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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Are These Active Lesions?
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So I am still trying to understand my skin before I go to the derm on the 16th. As I walk around itching I decide to actually look at what scratching. Are these considered active lesions? Also can a derm order a celiac blood panel?

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Yes, I would call them 'active' lesions. They are certainly 'active' as evidenced by the red inflammation. And lesion is a word with a broad definition that basically means diseased area or injury.

To me your lesions look like DH, and I would expect if they get worse or you scratch harder they will become 'excorciated' and become bleeding sores. In mine they 'stung' and hurt, rather than itched, although the distinction may be a fine one. I associate itching with the healing period in the process, stinging with getting worse.

I can't offer an opinion about the blood panel. None of the medical testing I had ever identified DH or coeliac disease and I am self diagnosed largely as a result of comparison photos, associated gastrointestinal symptoms, and the fact that strictly avoiding gluten 'cured' both aspects of the disease. Albeit slowly in the case of skin symptoms.

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Yes, I too, would say those are active lesions. I think it depends on the individual derm as to whether they will order the blood panel or not. Any doctor with a medical degree can order the tests; the question is will the derm. May guess is the derm will say to go to your GP & ask the GP to order the tests. If the derm orders them then the results will be sent to the derm & the derm may not feel comfortable interpreting them. You could counter by saying you will take the results to your GP for interpretation. (Also post them here along with the reference ranges -- we have members who are very versed in interpreting them). Bottom line ---- it never hurts to ask --- all the derm can do is say no. But do you realize that those of us with dh test neg. on the blood panel more often than regular celiacs do? That's b/c it's in our more in our skin. This info. is in the "Interesting Reading on DH" thread.

BUT --- here is the current FULL blood panel for celiac. You can print it out & take it with you:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

Also can be termed this way:

Endomysial Antibody IgA

Tissue Transglutaminase IgA

GLIADIN IgG

GLIADIN IgA

Total Serum IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

If they order less than these tests then they have not done the full panel.

And I will remind you that a dx of dh IS a dx of celiac.

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Well I went ahead and made an apt for my GP. I'm gonna get the celiac panel, 100 food allergy panel, environmental allergy panel( which I know I have but I want to see my numbers)

Anything else I can request

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They look like mine. I'm not a doctor and I haven't tested positive yet. But the blister in the top picture looks exactly like mine do. And if you're like me they crater after the blister pops and look like something on the surface of the moon. Good luck with the doctors!

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Well I went ahead and made an apt for my GP. I'm gonna get the celiac panel, 100 food allergy panel, environmental allergy panel( which I know I have but I want to see my numbers)

Anything else I can request

Thyroid panel --- not just TSH, but free T3, free T4 --- the whole shebang. Vitamins & minerals. Especially B's, B-12, D & iron.

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