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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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AVR1962

Found Something For Inflammation

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I know....sigh, but I do have the GEM of a lifetime GI doc in my corner now!

and even HE said it was okay to "indulge in moderation" and it was better than taking NSAIDS, muscle relaxers or narcotic pain meds. ;)

Seriously, going out to get the Tart Cherry juice tomorrow. Patti's idea is a good one.

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I was thinking of putting it in the tea or lemonade or lime soda? Perhaps a cherry margarita!

Have a "check-up" tomorrow. Not sure I will mention the tea. She may be pissed that I had the lab tech change what lab tests I got. :ph34r:

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I was thinking of putting it in the tea or lemonade or lime soda? Perhaps a cherry margarita!

Have a "check-up" tomorrow. Not sure I will mention the tea. She may be pissed that I had the lab tech change what lab tests I got. :ph34r:

Good luck, K. Hope all's well.

No need to mention drinking herbal tea--- unless it is contraindicated with a prescription drug. For example, green tea can cause some issues.

"Do not use green tea without first talking to your doctor if you have

heart problems or high blood pressure,

kidney disease,

an overactive thyroid (hyperthyroidism),

an anxiety or nervous disorder, or

a bleeding or blood clotting disorder or if you take a blood thinner such as warfarin (Coumadin).

Green tea contains a large amount of caffeine and may be problematic if used by people with any of the conditions listed above. You may not be able to use green tea, or your doctor or health care provider may recommend a lower dose or special monitoring."

of course, there are these warnings too:

"Because stinging nettles can produce side effects and interact with other drugs and natural treatments, consult your healthcare practitioner before using it.

Learn more: http://www.naturalnews.com/036080_stinging_nettles_remedies_arthritis.html#ixzz2AAXviF6O

hmmm.... cherry margarita..

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Good luck, K. Hope all's well. (No need to mention drinking herbal tea unless it is contraindicated with a prescription drug. For example, green tea can cause some issues).

hmmm. cherry margarita..

If I have a perscription, I would have to figure that out anyway. A doc wouldn't know.

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I still haven't tried it yet. I am waiting a bit to see if the nettle tea drinkers all mysteriously stop posting. Total thread silence could be a warning better than on a pill bottle. :blink::unsure::ph34r:

As long as you all are self-experimenting like Halloween mad scientists, you might want to try some rodiola rosea too. It has a rep for making one feel more energetic and positive. Or mullein tea, which has a rep for, dang I think it was GI symptom relief or something like that.

Luckily we all live far enough away from each other that a self sustaining fission reaction isn't likely to develop. I hope. :blink:

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If I have a perscription, I would have to figure that out anyway. A doc wouldn't know.

exactly.

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As long as you all are self-experimenting like Halloween mad scientists, you might want to try some rodiola rosea too.

I did try that, and it gave me insomnia. It is supposed to be very good, though--unfortunately I had that side effect.

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As long as you all are self-experimenting like Halloween mad scientists

I did everything suggested by an ND and an "integrative MD" for 2 years pre-DX. THAT baloney was "experimenting like a Mad scientist" <_<

Drinking this one herbal tea (that has minimal side effects) is easily controlled and monitored.

"stinging nettle has possible side effects, including retaining water and upsetting your stomach. Avoid stinging nettle if you are pregnant, as it can possibly cause a miscarriage. It can also change a woman's menstrual cycle."

I'm not seeing how any of these is an issue for me.

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"stinging nettle has possible side effects, including retaining water"

LOL...the reading I did before I joined this experiment said nettle tea is used to remedy water retention :P

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LOL...the reading I did before I joined this experiment said nettle tea is used to remedy water retention :P

Sounds just like all the other medical advice we receive - what's true yesterday is false tomorrow!! I wonder if doctors ever take true/false tests on exams?? T'would be tricky. :blink: Of course, they don't study much of this stuff. :D

ETA: I once took a class where I had to put in my notes "IB" for "instructor believes" so I could get the T/F questions right :lol:

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Something else that can be tried for inflammation - the thread is so long I don't know if it has already been mentioned -- but I found this on another forum I frequent:

http://www.afibbers.net/forum/read.php?9,133839,133915#msg-133915

Jackie Burgess' recipe for ginger tea:

"Be sure you buy organic ginger root...and I'd avoid anything grown in China even if marked organic.

