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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Challenge Before Endoscopy
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34 posts in this topic

I caused part of this myself by assuming when I was done with the blood test, I could stop eating the gluten. I didn't realize you needed to keep eating it for the endoscopy.

You caused nothing. There is no way you could have known not to remove gluten unless your doctor told you -- during my diagnosis process I found out the same way you did - someone on this board told me that I shouldn't remove gluten until all testing was complete, including endo. I was very thankful of that knowledge when I had my first appointment with my Celiac GI - he would have made me challenge for an additional six weeks.

I do regret that our discussion has complicated an already confusing diagnosis process - exactly what I try to avoid.

You have my apologies and sincere wishes that the your last days of ingesting gluten pass quickly - you are right that you already have the most important piece of info - you improve gluten-free. Obtaining a diagnosis can be important for many reasons, so stick it out if you can.

Take care :)

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You caused nothing. There is no way you could have known not to remove gluten unless your doctor told you -- during my diagnosis process I found out the same way you did - someone on this board told me that I shouldn't remove gluten until all testing was complete, including endo. I was very thankful of that knowledge when I had my first appointment with my Celiac GI - he would have made me challenge for an additional six weeks.

I do regret that our discussion has complicated an already confusing diagnosis process - exactly what I try to avoid.

You have my apologies and sincere wishes that the your last days of ingesting gluten pass quickly - you are right that you already have the most important piece of info - you improve gluten-free. Obtaining a diagnosis can be important for many reasons, so stick it out if you can.

Take care :)

Well said....and I agree completely. We are here for you and we are trying to give you our very best advice.

Best wishes to you.

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? :huh:

My comment that the two-challenge GI isn't what I would call a "good GI" is somehow seen as a personal attack on YOU? :rolleyes:

I find it hard to believe that any unbiased third-party observer would call that "picking a fight".

Boy, what a train wreck this thread has become! Ya know, Tom, Irish and GottaSki have offered up phenomenal advice to the OP and yet, you keep on

making attacks and challenging everything they say. I mean, really, what the hell is your problem? Who pee'd on your Cheerios this week? :blink:

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Well said....and I agree completely. We are here for you and we are trying to give your our very best advice.

Best wishes to you.

Thank you, IrishHeart. I appreciate the advice! I am learning a lot and everyone is making this process better -- I don't feel so alone. :)

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You caused nothing. There is no way you could have known not to remove gluten unless your doctor told you -- during my diagnosis process I found out the same way you did - someone on this board told me that I shouldn't remove gluten until all testing was complete, including endo. I was very thankful of that knowledge when I had my first appointment with my Celiac GI - he would have made me challenge for an additional six weeks.

I do regret that our discussion has complicated an already confusing diagnosis process - exactly what I try to avoid.

You have my apologies and sincere wishes that the your last days of ingesting gluten pass quickly - you are right that you already have the most important piece of info - you improve gluten-free. Obtaining a diagnosis can be important for many reasons, so stick it out if you can.

Take care :)

Thanks, Lisa! No apologies necessary. Not your fault that things went sideways here. I'm going to keep going and at this point I feel like I will make it. Just keeping my eye on the big goal. When I have my consultation with the GI, I'll tell her how hard this is on my system, and hopefully she'll schedule the endo quickly. I'm very grateful for all of your help!

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Thank you, IrishHeart. I appreciate the advice! I am learning a lot and everyone is making this process better -- I don't feel so alone. :)

You're not alone now. You have us. ;) We care. Keep us posted.

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I too am new to this. I have seen doctor after doctor begging for help. They all treated me for individual symptoms. I am 38 years old. I've been on rx for 8 years for reflux and have been diagnosed with Barrett's Esophagus. I have also been on rx for hypothyroidism for 3 years. I was extremely lethargic and seemingly depressed. So then came the rx for that. Next muscle and joint pain. Another pill for that. Then blood pressure, so another pill. All the while, of course I had stomach issues, and all of these symptoms are related. No one was looking at the big picture. I finally went to a chiropractor. She suggested that maybe I had a gluten allergy. I haven't eaten gluten since 9/11/12. I am like a new person. Energy, back to my happy self, no blood pressure issues, joint and muscle pain gone.

