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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Strange Symptoms And Diagnosis Not Confirmed
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2 posts in this topic

Hi everyone.

First I'd like to say that this site is great for people with gluten intolerance!

But I need some advice on my symptoms and see what other people think.

Now, I am a professional motorcycle road racer in Europe, and for a long time I have had the problem of fatigue, and sometimes diarrhea for unexplained reasons.

In recent years, every time I went running, I felt like I hit the wall after just a few miles. And one I got so bad stomach cramps that I almost couldn't stand up, and then I had to go take care of some business in the woods (very nasty).

And since I was life 13 years old, I can't remember there being 1 month where I didn't have painful stomach cramps and diarrhea at least once.

Anyway, I went to a professional nutritionist, where I filled out tones of forms about what I eat, how I feel when eating certain things etc. And then he made a diet plan where I couldn't eat any types of grain at all.

Then have told me that once a week, at 1 meal I can eat whatever I feel like. So I ate a pizza and had a beer, and when I did, I got stomach pains that lasted 3 days, and my nose closed up while I was eating it.

Anyway, after I started this diet, I have felt quite a bit better when running. My stomach, especially my lower stomach (intestines) seem to be behaving much better than before.

Now, what I am wondering, could this be gluten intolerance, or something else?

This morning I had stomach pain again (for the first time since I started the diet), and I didn't eat any grain or anything in the last few days. However I did have tea with milk, but I have had that several times without any effects.

Does any of this make sense to you guys with celiac? Can you get stomach cramps while your body is healing up. And do any of you every experience stomach pains in the middle of the stomach?

Thanks a lot - hope it makes sense :)

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Welcome, Chris.

Eliminating all grains should have gotten rid of most of the gluten, unless you eat processed foods or soy sauce or such. So you have probably been mostly gluten free.

If you are gluten intolerant, pizza and beer is not such a great idea :unsure: What a double whammy! I bet you won't do that again. If you are gluten intolerant, gluten will do that to you after you haven't had any for a while. I don't know where folks get the idea that it is okay to cheat once in a while, because your body will tell you it's not :rolleyes:

Yes, the healing process does take a while because gluten has done its damage. If you are celiac, it will have damaged the villi (little finger-like projections) in your small intestine, and it is at the tips of those villi that the body makes lactase, the enzyme to digest the lactose in milk. So most celiacs have a hard time digesting milk and a lot of milk products until the villi have healed. And for lots of people the pain they experience is around the navel.

Try rooting out ALL the gluten from your diet and eliminate dairy for a few months and see how you feel. If you read the Newbie 101 thread here you will get lots of tips and help. :)

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    • Hi Michael and welcome The celiac diagnosis process can be a little confusing. Some time ago I tried to put together some info and links that may be of help:    The key point would be to stay on gluten until you and your doctors are satisfied that celiac has been excluded. In your case that may include another test with a more complete panel as CyclingLady says above. If you go gluten free independently during this time you risk invalidating the results and adding to uncertainty. The second suggestion would be that should you succeed in eliminating celiac as a diagnosis then you have nothing to lose from trying the gluten free diet. I tested negative on blood and endoscopy, but removing gluten resolved or greatly improved a whole load of symptoms including anxiety, depression and that feeling of not being right that you outline above.  I say greatly improved because I can still suffer from anxiety or depression, as anyone can, but if I do, they're nowhere near as severe as they were when I was consuming gluten.  In the meantime, one thing you could do is to keep a food journal to see if you can track any relation between what you eat and how you feel. It's good practice for if you later try the gluten free diet and you never know what you may learn.  This is a good site full of friendly help and advice. I hope you get the help you need  
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