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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Portland, Or
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Kate79    16

I'd just like to give a shout-out to Portland, OR as a great place to visit (or live, if you're lucky) if you've got celiac disease/gluten intolerance. My husband and I just got back from a long weekend there, and there are an astonishing number of gluten-free options - including several totally gluten free places. Restaurants are also pretty knowledgeable about other food restrictions and allergies. We didn't even have a chance to try them all, but here's where we did eat:

- Corbett's Fish House - which does fish & chips using rice flour. Apparently, they've always done this because they prefer rice flour, and they only realized the gluten-free angle a couple of years ago. They also have gluten free beer & desserts. Not totally gluten free, but mostly so - and things are clearly marked.

- The Cultured Caveman - this is a paleo-style food cart, so all their food is grain free & dairy free. They've got chicken tenders, sweet potato fries, salads, etc.

- The gluten-free Chef - another food cart, also totally gluten free. They do breakfast (pancakes, biscuits & gravy) and they also have sandwiches, onion rings, fries, etc.

- The Berlin Inn - traditional German food. It isn't all gluten free, but they'll make pretty much anything on the menu gluten free for you, and they understand about contamination. They've got some delicious gluten-free dessert options, too.

- Kiwan Cafe Rio - this is an absurdly small coffee shop run by a very nice old couple from Eastern Europe. They're completely gluten-free, and they do waffles with various toppings, omelets, and sandwiches. Also great coffee and smoothies - especially the Black Forest Smoothie.

- Verde Cocina - Almost completely gluten free Mexican. They do Burritos, but otherwise, totally gluten free.

- We tried several totally gluten free bakeries: Tula's, Queen of Hearts & New Cascadia. Queen of Heart's specializes in small pies, both fruit and savory, which were delicious - and New Cascadia has a gluten free sourdough bread, which is probably the best bread I've had since I was diagnosed 2 years ago. All of these bakeries have stands at the Portland Farmer's Market, so you can grab a coffee and eat your way through a bunch of baked goods for breakfast.

Finally, I can't say enough good things about Harvester Brewery. They opened last year, and they're totally gluten free. They use a combo of roasted chestnuts, gluten-free oats and other grains like sorghum. Their beer is available at restaurants and stores around Portland, and the brewery is open on Thursday afternoons so you can visit and buy their beer by the case. Currently, they're doing a Pale Ale, an IPA, a Red Ale, and a Dark Ale, and they let us taste some test batches of new flavors while we were there. All four of their beers are good - the Red & the Dark have a nice chocolate-y taste due to the roasted chestnuts. Hopefully they'll be expanding to a wider area soon.

I did not try the other new 'gluten free' beer in the area - Omission - because it's made from de-glutinized barley and I don't trust that particular brewing method. That one is widely available, but sample at your own risk.

Portland also has an astonishing variety of ciders, and one cider bar - Bushwacker - which is entirely gluten free.

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celiac-mommy    79

Portland is the BEST!!! I love that I can take the kids for a walk downtown and walk into almost any restaurant and find something tasty for them. My favorite day was taking my dd to the PSU farmers market and telling her that she can eat anything she could find (which was so many vendors with so many options). We were soooooo sick!! :P

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luvs2eat    60

Love, love, LOVE Portland!! Two of my 3 celiac daughters lived there and we had the BEST time going from gluten-free to gluten-free place. Love New Cascadia ... their cupcakes are to DIE for. I'm also a huge fan of the Whole Bowl... a stand alone restaurant and a food truck.

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We found true gluten-free paradise in Portland while traveling up the West Coast and hunting for food. No other place in the country makes us feel more welcome and satisfied! We loved the celiac-friendlly options so much that we have gone back every summer for four years. My hungry family of four is gluten-free and picky-picky, so here are our Portland favorites. We have tried ALL gluten-free bakeries and nearly every gluten-free restaurant in the area and here are the results:

Petunia's Pies and Pastries (cart at PSU on Saturdays, some items at Whole Foods) - what a selection of heaven!

Back to Eden bakery in NE Portland - Boston Cream Pie is surreal

Fresh Thyme Soup Company (recommend ALL soups, salads, and desserts) - closer to Beaverton

Laughing Planet (multiple locations)

Cafe Yumm (multiple locations)

Sizzle Pie (downtown) - THE BEST gluten-free PIZZA CRUST EVER, especially with basil pesto sauce

Jade Tea House - Unbelievable fresh asian cuisine - perfect every time

El Nutri Taco - New Mexican restaurant lacks ambiance but great quality tacos

Mama Mia Trattoria - best pasta menu and reasonable prices

Some carts can be safer than others, and we generally take more risks with Mexican. With french fries, very few options are available where the oil is not contaminated with batter. New Season's Market will make a gluten-free wrap at the deli, and our favorite fro-yo joints such as Tartberry and Nectar list gluten-free flavors.

Oh...this is making me so hungry...

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gary'sgirl    28

I love the Oregon Coast and Portland. I lived in Cannon Beach and then Beaverton for several years. As far as big cities go, Portland is my favorite out of the ones I've been to. Now I like it even more hearing how great it is for gluten free options. My husband and I hope we can move back to the Oregon Coast again some day :)

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    • Hello, Often drugs that end in –artan are ARBs, and they work by blocking the angiotensin receptors. I’m not sure what the exact difference is between the two medications you mention, though. Have you called the manufacturer of losartan to see if any of the fillers contain gluten? It might be a good idea to know what those fillers are. In my drug book “dyspepsia” and “gastritis” are mentioned as side effects, but they did not drill down to the specificity of villous blunting. I did some googling, and in addition to what Knitty found, I came across this: Small Bowel Histopathologic Findings Suggestive of Celiac Disease in an Asymptomatic Patient Receiving Olmesartan “Although Rubio-Tapia et al are careful to avoid claiming a proven causal relationship between olmesartan therapy and the observed spruelike enteropathy, the data are highly suggestive of more than just a coincidental association. “They further suggest that a potential mechanism for the enteropathy could relate to inhibitory effects of angiotensin II receptor antagonists on transforming growth factor β action because transforming growth factor β is important in gut immune homeostasis. “Although anecdotal, these observations lead to the hypothesis that olmesartan, and perhaps other angiotensin II receptor antagonists, could be a cause of intraepithelial lymphocytosis in architecturally preserved proximal small intestinal mucosa.” (One of the patients in question was offered the opportunity to do a gluten-free diet, but he/she declined.) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3547582/ So, it looks like you are definitely on to something, and if this turns out to be a “thing,” would probably warrant dissemination on a wider scale. You didn't mention what your BP is with the medication or was without it, but please let your health care provider know if you do decide to discontinue your blood pressure medication. It's often recommended not to DQ suddenly, which can cause the BP to spike in some cases. Plumbago   ETA: Just because a drug can cause a particular side effect does not mean it does in your case. I just thought I'd add that, but nevertheless totally and completely understand the cause of concern in any case.  
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