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Depression

joolsjewels

By joolsjewels
in Coping with Celiac Disease

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joolsjewels Newbie
joolsjewels
  • Author
Posted

Dissappointing Day: i went to my fibro dr today and told her about the last 6 weeks. She looked right at me and said, "Well, I am sorry that things have been going so badly, but there is nothing else I can do for you. Just continue looking for the medical causes."!!!!!?????? No advice, no general direction, just continue with what you are doing. Thanks! I started crying in the office as i was so frustrated ( i rarely cry in front of others).

The "good" news is that i have arthritis in my right foot too!

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Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

How frustrating.

It seems once again the patient has to do all the hard work. I am so sorry you didn't get more help.

Sending hugs

Mw

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  • 1 month later...
Judyin Philly Enthusiast
Judyin Philly
Posted

are you still taking pristiq and is it working

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Madagascar Rookie
Madagascar
Posted

joolsjewels - i saw you were online earlier today, and although you didn't bump up this post, i wondered how you are doing.

have you had another test run to see if you are still producing antibodies? there's an RN who has celiac, who has become a specialist in the topic, speaks internationally, consults, etc. i think she really knows her stuff. she has people go gluten & dairy free, because of what the person earlier said - the casein (milk protein) and gluten strands can look alike to the body. here's her website: Open Original Shared Link take a look at the link mid-way down the front page under "frequent misdiagnoses" and then at her link under fibromyalgia. reading through your post, i wonder if you are still getting exposed to gluten. she does do phone consultations - i think she knows more about this topic than any doctor i've encountered. after i talked to her, i had my primary care doc order the blood tests for me. he didn't think i had it. he didn't think my daughter had it (his words were that all her stomach problems were in her head.) we appreciate that very much. :angry: however after the daughter being gluten-free for 4 weeks, she's a world better, both mentally and physically.

you can't take this with other antidepressants, but 5HTP is something I take that helps your brain produce melatonin to sleep and serotonin for a good mood. but DON'T take it while you're taking another anti-depressant. you don't want serotonin overload. i'd encourage you to do some research into it. sounds to me like you might be still having antibodies causing all these other symptoms, like the fibromyalgia. If a person's intestine isn't absorbing tryptophans, they don't sleep well and might feel anxious or depressed. those are all linked together. i took paxil for a few months (bully boss was making me insane) and my son (college student) took celexa for anxiety attacks and depression. both of us went off of them and found the 5HTP helped more than anything else - and the only side effect is that it can make you sleepy. i take just one a night - i buy mine from pureformulas.com and get the one made by Thorne Research Labs (cuz they are the researchers).

but again, please do some research and if you want to take it, do it safely. i just didn't want to ignore your post because so much there sounds like you're still having antibodies, your gut is may be not absorbing nutrients and you may be malnourished.

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    • trents
      Waiting for urgent referral.

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      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
    • Moodiefoodie
      Joint swelling when ill even on gluten-free diet

      By Moodiefoodie · Posted

      Wow! Fascinating info. Thanks so much! I really appreciate the guidance. @Spacepanther Over the years I have had rheumatologists do full lab work ups on me. They told me they had screened me for arthritis, lupus, and Lyme disease (all negative). In addition to joint pain and stiffness I had swelling in both knees that later moved to my elbow as well.  I also experience stiffness and pain in my neck and shoulders when it flares. I vomited fairly often growing up, but there wasn’t a real pattern to it and I didn’t know it wasn’t normal (thought people caught stomach viruses often).  I don’t usually have stomach symptoms immediately after eating gluten that I notice.  The only other joint condition I know of is fibromyalgia. Good luck! Hope you can get it figured out. I only assumed my joint symptoms were due to the celiac’s because it is under control for the most part on a gluten-free diet.  The rheumatologist also mentioned that some inflammatory/autoimmune diseases can be slow-moving and not detectable until they progress.
    • knitty kitty
      Joint swelling when ill even on gluten-free diet

      By knitty kitty · Posted

      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
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