• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Gluten Intolerance Or Just Really Bad Timing/luck
0

Rate this topic

9 posts in this topic

Recommended Posts

I recently tried going 2 weeks without gluten because I was tired of always being bloated and having stomach aches (and other assorted stomach related symptoms-aka less than perfect stools). After 2 weeks of making sure nothing I ate had any gluten in it, I had a large piece of fully gluten-ed bread (I know because I baked it). About an hour later, I vomited a little. But, my immediate reaction was disbelieve (and apparently to boldly wave my fist at the symptom). So, needless to say, for dinner I had two more pieces of bread and a muffin (though in total less calories than I normally consume). By that night my stomach was bloated to the point it looked like I could have been several months pregnant. I thought that was where it would end. But by midday the next day, I was vomiting a little bit here and there. And by that night, I had emptied my entire stomach with a few extra empty efforts by my stomach just to make sure. And I felt so terrible afterwards that I think I had a food aversion to all foods (resulting in about 6 pounds of weight loss and extreme fatigue and exhaustion).

My question is: Did I just pick the worst time to test my gluten reaction and happen to be hit by a stomach flu? Or did I overindulge during my testing and my body gave me the definitive slap in the face announcing that yes in fact I was gluten intolerant?

I guess my disbelieve stems from the fact that I'd never had symptoms that severe in the past and usually eat lots of bread and gluten related products without vomiting. So, is it possible the two week break brought out these reactions, or again, was it just bad timing and really just a stomach flu creating a false positive. I'm a little hesitant to try and retest, but fear that is probably my only option. I hate being someone who needs evidence for their evidence.

Any thoughts would be greatly appreciated!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I doubt it was bad luck or poor timing. I think you were onto something with that elimination diet and your body reacted strongly when gluten was reintroduced. I get that big bloat when I ate gluten; I used to never go anywhere without a baggy sweatshirt or sweater so I could hide my gut when the bloat hit. For me, feeling poorly and migraines would usually follow.

It appears that you have some sort of gluten intolerance, whether it's celiac or not we can't tell. Unfortunately, if you want to get tested for celiac, you'll have to eat gluten regularly for about 6 weeks in order to get an accurate test; those two weeks gluten-free could affect your results and give a false negative.

I'm sorry to hear you weren't well, but I wish you luck with testing or the gluten-free diet. I hope you feel better.

Share this post


Link to post
Share on other sites

Thank you for the response! I do wonder if I should go ahead and be tested for celiacs. Is the treatment any different or is the only real treatment giving up gluten? Because, I figure if gluten is causing my latest symptoms, then I'm probably better off just accepting my body does not like the stuff much.

I doubt it was bad luck or poor timing. I think you were onto something with that elimination diet and your body reacted strongly when gluten was reintroduced. I get that big bloat when I ate gluten; I used to never go anywhere without a baggy sweatshirt or sweater so I could hide my gut when the bloat hit. For me, feeling poorly and migraines would usually follow.

It appears that you have some sort of gluten intolerance, whether it's celiac or not we can't tell. Unfortunately, if you want to get tested for celiac, you'll have to eat gluten regularly for about 6 weeks in order to get an accurate test; those two weeks gluten-free could affect your results and give a false negative.

I'm sorry to hear you weren't well, but I wish you luck with testing or the gluten-free diet. I hope you feel better.

Share this post


Link to post
Share on other sites

I was in a situation not dissimilar from yours.

I did a second round of testing gluten on myself after another month gluten free.

One coincidence... possible. Two at the same time... not very likely at all (though still *possible*).

Share this post


Link to post
Share on other sites

Thank you for the response! I do wonder if I should go ahead and be tested for celiacs. Is the treatment any different or is the only real treatment giving up gluten? Because, I figure if gluten is causing my latest symptoms, then I'm probably better off just accepting my body does not like the stuff much.

Treatment is giving up gluten, although some people also add vitamins (some sublingual/under tongue) since some can be low, and many use probiotics and supplements (like glutamine or papaya) to help in the digestive process. Many also end up with other issues like dairy, soy, corn or nightshade intolerances from their damaged intestines; some of these are permanent and others disappear after healing has advanced. (I personally have problems with milk.)