Slice into "coins" about 2 - 3 inches of organic ginger root which has been thoroughly scrubbed and washed.

Add that to a quart of purified (non-tap) water and simmer just under boiling for about 30 minutes.

It will continue to steep and the flavor will intensify as it sits in the pan.

I add a 3"stick of cinnamon along with the ginger root.

Eventually, the cinnamon adds a dark color to the tea.

Sometimes I also add 3 - 4 whole cloves just for interest.

This is great either hot or iced. Store in the refrigerator. "

I have not tried this myself yet, but intend to. :)

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Shroom, that sounds delicious. Let us know if you try it. I'll bet it's good for a stomach ache too.

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I've used ginger tea for stomach aches since ginger ale stopped working for me...it works great :)

Haven't added cinnamon - but will do next time - thanks for sharing Neroli!

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I did try that, and it gave me insomnia. It is supposed to be very good, though--unfortunately I had that side effect.

Did that for me too Patti-cakes, insomnia city. This time I am going to try it every other day instead of daily. I ahve 700 MG capsules. Maybe every two days just to see what it does.

I did everything suggested by an ND and an "integrative MD" for 2 years pre-DX. THAT baloney was "experimenting like a Mad scientist" dry.gif

Drinking this one herbal tea (that has minimal side effects) is easily controlled and monitored.

"stinging nettle has possible side effects, including retaining water and upsetting your stomach. Avoid stinging nettle if you are pregnant, as it can possibly cause a miscarriage. It can also change a woman's menstrual cycle."

I'm not seeing how any of these is an issue for me.

Me too really,. stomach upset? I can't imagine that happening to any of us. Sounds wildly implausible. :D

I picked mullein today and am going to try making some tea with it. Just for the heck of it really. It is easy to find along roadways and such. It has very soft, velvety leaves. They say to put it in tea bag or cloth to filter out the fuzziness before drinking the tea. Or the fuzziness (hairs) can be irritating.

Has anyone tried Goat's rue? It is supposed to be good for blood sugar control and making milk flow in mommies. There is a commercial med made from Goat's Rue for controlling diabetes, I think it is called Metformin.

Goat's Rue on Wiki

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Hey Everyone,

Ginger tea is the best! I drink it with lemon and honey.

About the nettle - I don't know if you can find it in the US but when I got bored of the taste of nettle tea, I started to take it in pill form..

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Here's my unscientific results so far:

I have had 1 cup a day (from tea bags). I was noticing that some stiffness in joints seemed less. Yesterday, I didn't have any. Woke up several times with pain in hips and shoulders. My feet and fingers are stiff this morning.

I'm drinking some right now!

YAY!!!!!! My daughter also has trouble with inflammation especially from corn. Recently she ate something with corn, started feeling the inflammation, drank the nettle tea and it went away!!!

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Trying to follow the thread best I could. It's good to hear some of you all have had good results. I ran out of my initial box I bought from the US and found a couple diffrent types here in Germany. Neither were as strong or as effective. My husband noticed the same, his cramps in the arches of his feet came back. So I have more from the US on order. Glad some of you are getting some relief from symptoms, and I will try the ginger tea myself.

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Hi everyone. I've only just picked up on this thread as I haven't been active for a while. I'll be shortly heading to the store to pick up some nettle tea to test out...

Inflammation is definitely a problem for me. Before I went gluten free I had no celiac antibodies, but did have a very high ESR (100), and a few other blood abnormalities including a highish TSH. Going gluten free brought the ESR and TSH down to decent levels, and the worst of my symptoms (frequent episodes of migraine, vomiting and D, skin rashes, itchy and burning skin) improved, some quickly and some gradually over about 6 months. However I did still have lingering abdominal pain, head and muscle aches, fatigue and brain fog. An endoscopy after 6 months on the diet confirmed ongoing gut inflammation.