I saw my GI last week and asked for Celiac testing as they had never before done this with previous EGD's or colonoscopies. The blood work was negative. I asked to be scheduled for the EGD and biopsy b/c I feel certain its celiac. I even asked if I needed to "contaminate" myself between now and the biopsy bc I had read such. Doc said not necessary. But from all of your posts, I'm thinking he's way off!! My test is scheduled for 11/19. Since I've only been gluten-free for a little less than 2 months, what do you think? If I keep eating gluten until day of test, should my test be accurate?

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I saw my GI last week and asked for Celiac testing as they had never before done this with previous EGD's or colonoscopies. The blood work was negative. I asked to be for the EGD and biopsy b/c I feel certain its celiac. I even asked if I needed to "contaminate" myself between now and the biopsy bc I had read such. Doc said not necessary. But from all of your posts, I'm thinking he's way off!! My test is scheduled for 11/19. Since I've only been gluten-free for a little less than 2 months, what do you think? If I keep eating gluten until day of test, should my test be accurate?

My GI said that 2 pieces of bread a day for 3 weeks is enough. Although to be fair, I'm not crazy about her.

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    • Yes I made it  Welcome Lakme, you've found a great community and resource and I'm sure myself and Ennis won't be the only ones that recognise elements of our own experiences in your account.  In addition to the links Ennis sent you above and the stickied forum faq, I tried putting down some info that may be useful to people just realising they may have an issue with gluten, you can find it in this thread:    Reading your account you do tick a lot of the boxes and perhaps you have found the underlying cause. As that thread explains however, we can't diagnose you, if you want answers you'll need to be eating gluten in order for the tests to work. I know this is probably the last thing you want at the moment, but do read the thread and think about it. You're young and that diagnosis could prove useful for a number of reasons in the years ahead. The longer you leave it, the more of a challenge the gluten challenge may prove.  Out of interest how long since you started on the diet and have you noticed any change in symptoms? You may want to consider keeping a journal, it can be very difficult to track the neuro type symptoms in particular, a written account helps you do that and tracking progress can help with anxiety issues and depression too. I get these too. It's not formally diagnosed, like you I had a physical exam of the eye which failed to show anything, but I believe it to be optic neuritis. It's vastly improved since my diet change, as has an awful lot of other stuff.  So if you're celiac or non celiac gluten sensitive you will hopefully see similar improvements in the weeks, months and even years ahead.  I wish you the best of luck.  Matt
    • Lenbh- I was diagnosed last year and I have wondered that very question. Not too long ago (before kids) I traveled quite a bit. The idea of traveling now with celiac is a bit overwhelming.  I am pretty strict at home to avoid gluten and almost never eat in situations where CC is even possible- and as far as I can tell, I don't really get any symptoms of glutening.   I have definitely heard that it is easy to travel to Ireland with celiac. In fact, many restaurants have 2 menus - a regular and a coeliac. They often cook the food in a separate kitchen as well.  I can't wait to take my kids to Italy and am already thinking "how in the world will that ever work???" I have decided so far that I will do my best, not knowingly eat gluten, and try to buy food in stores or eat in "safe" restaurants -but understand that the more often I eat in restaurants, the more likely it is to be exposed to gluten. I guess it's just a risk I'm willing to take every once in a while so that I can explore the world with my kids.  And, yes, Gelato! At least twice a day while in Italy...:)
    • They do not work for prevention, they might help with getting over the gut pains. But will not stop the antibody reaction, or the damage. At $100+ a bottle your better off investing in Nima or EZ gluten strips and testing foods.   Other thoughts for quick alternatives. They sell microwave cookers out of plastic and silicon for eggs, bacon, etc. Might be worth getting and doing dishes that way. Steam bags and fresh veggies also to avoid pans and pots that could have issues. I been looking at MRE type stuff allergen friendly myself for trips and emergency's. Things get expensive at $6-7 a meal compared to bars or shakes.
    • I would not use these as prevention, but maybe they would help a post-glutening.  In my case, I travel with lactose tablets and digestive enzymes.    When glutened, I become lactose intolerant again.    Would hate to miss out on some gelato.  Do not forget any meds you normally take too.  
    • Thanks for the help! I didn't know Bacardi was gluten-free; that's a great option. 
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