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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long To Get Rid Of Gluten From My System?
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7 posts in this topic

In a nutshell, my journey with chronic head pain began at age 13 in 1999. I strongly believe I have been dealing with Gluten Intolerance ever since and only recently discovered that I have Celiac Disease.

I have been told by my Allergist that it can take up to 6-8 weeks to be completely Gluten free. Is this correct? I am thinking it will take much loner than this. And how do I go about knowing that I am 100% Gluten Free?

Thanks.

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I have been told by my Allergist that it can take up to 6-8 weeks to be completely Gluten free. Is this correct? I am thinking it will take much loner than this. And how do I go about knowing that I am 100% Gluten Free?

Thanks.

I have no idea unless your allergist thinks it's going to take 6 to 8 weeks for you to learn the ins and outs of eating gluten-free ??? I started reading labels as soon as I had a positive celiac panel so as to not buy things I knew I would not be able to eat. I cleaned out my pantry the first week after my endoscopy and got rid or or donated foods I could no longer eat. And then I tackled personal care products. While there's definitely a learning curve, I didn't find this to be overwhelming.

You might want to check this list of safe and unsafe foods so you become familiar with what you can eat and ingredients you have to watch for. And if you stick with naturally gluten-free foods, you'll have a whole lot less labels to read.

Living Gluten-Free for Dummies by Danna Korn is a book you might find helpful.

While it may be confusing at first, just hang in there and it'll definitely get a lot easier.

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Thank you for the reply. Personal care products, really? Do you mean toothpaste, etc? Do I have to worry about that too? I haven't ever seen Gluten on toothpaste and would the ingredients also be listed on ingredients/foods to avoid list?

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I have never seen gluten in toothpaste. Most of us prefer to use gluten-free shampoo, lotion ,etc because it can get in your mouth or stick to your hands and then get on food. Check any meds, vitamins, Tylenol, etc for gluten. On meds, the only way to know if it has gluten is if the manufacturer decides to label it gluten-free or you call the company and ask.

Don't kiss people who eat gluten until they have thoroughly brushed thier teeth. Be aware of lipsticks/gloss, too.

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What do they 6 - 8 weeks to be completely gluten free? If you've had the disease a long time it can potentially take a long time for all this stuff to really get out of your system even if you are not consuming it. I may be an extreme example as I think I've had this disease since I was a small child and I'm 38 now. I've been gluten free for almost 15 months now and just went to get my latest celiac blood test and it STILL is showing positive. It has been decreasing since I went gluten free and I'm just 1 point away from testing negative, but still. I'm very cautious about what I eat, etc. so I don't think this is due to me consuming gluten (my GI doc said the same thing).

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And how do I go about knowing that I am 100% Gluten Free?

I like to say I'm 99.99% gluten-free - no matter how careful you are, accidental glutenings are very difficult to completely avoid. You can only do your best to learn all the hidden sources of gluten and how avoid them.

One way to determine you know you are successful in removing gluten is symptom improvement. Another is follow up testing. My celiac doc recommended full celiac panel and nutritional deficiencies at 3 and 6 months gluten-free, then annually thereafter.

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Don't kiss people who eat gluten until they have thoroughly brushed thier teeth.

Really? I would never have thought of that on my own.

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    • King Arthur Flour has excellent mixes and gluten free recipes if you enjoy baking.  If you live in a city, there are bound to be bakeries and cafes that make gluten free items and some groceries stores that stock them as well.  
    • You could have the full celiac panel done to see if any other numbers come up high. TTG IGA and IGG, DGP IGA and IGG, EMA. If your doctor is not a gastroenterologist then you can try going to one. They know what to test for. You could also simplify your diet and start a food log. Gradually introduce foods and when stomach pains start you can see what you ate in the last two days to cause a problem.  
    • I had the same issue with stomach pain after diagnosis and it turned out to be soy protein that was causing it.  I never ate much soy before diagnosis and gluten was keeping me constantly ill so I never realized it was an issue till I stopped going with foods with soy on the suggestion of good freind. Not saying that is the problem with you but thought I would throw it out there as a possibility. If you are eating oats you may want to drop those for a bit also since some of us will react to those even if they are gluten free. In addition is there any way you can avoid eating oput for a month or so? You may be getting glutened but not enough to show on the TtG. I could be wrong but I think the DGP tests are the preferred ones for checking with dietary compliance. You should also consider dropping dairy for a bit. Add it back in when you are feeling better starting with stuff like hard cheeses, yogurt and butter that have low amounts of lactose. Hopefully you will be able to figure out what is going on soon and get some relief.  
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