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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Found Something For Inflammation
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IrishHeart    1,634

BTW, I'm sending her out to get it rather than getting it myself because we're two thousand miles apart. Just realized how horrible that sounded....

ya know, for a second there, I was thinkin...that's not like Bunzer bean to be such a beyotch making her arthritic mama go get it herself.

Good thing you cleared that up.

and hello, you silly pants--missed ya! ;)

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kareng    1,992

I got some and had a cup about an hour ago. Didn't taste good so I added honey and some lemon juice. Much bettter.

Just sitting here waiting for it to kick in! ...... How long does it take? Thought I would be cured by now! :P

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bartfull    565

The websites I looked at said not to drink more than one cup a day or you risk getting D. I would imagine that if you made it too strong, the same would apply. They said steep it for ten minutes.

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jerseyangel    409

I have been (since yesterday) steeping for 10 minutes, covering the top of the mug with a small plate. Seems to work well that way.

I also read that it could have a laxative effect if "taken excessively"-- whatever "excessively" means. If something had the potential to cause diarrhea, I will get it no question. I had one cup yesterday, no problem and one today, so far so good. Planning to drink one more after dinner and see how that goes.

Like Karen, still waiting to see any improvement to my arthritis and/or eczema.

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JNBunnie1    164

ya know, for a second there, I was thinkin...that's not like Bunzer bean to be such a beyotch making her arthritic mama go get it herself.

Good thing you cleared that up.

and hello, you silly pants--missed ya! ;)

Actually, my first thought was, 'I have to go buy some so I can mail it to her', then I realized exactly how stupid THAT was. Really.

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jerseyangel    409

Actually, my first thought was, 'I have to go buy some so I can mail it to her', then I realized exactly how stupid THAT was. Really.

But sweet :D

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AVR1962    88

I got some and had a cup about an hour ago. Didn't taste good so I added honey and some lemon juice. Much bettter.

Just sitting here waiting for it to kick in! ...... How long does it take? Thought I would be cured by now! :P

LOL! Wish cures were that fast ;-) I noticed a difference after a cup daily for a week. I gave some to a couple different friends a bit younger, nonceliac, dealing with an achy knee and another with heavy monthly female issues which this is supposed to help.....they steeped the tea for 5 minutes which I don't think I could have drank.....I steep 1-2 minutes as get gets too strong otherwise, at least for me. The friend with the achy knee said he noticed a difference.

It might not work for everyone.....I did try this a few months back becasue I had read about its anti-inflammatory benefits but at the time I was dealing with kidneys stones so I could not tell what was working and what was not. By taking the grains and sugars out of my diet it gave my body a chance to calm itself. I also went to all bottled water which relieved my issues with my kidneys and then I could tell the difference. Before it seemed like something was randomly attacking one part of my body then the next and I wondered what was going to be next.

I am pre-diabetic, meaning that my glucose levels have not gone over 200 on glucose tests but is higher than it should be. By taking grains and sugars out of my diet it got a grip on my glucose levels but I was still having aching in my fingers and in my feet, occasionally in my joints and I knew it was not from the rise or fall of my glucose levels. So I decided to try the tea again. I now have found my glucose levels are not an issue, I can have a little bit of grians and sugar.....I went to a birthday celebration yesterday, had some gluten-free pizza, gluten-free crackers (love my friends who go out of their way for me) and I even had a little bit of ice cream.....no inflammation today!!!!

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JNBunnie1    164

AVR, I can recommend a very good countertop water filter that will cost you less than $150 on the 'website that shall not be named' and will give you much better water than anything you can get bottled. The replacement filters are less than $100, and they last for a year with regular household use, including cooking. I have a new house with whole-house water filtration now, but I used this countertop unit for five years before that, and then made a gift of it to someone once I moved in this house. I've actually bought a few over the years to give to other people as housewarming gifts and the like, I really adore this unit. Please PM if you're interested, not sure if it's ok to promote brand names on the forum.

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Pegleg84    50

Ha! Nettles always remind me of stories about this Tibetan monk who meditated out in the woods for years with nothing to eat but nettles. He ate so much of them he turned green! Not sure how much you'd have to drink for that to happen...

I am totally trying this though. I tend to get achy after getting cc'd.

And AVR, the ringing in your ears went away?? Seriously?! I've had tinnitus in one ear for a good 2 years now and have just gotten used to ignoring it. Also, my eyes get fuzzy quite frequently as well. My vision's pretty cruddy as it is, but gluten (and dairy and soy) definitely don't help.