8 months further on with these dragging symptoms, despite eating a strict diet mainly free of unprocessed foods I finally understood a way to manage the problems (although I don't really understand why this should be so). I realised that the brain fog was caused by the paracetamol and codiene painkillers I was frequently using to control the head and body pains (I had not been taking more than the allowed daily dose, but did take them on most days). My brain fog cleared within about two weeks of stopping the medication, and the headaches and body pains also reduced significantly - a sure sign of their overuse!

Once that was out of the way, I could see that the headaches or body aches started only if I ate grains, with rice being the major culprit. Going grain free (with a little corn now and again) has stopped the headaches and body pains immediately, my gut was more comfortable and behaved better, and within a few weeks my energy levels soared. Evidence of finally getting the remaining inflammation under control.

Finally, for me, the inflammation may be allergy-related in some way. Since ditching the painkillers and the rice, I have discovered that any headache or gut pain is alleviated by taking an anti-histamine. It doesn't seem to matter which one, I take either Zantac (and H2) or Piriton (an H1). They both work extremely well for me. I would be really interested to hear if this works for anyone else.

Thanks for reading. I'm now off to buy some nettle tea!

Antihistimines can suppress AI symptoms.

It could also be an allergy...

Antihistimines give me relief after a glutening, and I don't appear to have an allergy to glutenous grains.

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No supplements, teas, or herbs (or making sacrifices to the gods) seem to help me.

I have decided to just do it full throttle --after doing is "sort of", I went full paleo 4 days ago.

No grains, dairy, legumes, sugar , soy (those last three were easy--I don't eat soy at all, sugar whips me up like a 3 year old

on Christmas Eve and causes insomnia and except for chili and soups, beans are not a big part of my diet. Hate peas. Peanuts are not a big deal to me either). Cheese, rice, white potatoes--these are tough to sacrifice. sigh.

But anyone who has gone full paleo --AVR included--has reported a reduction in inflammation, so I have to do it. The pain is maddening.

I'll keep you posted. (..........but cavemen drank gin, right? :unsure: )

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Well IH, I am sure cavemen must have at least eaten juniper berries, so maybe that counts?

I had to give up alcohol (and survived). Gin was my fave too.

Well done on going paleo, let us know how it goes. I am thinking about it...

Mw

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Well IH, I am sure cavemen must have at least eaten juniper berries, so maybe that counts?

I had to give up alcohol (and survived). Gin was my fave too.

Well done on going paleo, let us know how it goes. I am thinking about it...

Mw

I can give it up, no prob.....I had to do it for almost 3 years when I was sick, but I am not going to like it much, I am sure. :lol:

yeah, Mw.... I used the juniper berry excuse in my head, then I tried potato vodka yesterday (it's a tuber, right), but let's face it, I'm just making excuses.... and come off sounding like a boozy tart at this point.

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I keep doing the on again off again tea. I get out my pot, get my nettles in it and pour in the water. I'll have a cup and have a cup left for the next day to warm up. Then, I'll forget for a day or two to make some. I'm so absent minded lately. Of course, now that I pretty much can't eat anything maybe I'll just make the tea and then eat the warm soupy nettles. At least I can have those.

Some days I'm less achy, some days more. I don't know if it helps or not, I suppose maybe I should try harder to drink it every day.

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I LOVE Nettle!! I drink it in an infusion. I get the leaves from a local herbalist, then dump about half a cup in a mason jar, pour boiling water over it, then let it steep in the fridge for at least 24 hours. Then I strain out the leaves, and drink a gulp of it every day. Infusions are more potent than teas. It always makes me feel great! :)

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. Then, I'll forget for a day or two to make some. I'm so absent minded lately. Of course, now that I pretty much can't eat anything .

Oh honey! you were accidentally glutened recently, right? You are not absent-minded! it's just damn "gluten head" I am so sorry, Addy, ((hugs))

Some people think drinking this tea helps with that gluten head.

I usually double my probiotics, drink extra water to hydrate, take digestive enzymes with meals for a few days, some B complex with coenzymes (Country Life is gluten-free) and wait for it to pass. Hope you feel better soon!

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