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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Blood Test Issue
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3 posts in this topic

Spent the last month in and out of the hospital due to blockages and twisted small intestines but after a battery of tests, nothing was found. CT scans and steady X-Ray motoring confirmed these small intestinal blockages and after the Exploratory Laporatomy the surgeon found nothing.

After the Surgery, the blockages continued and the pain increased which brought me to the E.R. and admitted three more times spending the last month in and out of the hospital as they waited for the blockages to solve themselves.

The only other tests included the x-ray which included drinking the barium and PBG test.

And the most confusing part was the fact the the blood test that they performed to confirm my Celiac disease stated that my gluten sensitivity was normal even though when I first was diagnosed after a upper and lower GI biopsy and blood test:

Posted 26 May 2009 - 08:17 PM

Result Flag Reference Range

TTG AB IGA SCR W/RFX EMA IGA

TTG AB IGA 85 H 0-19 Units AR

]INTERPRETIVE DATA: Tissue Transglutaminase Antibody, IgA

IgA antibody against human tTG, if detected at a level greater than 19 units, may suggest the possibility of certain gluten sensitive enteropathies such as celiac disease and dermatitis herpetiformis

RFX ENDOMYSIAL TITR 1:10 H <1:10 AR

TEST INFORMATION: Endomysial Ab, IgA

Endomysial antibodies are screened using an ELISA tissue transgl~taminase (tTG) assay. All samples which are positive are titered on endomysial tissue by IFA. The endomysial antigen has been identified as the protein eross-linking enzyme known as eissue transglutaminase. Presence of IgA antibodies against human tTG suggests the possibility of certain gluten sensitive enteropathies such as celiac disease and dermatitis herpetiformis.

AR - TEST PERFORMED BY ARUP REFERENCE LABORATORIES 500 CHIPETA WAY, SALT LAKE CITY, UT 84108-1221

FLAGS: L=Low, LL=Critical Low, H=High, HH=Critical High, D=Delta, A=Abnormal

Acct# G00709522247 ** END OF REPORT **

Loc: G.LABOP -

----------------------------------------------------------------------

WHY NOW DO THE BLOOD TEST STATE I HAVE NO GLUTEN SENSITIVITY?

That was three years ago and I do follow the diet as close and religiously as I can, is it possible due to that am conscious with what I do digest state a false-negative?

They released me yesterday and told me that I had to go to a facility that can do the PILLCAM endoscopy procedure.

Which seems kind of sketch, especially due to the frequency of my visits, especially after the surgery where there was a 9" incision and nothing was found.

This has deeply effected my life in every way; work, school, and much more monetary commitments that I cannot take care of with out the work. A very big set back.

Any Suggestions???

Any Answers???

Thank You

Josh

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If you have been gluten-free for three years, you should absolutely expect to test negative. The tests look for antibodies which your body produces in response to gluten. No gluten--no antibodies.

The negative results confirm that your diet is, in fact, gluten-free.

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I am sorry you have having all these intestinal blockage issues. It must be very frustrating for you. Perhaps the pill cam will show something that a laparotomy could not.

As Peter says, if you have been religiously following a gluten free diet you should by now test negative for gluten antibodies, because they only appear in the presence of gluten. Your doctor should have explained this to you, or perhaps he didn't know? :unsure: The pill cam also should not see any damage in your small intestine caused by gluten because that should have healed in three years. But it can see what is causing your current problems perhaps?? It seems to me to be logical next step since nothing they have done so far has been able to pinpoint problems.

Let us know how the pill cam turns out. :)

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