Yes, lets compare notes in a while.

Peg

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kareng    1,992

AVR, I can recommend a very good countertop water filter that will cost you less than $150 on the 'website that shall not be named' and will give you much better water than anything you can get bottled. The replacement filters are less than $100, and they last for a year with regular household use, including cooking. I have a new house with whole-house water filtration now, but I used this countertop unit for five years before that, and then made a gift of it to someone once I moved in this house. I've actually bought a few over the years to give to other people as housewarming gifts and the like, I really adore this unit. Please PM if you're interested, not sure if it's ok to promote brand names on the forum.

Its Ok to say brands unless you are the owner of the company. That would make it advertising.

Had my second cup of nettles. Still stiff and achy but it doesn't taste too bad if you add lemon or orange juice and some sweetener. Hope that doesnt negate its magic powers? :)

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GottaSki    459

Lil' Guinea Pig #10 reporting in. Just drank the first cup. Let me preface this by saying I don't like tea - not ever - not iced, sweet, hot, green, nada - I do drink ginger tea on occasion to help settle my stomach, but not happily.

I liked the Nettle Tea - plain without sweetener - I'm amazed - maybe my body really wants it?

I've been off all supplements for almost two weeks because of a severe reaction, currently have joint pain, bloat from nearly everything I ingest and recent endo showed intestinal inflammation - so I hope to be a good test subject.

Cheers!

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AVR1962    88

Ha! Nettles always remind me of stories about this Tibetan monk who meditated out in the woods for years with nothing to eat but nettles. He ate so much of them he turned green! Not sure how much you'd have to drink for that to happen...

I am totally trying this though. I tend to get achy after getting cc'd.

And AVR, the ringing in your ears went away?? Seriously?! I've had tinnitus in one ear for a good 2 years now and have just gotten used to ignoring it. Also, my eyes get fuzzy quite frequently as well. My vision's pretty cruddy as it is, but gluten (and dairy and soy) definitely don't help.

Yes, lets compare notes in a while.

Peg

Peg, are you eating any grains or sugar right now? I made a connection, it took me 1 1/2 years but what I found is that if I ate grains (rice and corn) or sugar I would get buzzing in my ears. I had it nonstop and I tried going off eggs, avoiding soy, I was dairy-free for a year and it did not change anything for me. I wasn't getting completely better and then I started having trouble with my glucose levels so I took all grain and suagr out of my diet and the buzzing in my ears stopped. As an experiment I would eat grain or sugar and it was definately (at least for me) linked to the sugar and grain. I was having trouble with inflammation and I would get this stiff feeling in my fingers and feet, achiness in my elbows so I tried the tea. I have really enjoyed the results, and now I can have a little bit (okay, I had 4 small slices of gluten-free pizza tonight, so maybe not small amounts) of grains and sugar and the buzzing has not come back. I don't know if I was able to get the inflammation down to a point that body could manage it or what. Also, I was still having trouble getting fatigued and I have found this tea gives me energy again. I only drink a cup every othr day right now and am doing real well. I read that the tea is good for the pancreas and perhaps this is what has stopped the rise in my blood sugar? I really don't know. I just know it is working for me.

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AVR1962    88

Lil' Guinea Pig #10 reporting in. Just drank the first cup. Let me preface this by saying I don't like tea - not ever - not iced, sweet, hot, green, nada - I do drink ginger tea on occasion to help settle my stomach, but not happily.

I liked the Nettle Tea - plain without sweetener - I'm amazed - maybe my body really wants it?

I've been off all supplements for almost two weeks because of a severe reaction, currently have joint pain, bloat from nearly everything I ingest and recent endo showed intestinal inflammation - so I hope to be a good test subject.

Cheers!

GottaSki, let us know how it works for you, that joint pain is no fun!

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UKGail    18

Hi everyone. I've only just picked up on this thread as I haven't been active for a while. I'll be shortly heading to the store to pick up some nettle tea to test out...

Inflammation is definitely a problem for me. Before I went gluten free I had no celiac antibodies, but did have a very high ESR (100), and a few other blood abnormalities including a highish TSH. Going gluten free brought the ESR and TSH down to decent levels, and the worst of my symptoms (frequent episodes of migraine, vomiting and D, skin rashes, itchy and burning skin) improved, some quickly and some gradually over about 6 months. However I did still have lingering abdominal pain, head and muscle aches, fatigue and brain fog. An endoscopy after 6 months on the diet confirmed ongoing gut inflammation.

