach was full. After I went gluten-free I thought, "Hmm, it wasn't the lack of meat that gave me that hungry feeling, it must've been the bread!" Because even when I had a big dinner with meat and sweet potato and broccoli, I still felt hungry.

So yeah, I know what you mean. You can be full to bursting and yet still feel hungry.

But after I had been gluten-free for a while that feeling stopped. It was gluten withdrawal. Now I WILL admit that I eat more often now. Instead of three meals a day I eat six SMALL meals a day. I'll eat some yogurt (or ice cream) at 7AM, then at 10AM I'll have some gluten-free bread. Then at noon I eat a small portion of chicken with a small potato and a little broccoli. Around two or three I have some more yogurt. Then at five I do another small meat and potato meal. When I get home around 7:30 I will have a snack - some gluten-free crackers or some nuts, and usually some more ice cream. The secret is to keep the meals small and keep something in my stomach all day.

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Well, I do have an allergist, but he gave me a skin test and bloodwork, which came back negative. But he says that if I eat bread it would kill me, "don't eat bread". <-- his diagnosis.

I'm just kind of thinking about trying pure gluten on my own to rule that out but not sure how to do that.

Go back to the doctor and ask him to clarify that statement for you. When my allergist prescribed elimination diet proved a severe reaction to wheat (I used Cream of Wheat to challenge) his response to whether I should keep eating it was "Heavens NO!" He then sent me to a GI to confirm celiac. That doctor demanded a challenge and it did almost kill me.

If a doctor has told you that eating bread might kill you I have to wonder why you want to keep challenging items in that food group.

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I have asked him about that, he didn't elaborate much other than to say that I do not have an allergy to wheat or gluten (or anything), but to stay away from wheat or gluten as he thinks it would "kill" me.

But when I ask him what is the cause and what do I do, he said there was nothing more he could do as an allergist.

I have been to about 20 doctors, most of them GI specialists, none of them have any idea on what is wrong with me.

I'm worried that the endoscopy and pillcam that were done happened to be done while I was gluten free for more than a month and any damage could not be seen (also the biopsies were negative).

I just need to find what is wrong because simply gluten being the trigger is not enough, to me it's like shining a light and seeing smoke, so the cure is to turn off the light and ignore the smoke...

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You can buy vital wheat gluten at a health food or grocery store. You can buy yeast at any grocery store (of course, the strains will differ by manufacturer).

I do not suggest you test either without sitting your butt in front of an ER when you do it, though. And write "allergic to wheat gluten and ate it" in sharpie on your forehead.

I'm not joking.

Ditto on yeast.

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I just need to find what is wrong because simply gluten being the trigger is not enough, to me it's like shining a light and seeing smoke, so the cure is to turn off the light and ignore the smoke...

No - your analogy is incorrect. If gluten is the "trigger" by removing it there will not be smoke to begin with.

If you have Celiac Disease and are not making enough antibodies for current blood tests or you have NCGI, you will not improve until you remove all gluten.

You have every right to desire answers - unfortunately you may never get them. There are NO MEDICAL tests for Non-Celiac Gluten Intolerance. You may never know why your symptoms became severe in December. Continuing to eat wheat and gluten is causing you pain and other symptoms. It is possible that if you continue these symptoms will worsen and you may develop others.

A doctor has told you to remove gluten. We are telling you the only way to find out if gluten is your problem is to remove all of it. You are the only one with the power to solve this problem.

If you believe your Celiac blood work and endoscopy were not accurate because you were gluten-free or gluten-lite, find a GI that specializes in Celiac Disease and go from there.

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Ever since last Christmas when I suddenly developed an acute reaction to breads (severe abdominal pain and then passing out an hour after eating bread), everyone, my doctors, and myself have been wondering why I don't just eliminate breads from my diet and be happy.

You might try something radically different than what you are doing. The carbs in bread do things to your body that are kind of like a "drug high". They make you feel really good for a little while, then they leave you worse than you were before.

In order to break the cycle you are in, you might want to completely give up starch for a while. I don't know what your family's eating habits are, and this could be difficult if you are dependent on your parents to buy foods, but I'd sure fight to try it if I were in your shoes.

Primal eating has helped a LOT of people heal from a lot of diet-related conditions. Start reading at Mark's Daily Apple, he explains SO SIMPLY how to get started!

Basically you just eat good meats, fresh fruits and vegetables, nuts, and some healthy fats. Click here for his "Primal Blueprint 101". It's not too hard to figure out the diet, just need to do a little reading first.

The gluten-free bread substitutes can be really calorie heavy, and still have a bad effect on your insulin levels. Doing without might be helpful.

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I won't do anything rash right now, but I do need to be 100% certain that gluten is the cause.

My mom feels that this is all psychological, and since last month (August) I've been going to several therapists, so far nothing has helped (other than bringing up a lot of bad childhood memories).

One GI recommended Elavil, it's an old SSRI I think, and makes my stomach feel totally numb between meals (which is good) but does nothing to help when I eat breads/pastas.

Yes actually I am on the "primal" diet right now. :)

I'm a dancer btw, so we have to stay lean, and I only eat fish/seafoods, birds, and some mammals (steak), the meats do not hurt at all. So I know that is okay. I also eat lots of fruits, dairy, and porridges and that's basically about it.

I used to eat a lot of breads/pastas, but obviously... not now.

LASTLY, what I am scared of is if gluten is NOT the cause but rather something that highlights it. This problem is so strange and my mom and my drs are now thinking I'm making this all up, but I swear it is real and the pain is real but no one will believe me. :( *frustrated*

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