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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Ongoing Pain Despite gluten-free Diet
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zamm0    1

OK, first post here and was diagnosed Celiac 2 weeks ago :-(

Can you still get pain (in the small intestine area) even though you've gone gluten free i.e. does the inflammation/damage you've built up IN THE PAST keep giving pain sometimes? Or is it more likely I'm not being vigilant enough and it really is to do with CURRENT gluten ingestion?

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kittty    22

OK, first post here and was diagnosed Celiac 2 weeks ago :-(

Can you still get pain (in the small intestine area) even though you've gone gluten free i.e. does the inflammation/damage you've built up IN THE PAST keep giving pain sometimes? Or is it more likely I'm not being vigilant enough and it really is to do with CURRENT gluten ingestion?

I'm going to assume that you've also been gluten free for only two weeks since your diagnosis. It can take many months to see significant improvement, and for some people it takes years. It takes time for the damage to repair itself, and in the meantime you may start to feel slightly better, and some symptoms will probably clear up faster than others. I've been gluten free for almost six months, and still have some lingering issues.

It's also possible that you're still making rookie mistakes. It takes time to get used to the diet, and find all of the hidden sources of gluten. This forum is a great resource to find help though. It has been indispensable for me!

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taxlady23    0

I'm going to assume that you've also been gluten free for only two weeks since your diagnosis. It can take many months to see significant improvement, and for some people it takes years. It takes time for the damage to repair itself, and in the meantime you may start to feel slightly better, and some symptoms will probably clear up faster than others. I've been gluten free for almost six months, and still have some lingering issues.

It's also possible that you're still making rookie mistakes. It takes time to get used to the diet, and find all of the hidden sources of gluten. This forum is a great resource to find help though. It has been indispensable for me!

My son 17, has been gluten free for over a year and a half now. His pain and cramping only went away a few months ago. It takes time to heal. Are you taking any natural supplements to help the healing process?

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zamm0    1

My son 17, has been gluten free for over a year and a half now. His pain and cramping only went away a few months ago. It takes time to heal. Are you taking any natural supplements to help the healing process?

Thanks to the above for taking the time to reply. I've just started taking a probiotic tablet twice a day and try to have probiotic yoghurt several times a week too. Also taking some iron to get my store levels up a bit but obviously that's not directly related to the healing. Let me know what else I can do....thanks,

Paul.

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zamm0    1

I'm going to assume that you've also been gluten free for only two weeks since your diagnosis. It can take many months to see significant improvement, and for some people it takes years. It takes time for the damage to repair itself, and in the meantime you may start to feel slightly better, and some symptoms will probably clear up faster than others. I've been gluten free for almost six months, and still have some lingering issues.

It's also possible that you're still making rookie mistakes. It takes time to get used to the diet, and find all of the hidden sources of gluten. This forum is a great resource to find help though. It has been indispensable for me!

Until now I've been relying on a) "free from" sections of supermarkets, which are usually (but not always) a little pricey b ) basic knowledge of simple foodstuffs that won't contain gluten because they are pure c) the coeliac (spelling?) society food directory list.

What is quite curious is that I seem to get pain every other day or so but not always in the same area - whereas before it *was* mainly to the left of the navel about level with it, that pain has largely gone away but has been replaced with a more dull pain either above or below the navel (but on both sides). I did read that below can be to do with lactose intolerance i.e. dairy, which I have not cut out yet. That said, today I didn't have cereal and have only had milk in coffee/tea and that pain is not really there today but some pain is now above. All very confusing!!!

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nvsmom    332

I occasionally get crampy when I eat some gluten-free foods; I think it's more to do with the fact that it's junk gluten-free food and highly processed than anything. It's often a good idea not to replace gluten foods slice per slice with gluten-free foods. gluten-free foods are often higher in sugars and very processed; the regular foods are actually more nutritious. For example, I used to buy 4 loaves of bread a week for my family of five; we are now all gluten-free and I buy 1 Udi's loaf and a bag of their bagels and that's it. Our bread was cut by half.

I have issues with milk and had stomachaches with them too. It was different than the gluten stomachaches (which you'll probably know as a fact if you ever accidently gluten yourself). I recommend almond or coconut milks as a substitute for coffee and tea; they're not bad and the sweetened ones are quite tastey. Some people do okay if they have lactaid with their milk too. Anyways,f your pains go after eliminating milk, you'll have your answer.

Good luck. :)

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