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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten-Free, Dairy-Free, Soy-Free Protein Supplement?
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Does anyone have suggestions for a gluten-free, dairy-free, soy-free protein supplement? I would prefer a powder to add to smoothies (unflavored).

I've tried Jarrow rice and Plant fusion, but the former gets gooey and the latter has too much sugar/sugar replacement.

I've tried some small packets of the RAW protein powders, but a lot of them have wheat and barley grass in them, and they also have more sugars and sugar replacements than I'd like.

So... any suggestions?

Also, did anyone have a hard time with recovery at first? I used to do crazy interval training (a la Insanity) and might be sore the next day, but I could survive. Now if I do a short interval session it takes me days to recover. I'm about four months into gluten-free after a Celiac diagnosis. I was too tired before my diagnosis to work out much, so I know that's part of it.

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Does anyone have suggestions for a gluten-free, dairy-free, soy-free protein supplement? I would prefer a powder to add to smoothies (unflavored).

I've tried Jarrow rice and Plant fusion, but the former gets gooey and the latter has too much sugar/sugar replacement.

I've tried some small packets of the RAW protein powders, but a lot of them have wheat and barley grass in them, and they also have more sugars and sugar replacements than I'd like.

So... any suggestions?

Also, did anyone have a hard time with recovery at first? I used to do crazy interval training (a la Insanity) and might be sore the next day, but I could survive. Now if I do a short interval session it takes me days to recover. I'm about four months into gluten-free after a Celiac diagnosis. I was too tired before my diagnosis to work out much, so I know that's part of it.

I'm about 6 weeks in, and have no energy for even a walk in the evenings - I used to be hardcore into bootcamp and working out everyday...now I can hardly get my laundry done. Granted, I've been this way for longer than the 6 weeks since cutting out gluten - it's been this way all year. I completely feel your pain, so does my body! I wish I knew where all my energy and metabolism went.

Hope you find a good supplement, I have yet to find one either.

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Trader Joe's makes an Organic Hemp Protein Powder - Ingredients: Organic Hemp Protein Powder, Organic Palm Sugar, Organic Vanilla Flavor. I have used it for a couple of years - high in fiber and Omega 3's. :)

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Trader Joe's makes an Organic Hemp Protein Powder - Ingredients: Organic Hemp Protein Powder, Organic Palm Sugar, Organic Vanilla Flavor. I have used it for a couple of years - high in fiber and Omega 3's. :)

Oh, that's really good to know. We're supposed to get a Trader Joe's soon! The hemp protein powder that one of our local health food stores has has something in it I don't want - I don't remember what, though.

I'm excited about TJ's, but I hope they don't take too much business away from our local ones. I've read varying reviews about how gluten-free friendly they are.

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I'm about 6 weeks in, and have no energy for even a walk in the evenings - I used to be hardcore into bootcamp and working out everyday...now I can hardly get my laundry done. Granted, I've been this way for longer than the 6 weeks since cutting out gluten - it's been this way all year. I completely feel your pain, so does my body! I wish I knew where all my energy and metabolism went.

Hope you find a good supplement, I have yet to find one either.

I do feel a little better now than I did several months ago, but I still pretty much just want to sleep. I need to cut back on the caffeine, I think (most days I just have a strong cup of black British tea first thing), and just let myself sleep a little later. I'm probably only getting an average of 7 hours a night, so I definitely need to work on that.

I'll try mushroom's suggestion of the Trader Joe's hemp protein once our store opens. In the meantime, I went back to Plant Fusion. It has some extra good things in it, like digestive enzymes, but it also has fructose and stevia (in the unflavored one!), neither of which I need in a smoothie. There are some raw ones that I'm tempted to try, but a lot of them have things like barley grass juice in them. I know the debate about whether things like that and wheat grass are safe is a pretty big one - and, as I understand it, the issue is whether the grass may contain seeds (the grass itself, I think, should be ok) that would allow gluten to get through the juicing process. What's frustrating is that they're labelled wheat and gluten free, so only careful reading of that complicated ingredient list identified that (I spend a lot of time in the supplements aisle when I shop!).

I've been able to get some short runs in on the weekends, and I'm going to start trying to do yoga most days, even if just for 15 minutes. I know it helps me mentally, and physically I do feel better even if I just do a little bit. Of course, I really want to be at the climbing gym and doing Insanity again, but just thinking about that makes me want to take a nap!!!

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Look at the Vega brand. They are all dairy, gulten, and soy free. Most are no added sugar.

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thanks, user853 - i tried some of their small packets, but unfortunately maybe some of the flavors i picked were bad, but the sweetness was overwhelming. maybe if i didn't mix them with fruit, but they must have an awful lot of stevia! one drink i couldn't even drink it was so sweet - i tried to freeze it, and eat like a frozen treat, but still too sweet. i'll look for some unflavored versions, maybe online (none available locally)!

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I've used plain rice protein powder, hemp protein, pumpkin seed protein (my favorite), and veggie blend, and pea protein. They've all been fine in smoothies.

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    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
    • Sorry for the very late reply and thanks for the replies, I didn't get a notification of any. In case anyone else comes across this and has been wondering the same as I was, I did try a vegetable broth and I did react to it in the same way as if I'd eaten the vegetables.  As for the candida, I've been using coconut oil and am seeing a medical herbalist for this and leaky gut. It's only been a few weeks but I've noticed an improvement all round.
    • What did you drink and where did you drink it?   NOTE if you drink something at a bar using their glasses your asking for trouble BEER IS EVERYWHERE in most bars and a CC hell.   If it was at home and a non grain based liqour then I would be really concerned that it might just be alcohol. I personally can not really drink much of anything any more. I love rum, and I cook with it sometimes in sautes. I also have rum extract/butter rum extract/and rum emulsion I use in shakes, homemade keto pudding/ mixed into dishes. and even add some to drink to give it a rum flavor lol.
    • I can only think of two things, 1 something you put on your potato was contaminated like the butter container could have crumbs in it or something like that as mentioned before, and you could be having a reaction to dairy or what ever was put in it.......IF it was just plain potato and you reacted with bloating and cramping you might have a carb issues, tad rare and most associated with additional auto immune diseases but could be in which case a diet of fats and protein would be your answer much like it is for me now days. What all have you eaten in the privous 8 hours including beverages, condiments, spices and foods?
    • They are gluten-free.  Did you use butter that might have gluten crumbs on it?  For me , it takes more than 2 hours to feel the effect of gluten- maybe something you ate before?  Maybe  stomach virus?
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