• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What More Can I Do About My Mother.
0

8 posts in this topic

It would be hard to describe the whole situation. I was diagnosed celiac last May by a genetic test. The same test was so positive that it was known both of my parents have the genes for it. I told them and all my extended family of my diagnosis. I also wrote to Mom's doctor to ask him to consider this diagnosis in my mother's care.

Dad said that Mom was just not up to a diet change then. She had begun some bizarre behaviours such as expecting company when there was none. She eventually got some psychotic drugs to try to help her brain function better. She became physically weak. The other day she couldn't rise from her kitchen chair for the entire day. Eventually, they had to call an ambulance to come get her.

The doctors are not telling what is wrong my Dad says. They aren't trying to explain why she is so weak suddenly? They may release her from the hospital today if she can walk. How does something like that mysteriously change?

What can I do? What can I do?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


My mom has had some of those things. She isn't Celiac. Do you live close enough to go to the hospital and be there when the doctor comes around? Sounds like your dad either isn't telling you anything, or he isn't understanding and asking questions.

0

Share this post


Link to post
Share on other sites

My mom has had some of those things. She isn't Celiac. Do you live close enough to go to the hospital and be there when the doctor comes around? Sounds like your dad either isn't telling you anything, or he isn't understanding and asking questions.

I live an hour and a half away and we are now short of cars in the family. I have given the doctor my name and phone number when I told his that I have celiac.

Did your Mom ever pull out of it? Mine has been so well and she is only 71. Dad is 81.

II don't think the doctor is allowed to discuss her healthcare with me. Mom and I have vastly different ways of looking at health care.

0

Share this post


Link to post
Share on other sites

I don't think the doctor is allowed to discuss her healthcare with me.

Even if he can not talk, he can listen.

0

Share this post


Link to post
Share on other sites

My mom has a lot of issues.

It sounds like your Dad doesn't want you involved. Sorry. there isn't much you can do unless you have evidence he is not caring for her appropriately. Then you could report him for elder abuse.

Do you have any siblings that know what is going on?

Just remember- just because someone has a gene or 2 that are associated with Celiac, it doesn't mean they will have Celiac. The gene has to be "turned on" to make Celiac.

0

Share this post


Link to post
Share on other sites
Ads by Google:


It might be worthwhile to check the drugs she is on for side affects. Some drugs can have very strong side affects.

0

Share this post


Link to post
Share on other sites

My mom has a lot of issues.

It sounds like your Dad doesn't want you involved. Sorry. there isn't much you can do unless you have evidence he is not caring for her appropriately. Then you could report him for elder abuse.

Do you have any siblings that know what is going on?

Just remember- just because someone has a gene or 2 that are associated with Celiac, it doesn't mean they will have Celiac. The gene has to be "turned on" to make Celiac.

My dad is a gem. My siblings are all involved. I just found out that the weakness was probably a side effect of a drug she went on two months back.

I will be sure to leave a note for the doctor if I have further questions.

Thanks,

Diana

0

Share this post


Link to post
Share on other sites

I think it is difficult for others to see what we have had to go through and do not want to admit that they might have a similiar problem. Both my parents and my brother have auto immune disorders which are associated with celiac diease. I too have suggested that they get tested just to be certain. Of course they will not. I really do hope your family get tested, but sometimes all we can do is be supportive.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,452
    • Total Posts
      930,633
  • Member Statistics

    • Total Members
      63,876
    • Most Online
      3,093

    Newest Member
    CJmommy
    Joined
  • Popular Now

  • Topics

  • Posts

    •   Might want to look into a keto diet, I have UC on top of celiacs and keto is working great Yeah I have major nerve and brain issues with gluten, gluten ataxia with nerve issues and brain issues. Seems to cause my body to attack my brain and nerve system. My brain stumbles fogs, and starts looping, the confusion causes me to become really irritable, I call it going Mr Hyde. Like my mind will start looping constantly on thoughts and not move driving me literally mad, or it used to. Now days it is primary the numbness anger but the gut issues and sometimes random motor loss limit me motionless to the floor now days for the duration of the major anger effects. Used to be a lot more mental then painful gut. I did a mental trauma post on it on while back where I came out about all my mental issues with gluten.  
    • ^^^^^^ good info, tips and tricks^^^^^^^^^ yes, crumbs will make you sick.  also, breathing flour/pancake mix, etc that is in the air because eventually, you're going to swallow some. 
    • Hello I was diagnosed Dec 15 of last year and went totally gluten-free the next day. I actually got worse before I got better - it's a steep learning curve - but now, 4 1/2 months later I'm finally seeing improvement.  Hang in there. 
    • Called my GI doctor today to make sure he is going to look at my small intestine and do biopsy for Celiac for my EGD and he is. Thanks for the tip everyone about have to start eating gluten again. The office told me to break my gluten free diet and start eating gluten everyday until my EGD. Here's to being miserable again for a few weeks 🍻🍞😩
    • I can completely relate! The horrible mental effects that I have been living with for years is the absolute worst side effect of eating gluten, HANDS DOWN. Worse than the endless tummy aches, worse than the constant diarrhea, worse than the week long migraines, worse than the daily fatigue and body pain.... I honestly though there was something seriously wrong with me and hated my life because of how I felt mentally. I always felt like I was drowning, not in control of my thoughts, trapped in some unexplained misery. My head was always so cloudy, and I was mad because I always felt so slow and stupid. I would feel so lethargic and sad and empty while at the same time be raging inside, wanting to rip out of my own skin. I was mean, terrible, would snap at the people closest to me for no good reason and just felt like I hated everyone and everything. Think of how crappy you feel when you have a terrible cold and flu - I felt that crappy, but mentally. Some days were really bad, some were mild. I always thought it was because I was getting a migraine, or because I had a migraine, or because I had just overcome a migraine, because I didn't sleep well, because....always a random reason to justify why we have all these weird unrelated symptoms before we get diagnosed. I'm happy to say that I have been gluten-free for about 2 months now and though I am not symptom free, the first thing that improved was my mood. I no longer feel foggy and miserable. For the first time in years, my head is clear, I can actually think, and I feel positive and like I am in control of what's going on in my head. I don't hate the world. I don't spend every day bawled up on the corner of the couch depressed and angry. The release of these horrible symptoms is enough to never make me want to cheat, no matter what I have to miss out on. So insane how a little minuscule amount of a stupid protein can wreck such havoc. 
  • Upcoming Events