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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Excruciating Pain - I Need Serious Help
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6 posts in this topic

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Invictus    0

I have been gluten free for about 10 months now. I am still experiencing pain; a deep - hot knife twisting-like pain - in my lower upper left quadrant - a few inches above and to the left of my navel. This is usually subsequent to a primary pain - that comes and goes - in the upper right quadrant localized to where the gallbladder would be. It feels as though it's inflamed and I am sure it's borderline non-functioning - as this has been going on for years...

This condition has literally cost me everything I own; I have been living out of my car for nearly 3 months. I am educated and strict when it comes to my diet- unless CC sneaks in. Can someone please tell me if this is similar to what they experienced? Any experienced celiacs that can help, I would greatly appreciate it!

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kareng    1,992

No. That doesn't sound normal. What do the doctors say? Have they checked your gallbladder? Liver, etc?

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frieze    114

I have been gluten free for about 10 months now. I am still experiencing pain; a deep - hot knife twisting-like pain - in my lower upper left quadrant - a few inches above and to the left of my navel. This is usually subsequent to a primary pain - that comes and goes - in the upper right quadrant localized to where the gallbladder would be. It feels as though it's inflamed and I am sure it's borderline non-functioning - as this has been going on for years...

This condition has literally cost me everything I own; I have been living out of my car for nearly 3 months. I am educated and strict when it comes to my diet- unless CC sneaks in. Can someone please tell me if this is similar to what they experienced? Any experienced celiacs that can help, I would greatly appreciate it!

perhaps the splenic flexure of the large intestine? You need some imaging i think....good luck

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MitziG    94

Nope, not normal. You need to get to a GI and have them find what else besides celiacs is going on.

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shadowicewolf    166

I say its gallbalddder going that needs to be taken out. Mine would hit hard in the right area where it sits, so bad that i couldn't hardly breath when it did it. Turns out it was functioning at 5%.

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Invictus    0

Shadowicewolf -

I'm I incorrect, assuming you had your gallbladder removed? If you have had it removed, are you still getting intestinal - or abdomen pain any where in abdomen - post surgery?

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