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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Want To Lose Weight, What Diet Is Best?
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16 posts in this topic

Hi, I was diagnosed in Jan 2012 with celiac disease and then in June 2012 I learned I was diabetic. This has lead to an internal struggle like you would not believe. I did well initially on the gluten-free diet. I experiment with a few new recipes and had some fails and some success. But then with the new diabetic diagnosis just through me for a loop. I had several mishaps with gluten in the process of trying to watch my sugar and carbs. I have finally wrangled my gluten binges (I hope!) but really have to get some weight gone to aid my diabetes.

Any suggestions of diet plans or guideline? I know it will be a lifelong change of habit but it is very difficult learning to cope with diet restrictions. I really am not a huge fan of gluten-free bread or pasta. Maybe managing a meal once or twice a month. So to ease my stress I dropped it from my diet. I eat a higher protein breakfast usually consisting of extra lean ham and eggs. My lunch is usually protein based too, maybe a chicken salad or bean burrito. My supper is family oriented and more difficult due to time restaints. I am trying to make meal that are done in 30 minutes or less.

I would love some suggestions. Is a lower carb/higher protein diet okay? My dietician suggested I limit my carbs to 45 per meal unless I was active in which case I could increase it to 60 per meal. I am consuming less per meal but I still have my fruit and milk too. I also eat a lot of almonds and peanuts (in shell).

I am not losing weight though. I started back in Jan on a gluten-free diet and up to Aug I had only gained 4 pounds. My first week on my lower carb diet I lost 5 but the following week gained back 3. So it would seem I am stable, but I need to lose at least 50 pounds.

HELP!

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Your body has been thru a lot! It sounds like you are on the right track for eating the proper foods to allow for weight loss. Often the newly gluten-free body will not lose weight because it is still making up for the lack of nutrients it has experienced during undiagnosed Celiac Disease by remaining in starvation mode. Once your body heals and is properly absorbing nutrients your weight may regulate itself. Until then, try to keep your calories to 1500 a day and exercise - even brief walks every day.

I have used caloriecount.com - to monitor that I was getting enough of every nutrient, but it makes it very easy to monitor caloric, protein, carb and fat intake.

Hang in there :)

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Been diabetic for awhile, just discovered the gluten issue (no diagnosis at this point). The best advice I can give is to calories in versus calories out (1500 is a good number or do a web search for calorie need calculator). Really measure/weigh your food. Most normal portions are really two portions. Nuts can run up calorie counts quickly

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In mid Aug. I started following a "primal" diet (check out Marksdailyapple.com). I have lost about 10 pounds in what has felt like a rather "effortless" diet. I have not been able to drop a pound for years. I've been gluten free since Feb. and still lost no weight. I have found primal very easy to follow and very satisfying. What I like is that I can keep meals simple. Basically, I eat a protein and whatever veggies I want. Tonight was chicken wings with a big salad. Lunch was salmon with a side of asparagus and zucchini. All quick and easy to prepare. I actually had to go buy a belt because my pants are too loose! Love that problem!!!

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I'm gluten-free, and we recently found out that my husband had diabetes, so I can sympathize with the lack of food options. The first thing we did was go to the library and look for cook books that would work for both of us. We found tons of gluten free/diabetic options in these two books:

The All-Natural Diabetes Cookbook

Real Mexican Food for People with Diabetes

We spend a great deal of the weekend cooking and preparing lunches and dinners for the busy week, and either put them in containers in the fridge, or freeze them.

You will lose the weight in time. It took a few months being gluten free until my body stabilized, but now I'm losing weight very quickly (about 30 pounds in the last 3 and a half months).

I also can't stress how important exercise is, especially with diabetes. Even walking for 15 minutes per day will help regulate your blood sugar. It will also give your metabolism a kick, which will speed up the process.

EDIT: Sorry those links don't work. They were just links to books on Amazon, but apparently the forum views them as spam.

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The primal diet sounds interesting. I have already cut out carbs from my breakfast and very low carb for my lunch. How do sauces, dressings, and marinades fit into this plan? And dairy? I love my milk. Would I have to give that up entirely? Soda, yeah, wouldn't miss it. Neither the bread or pasta. How about rice, potatoes or corn?

Would love some more input on this. I am already modifying my diet to lower my carbs so it wouldn't be too far of a stretch to cut out a little more.

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This product may not be available in the US or Canada but it's a very interesting concept for losing weight.

Both Gluten Free and with Zero Carbohydrates it's ideal for Diabetics and weight loss.

http://www.eatwater.ie/products.php#product

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I eat low carb paleo, pretty much veges, meat, nuts and some fruit. Very little processed food. I'm experimenting with giving up dairy and so far I'm feeling really good without it (boo!). I do still eat butter.

The amount of protein required doesn't really change regardless of what type of diet you eat, so low carb means eating higher fat which is weird to get your head around at first but is a really nice way of living! I keep track of everything I eat using myfitnesspal and I'm on about 1700-1800 calories per day, approx 15% carbs, 20% protein and 65% fat. I've been losing weight steadily.