If you think you might want the celiac tests sometime in the future, it's probably best to do the test soon (after a few more weeks of a gluten filled diet) because many celiacs seem to get more sensitive the longer gluten has been out of their diets. After a few weeks gluten-free, I had a beer that was gluten-free to 3 parts per million and I ballooned up like a basketball and had a migraine for almost a week. That being said, if you feel comfortable following the gluten-free diet without a diagnosis, then go for it! :) Many people have doubts and feel the need to a firm diagnosis in order to be able to follow a strict gluten-free diet for life (I was one) but if you don't need it, kudos to you! :)

Good luck!

Share this post


Link to post
Share on other sites
Ads by Google:


Hi, there is no difference in treatment right now. Staying gluten-free is the only treatment for celiac at the moment.

Share this post


Link to post
Share on other sites

I really appreciate all the responses. I'm working through my second trial period of going gluten-free before I test my reaction to putting some gluten back in my system. I think one more round with similar results will be all the proof I need that my body is not fond of gluten. Hopefully it won't be as terrible as last time. But, I'll be glad to at least not be left wondering was it just a fluke.

Share this post


Link to post
Share on other sites


Ads by Google:


Let us know what happens! I'm thinking of doing this just to see if my continuing D is from accidental glutenings or something else. Thought it would help me know for sure what a glutening feels like. But I'm kinda scared to do it....

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,109
    • Total Posts
      939,709
  • Member Statistics

    • Total Members
      66,092
    • Most Online
      3,093

    Newest Member
    selectivefocus
    Joined
  • Popular Now

  • Topics

  • Posts

    • Then she has already been diagnosed. Dh equals celiac, although I never heard of a MILD case. It's usually quite extraordinarily disturbing.
    • I would stick to a very basic gluten-free diet as recommended by Dr. Fasano and other celiac experts.  It would not hurt for a short amount of time and might get him through his exams.   This is the study about dealing with Trace Amounts of Hidden Gluten (not saying your son has non-responsive celiac disease) Look at Table 1 found a few pages into the report.  The diet is basically, plain meats and fish, veggies, fruit, rice, etc.  — nothing really processed.  It is what I do when I get “glutened” until I recover.   https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3598839/  
    • Yes do follow up with testing, once confirmed we can help you along the road. Other intolerance and allergies are very common with this disease. Lactose is broken down by enzymes produced by the tips of your villi in your intestines, they are normally the most damaged and in some cases just gone. As this is a autoimmune disease it is VERY common to develop other issues, including other AI diseases. I developed a ton of food intolerance issues and some messed up allergies like corn.
      WE do suggest a whole foods diet starting off only. This boost healing, and makes seperationg food related issues easier. I can provide list of processed food alternatives....there is gluten-free versions of everything if you know how to track them down. But this is more then just a food change, it is a whole life style change. The transition is frustrating at first but becomes second nature with great benefits in the end.
    • Please  follow the advice of celiac experts and get your daughter tested before going gluten free,  Your doctor, like many, is woefully misinformed.  You should be tested too (all first degree relatives), even if symptom free, and especially since your mother was recently diagnosed.  Learn more about testing from the University of Chicago.  They are one of many excellent celiac centers, but I personally like their website.   http://www.cureceliacdisease.org/screening/ Celiacs can have no symptoms, have anemia, have GI issues or not....the list is endless.   https://www.ueg.eu/education/latest-news/article/article/mistakes-in-coeliac-disease-diagnosis-and-how-to-avoid-them/ Eating gluten free is not expensive.  Buying processed Gluten Free food often is expensive though.  Instead eat whole natural foods like beans and rice!   Cook like Ma Ingalls (Little House on the Prairie).    It is a learned craft.  Plus, you will save by not eating out!   I wish you all well!    
    • We in the UK he takes a pack lunch and have asked for a health plan so wait and see. Not easy when he taking his gcse and he wants to do well. Thanks for the advice 
  • Upcoming Events