8 months further on with these dragging symptoms, despite eating a strict diet mainly free of unprocessed foods I finally understood a way to manage the problems (although I don't really understand why this should be so). I realised that the brain fog was caused by the paracetamol and codiene painkillers I was frequently using to control the head and body pains (I had not been taking more than the allowed daily dose, but did take them on most days). My brain fog cleared within about two weeks of stopping the medication, and the headaches and body pains also reduced significantly - a sure sign of their overuse!

Once that was out of the way, I could see that the headaches or body aches started only if I ate grains, with rice being the major culprit. Going grain free (with a little corn now and again) has stopped the headaches and body pains immediately, my gut was more comfortable and behaved better, and within a few weeks my energy levels soared. Evidence of finally getting the remaining inflammation under control.

Finally, for me, the inflammation may be allergy-related in some way. Since ditching the painkillers and the rice, I have discovered that any headache or gut pain is alleviated by taking an anti-histamine. It doesn't seem to matter which one, I take either Zantac (and H2) or Piriton (an H1). They both work extremely well for me. I would be really interested to hear if this works for anyone else.

Thanks for reading. I'm now off to buy some nettle tea!

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JNBunnie1    164

Its Ok to say brands unless you are the owner of the company. That would make it advertising.

Had my second cup of nettles. Still stiff and achy but it doesn't taste too bad if you add lemon or orange juice and some sweetener. Hope that doesnt negate its magic powers? :)

Thanks, K.

In that case, I was referring to the New Wave Enviro 10-stage countertop water filter. I LURVE that thing! You can get it in a store, my local health food store has it, but you'll get it a lot cheaper on The Website That Shall Not Be Named.

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Pegleg84    50

This risks going off into another subject, but thanks AVR! The tinnitus I can handle, but I was having inner ear problems (so I thought) last year and went to specialists and tests and the whole bit and they found nada. So I cut back on salt, which helped, and eliminated dairy, which helped more, and then (ergh) took out soy and I rarely get the dizzies/sinus issues anymore. I can handle the ringing, but if I ever decide to cut out grains for other reasons, I'll look forward to non-ringy ear and a potential benefit.

Still need nettle tea. To the health food store tonight!

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GottaSki    459

This risks going off into another subject, but thanks AVR! The tinnitus I can handle, but I was having inner ear problems (so I thought) last year and went to specialists and tests and the whole bit and they found nada. So I cut back on salt, which helped, and eliminated dairy, which helped more, and then (ergh) took out soy and I rarely get the dizzies/sinus issues anymore. I can handle the ringing, but if I ever decide to cut out grains for other reasons, I'll look forward to non-ringy ear and a potential benefit.

Still need nettle tea. To the health food store tonight!

Hey Peg-

I've had lifelong inner ear problems. Had significant hearing loss in my left ear by 7 years of age. Had tubes as a child, an inner ear surgery at 18 to replace part of an inner ear bone (this improved my hearing dramatically in the operating room, but the anesthesia caused severe nausea - threw up after the surgery and lost any improvement). By the time I was dx'd with Celiac Disease at 43 my left ear was about 75% deaf (could hear some sound, but not distinguish words, etc).

At about a year gluten-free my hearing improved dramatically! Since then my left ear continues to get stuffy, itchy and ringing that correspond to my other symptom flares caused by food intolerance, but my improved hearing has remained. My daughter has this same condition in only in her right ear - her hearing also improved at nearly two years gluten-free.

I am very interested to see if nettle tea stops the ringing in my silly left ear.

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nvsmom    332

Huh, how did I miss this post? I've been living on the forum while hiding from house work lately... can't believe I missed a post. LOL

Hmm, so ringing ears isn't normal, eh? Huh, well there's another thing to keep an eye on. :rolleyes:

I'll buy my tea tomorrow. ;)

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GottaSki    459

First - far from scientific observation.

I was accidentally glutened. My symptoms have been far less severe than with any past experience.

Can't prove, nor disprove the tea as the reason - but I'm going to keep drinking it.

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JNBunnie1    164

Last time I got glutened I picked up some digestive enzymes, detox tea, and some activated charcoal. All that seemed to work really well to reduce symptoms, I'll be picking up some nettle tea anyway, but that's a good thing to know! I wonder if there were nettles in that detox tea, I had only looked at the dandelion....

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