Check out Mark's Daily Apple for info about Primal (which is pretty much paleo plus dairy). He has a great blog, tonnes of well written info. Lots of people still enjoy good quality dairy.

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How about rice, potatoes or corn?

Rice is probably the worst thing a diabetic can eat. As my husband's doctor said "Eating plain white sugar is better for a diabetic than eating white rice." It spikes blood sugar very quickly. Potatoes and corn should be eaten in moderation.

Paying attention to the glycemic index of each food is so important, and it doesn't always make a lot of sense. White bread is bad, but whole grain bread isn't that bad. Apples are good, but melon is very bad.

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a few years prior to celiac diagnosis, i went on weight watchers. the things that i really liked about it are:

- it encourages you to make choices, and helps you to make smart choices (for example, if i have this small bag of chips, then it means i can't have as much for dinner. if i have an apple or veggies instead, then i can have the big dinner i was planning on. sometimes i would opt for the bag of chips, and have the smaller dinner...)

- if you exercise a lot, you can eat more (makes sense based on calories in versus calories out)

- you can do it all on-line (no meetings/weigh-ins necessary)

- you can eat whatever food you want to - but if you choose bad for you food, you need to make up for it at other times. so, if you know you are going to a big event on the weekend, then you can eat less during the week, to allow you more calories for the party

- it encourages healthy weight loss (no more than 2 lb per week)

i have just started it up again this week, because i have started to put on a few pounds. i don't see any issues following it with gluten-free diet. i am not sure how well it works for diabetic diet, but i would think that it would adapt well there too...

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I have been gluten free for almost six years. Last May I started on weight Watchers and have lost 34 pounds so far. I don't see why there would be a conflict with the diabetic diet. So many things ar ealike on the two... portion control, healthy choices, important exercise. The Weight Watcher diet is based on your learning to make good choices, which is also what you face with the diabetes.

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Prior to lung surgery and now the tummy issues. I did calories in vs out. Now once I feel better I'll be doing it again with gluten and diabetic restrictions :)

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My boyfriend is doing advocare but I can't afford all the supplements and stuff so I'm just doing the diet plan with him. I've lost 12# this month and it's really easy and REALLY healthy. If you google the advocare 21 day challenge it should give you the do's and don'ts

Cravings are gone and I'm not really that hungry anymore.

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Newbie here, but a great tool to determine how many calories you can eat each day is the BMR formula for women. The formula is Women: BMR = 655 + ( 4.35 x weight in pounds ) + ( 4.7 x height in inches ) - ( 4.7 x age in years ). This is just a basic guideline. The number that you get from that formula is the amount of calories you can eat each day to MAINTAIN your current weight. That is if you lay in bed all day and eat that exact number of calories, you'll gain no weight. If you want to lose weight, subtract calories from that number and you'll be well on your way :).

All The Best,

Edward

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Hi, I was diagnosed in Jan 2012 with celiac disease and then in June 2012 I learned I was diabetic. This has lead to an internal struggle like you would not believe. I did well initially on the gluten-free diet. I experiment with a few new recipes and had some fails and some success. But then with the new diabetic diagnosis just through me for a loop. I had several mishaps with gluten in the process of trying to watch my sugar and carbs. I have finally wrangled my gluten binges (I hope!) but really have to get some weight gone to aid my diabetes.

Any suggestions of diet plans or guideline? I know it will be a lifelong change of habit but it is very difficult learning to cope with diet restrictions. I really am not a huge fan of gluten-free bread or pasta. Maybe managing a meal once or twice a month. So to ease my stress I dropped it from my diet. I eat a higher protein breakfast usually consisting of extra lean ham and eggs. My lunch is usually protein based too, maybe a chicken salad or bean burrito. My supper is family oriented and more difficult due to time restaints. I am trying to make meal that are done in 30 minutes or less.

I would love some suggestions. Is a lower carb/higher protein diet okay? My dietician suggested I limit my carbs to 45 per meal unless I was active in which case I could increase it to 60 per meal. I am consuming less per meal but I still have my fruit and milk too. I also eat a lot of almonds and peanuts (in shell).

I am not losing weight though. I started back in Jan on a gluten-free diet and up to Aug I had only gained 4 pounds. My first week on my lower carb diet I lost 5 but the following week gained back 3. So it would seem I am stable, but I need to lose at least 50 pounds.

HELP!

I am betting that portion control is your biggest issue, invest in a good scale.

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My daughter did well with South Beach for a while. Sadly her weight loss has stalled but I think she is eating too much of some things. Particularly applesauce!

The first two weeks are mostly low carb and then you add in good carbs, slowly. Such as brown rice, quinoa and sweet potatoes. You can also have gluten-free oats so long as they are not the quick cooking kind. You add fruits back in too. So that you are having 3 carb servings and 3 fruit servings daily. You eat 3 meals and 2 snacks each day. For some reason, dried beans can be eaten freely even during the first two weeks.

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    • Yeah. I went off gluten, doing Whole30 for 2 months. Then found out it was a mistake. Oops. So, I'm back on gluten and have a GI appointment at the end of June. 3 weeks so far. :/  It is easier than it was at first. I had a headache for 2 weeks straight. Thankfully that has passed. My symptoms are more constant and dull now instead of extreme. How much gluten are you eating? I started at just 1 slice of bread, but have been trying to up it, since Google seems to be mixed on how much is necessary. 
    • Thank you, again, for the support and help! The suggestion of sleep and lots of water and discussion the next day seemed to help a lot. 
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But I want to say why while you so want it to be "Celiac" and not the "C" word I think Pellagra should be considered as a differential diagnosis. I say this and repeat it to those who will listen.  Niacinamide helped me. This article on celiac.com explains why this might be so https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html and if taking a b-complex 2 to 3 a day (and Niacinamide) for a couple months greatly alleviates many of your GI problems then you also  have had pellagra co-morbid and the doctor's don't recognize it in a clinical setting today .  . .  mainly because they don't know to look for it any more today. I wrote about how to take niacinamide in my blog post about this topic so I wouldn't have to retype it several times. I want to quote from the discussions section the heart of most good research from the American Journal of Clinical Nutrition research article linked in my posterboy blog thread about how to take niacinamide and why you would want too Faq. poster here again for those who want to do the deep research from their discussion section. http://ajcn.nutrition.org/content/85/1/218.full "Random spot urine sampling, together with the measurement of 1-MN and 2-PYR concentrations, has been suggested as an alternative because it avoids these issues and would provide a guide to status (22). However, the ratio of these metabolites has been shown to vary according to the time after the last meal because they are sequential intermediates on the same catabolic pathway (21). This makes the ratio an intrinsically unstable variable for use in population surveys; in the present study we chose to use cutoffs previously established for the excretion of individual metabolites expressed relative to creatinine. The subjects whose excretion fell below the established cutoffs for either metabolite were considered to be deficient." A little technical but essentially we soo need b-vitamins that even if you have a test for low vitamin b-3 the amount of the b-3 in your meal (f you have not fasted before the test) can cause us to test in a low normal range thus making taking of the b-vitamin a self test of cause and effect. Did you get better after taking Niacinamide then if taking Niacinamide helped your GI problems you were low in Niacinamide. This is typically a 24 hour test and most people don't fast 24 hours before going to the doctor and will often fail this test since our body has absorbed enough from our food to help us pass the thresh hold set at the minimum level. Here is why it is good to take a b-complex with Niacin/niacinamide because it interacts with other nutrients. https://www.ncbi.nlm.nih.gov/pubmed/3804611/ including b-6 which is one of the metabolites measured to determine a pellagra diagnosis. see this mdguidelines link that summarizes this well. http://www.mdguidelines.com/pellagra where they say  quoting there treatment section "Treatment consists of high oral doses of niacinamide, a form of niacin. Usually, supplements of other B-vitamins are also given because many individuals with pellagra also have low levels of B1, B2, B6, and pantothenic acid." and possibly Zinc if the other research is correct. ***** this is not medical advice just my research on the topic and experience with taking Niacinamide to treat many of my GI problems. Prousky wrote about this 15+ years ago and still people are not aware of this fact that Niacinamide treats digestive problems. http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm and if they are are aware of it are they are slow to accept that a vitamin could help with their GI problems. the gluten free works site also has a great article on this topic. http://glutenfreeworks.com/blog/2010/06/23/niacin-vitamin-b3-deficiency-in-celiac-disease/ while it is recognized that celiac's have many of these deficiency it is not well accepted/understood today low Niacinamide alone can treat many GI problems though the research is 15+ years old .  . . still people suffer. I don't want you to have pellagra or celiac but I want you to be aware there is a another valid differential diagnosis that can make sense for many people seeking to be diagnosed as a celaic disease patient. because people with pellagra often get better very quickly it is worth a try or least some of your time to research it some more. ***again this not medical advice.  Please check with your doctor about this possibility but don't be surprised if he doesn't know much about pellagra and probably less than he does about celiac disease. Dr. Heaney talks about why this is today on his blog about the 4 D's of Pellagra and why doctor's don't recognize it today in a clinical setting. http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/ good luck on your continued journey. 2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
    • You should probably have your doctor run a full blood panel for celiac if you want to be tested right, followed by a endoscope and biopsy. The blood test can give false negatives, and you have to be eating gluten for at least 12 weeks daily for the test. On the ferritin levels, mine was consistently 1-3 on every test even with 2x the normal dose of iron. I found I had to take it with vitamins C supplements to boost it a bit along with managing a few other nutrients that work in combination with it. Seems mine is in part due to constant intestinal inflammation caused by my UC and bleeding ulcers.
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