• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:

    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:

       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Update, Survived 2 Weeks On Gluten For Test

Rate this topic

Recommended Posts

OMG, so I made it, I feel so alive but exhausted.

I was on gluten (eating breads, wheat, etc) to make sure I "symptomatic" for a revised Celiac profile and a Carcinoid 24hr urine test.

I haven't slept much for the past few days since the pain kept me up for so many nights and my stomach feels like the remains of a battle ground after a war. I feel like I had a 2 week long surgery on my stomach.

I'll update with the results as soon as I get them back from the lab, I really hope these tests are reliable since I know I was in pain during them.

  • Upvote 1

Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

Two weeks very well may not be long enough back on gluten to give you accurate results, especially if you were gluten free prior for any length of time. It is generally accepted that one has to consume gluten (appx. 2-3 slices of bread or equivilent per day) for 3 months. To have the best chance of accurate testing.

If you have now exhausted all your testing you are going to do, go back to eating gluten free if it makes you feel bad.

  • Upvote 4

Share this post

Link to post
Share on other sites


It is generally accepted that one has to consume gluten (appx. 2-3 slices of bread or equivilent per day) for 3 months.

No, it's not.

It's becoming rarer for Drs to use 3 months for the challenge.

New members have posted that theirs was 2 wks & was positive.

Study after study says 3 months is too long & that low-dose does the trick - 2-3 slices not required anymore either.



Share this post

Link to post
Share on other sites

If you reacted that strongly to the challenge you really do have your answer no matter what the test results are.

Share this post

Link to post
Share on other sites

I feel fairly confident about being on gluten for more than 2 weeks, but really, it was the most I could tolerate (pain wise).

I'm still waiting for the test results, I hope they find something because I really can't tolerate any more.

Since the tests I'm avoiding all breads for a while. It feels so good to be pain free for a while, I can finally sleep and think (slept for 14 hours last night).

Share this post

Link to post
Share on other sites
Ads by Google:

Good for you Sandra, your body has given you a pretty darn clear answer on gluten. If it makes you sick don't eat it. Easy advice, but learning to eat gluten-free can take some time. Remember your body trumps the medical tests. The tests can say you are a green man in the moon, but if your body doesn't like gluten, that is all you really need to know.

  • Upvote 2

Share this post

Link to post
Share on other sites

Good luck!

I managed 3 weeks gluten challenge, and it made me so ill I had to give up.

I think, like you, I had my answer before my results - no more gluten for me, not for anything...

Share this post

Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Popular Now

  • Topics

  • Posts

    • Hi ,  i was thinking that an intolerance and allergy were about the same thing really but sorry if im wrong. I know celiac is an autoimmune disease but was thinking that is different again, more serious and was erring on the side of my possible issue not being that but more of the intolerance type. Clearly im just guessing though and dont know about this stuff , hence the posting for advice, The problem with trying to get tested is that in bolivia there are very limited tests and doctors are unreliable so you have to rely on yourself to certain degree. I have heard of a test here and was planning on looking into that but it made sense to try to get some opinions and advice online first so Im in a better position to understand if any tests here are actually reliable enough. I dont think there is an issue with travel parasites etc as I have already taken the medications thats would kill them like a course of albendazol and praziquantel and that was after a 2 week anti parasite cleanse. That did feel like it got rid of anything and the only issue I have been left with is this pain as described.
    • Karen's point about parasites etc is a good one. They can cause a lot of symptoms similar to celiac /ncgs as you probably know.  At 11 I had my appendix removed following pain in the lower right side of my torso. On waking up the surgeon told me that it was actually ok, when I asked what caused the pain I think they said it was probably glandular - they didn't know. Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflammed tissues pressing on nerves. I would ask the Bolivian doctors if they can get any celiac blood testing done. The standard ttg may not be beyond their labs. can't hurt to ask? Give your diet my guess is you've had a lot of gluten for a long time. If its an issue for you expect a bumpy ride when removing it.  Best of luck!  
    • You can supplement if you want to.  IF you are low on iron or vitamin D - then some vitamins might be helpful.   The treatment for Celiac disease is a strict gluten free diet.  Some people need to cut out lactose for a few months, too.  The villi that are damaged in Celiac are the part that helps you digest lactose.  So, until they are healed, it might help to skip milk , cream, etc.     http://www.cureceliacdisease.org/faq/are-there-vitamins-created-specifically-for-nutrient-deficiencies-in-celiac-patients-2/  
    • First - there is no such thing as a "gluten allergy".  Celiac is an autoimmune disease.  Just so you understand. It could be Celiac or a different gluten intolerance.  I am guessing you aren't going to get tested for Celiac disease.  IF it were me, I would be more concerned that maybe there is still some sort of infection or parasite from the places you have been.  I think I would try to get a good work-up for that first.
    • Hello, I've just been diagnosed with celiac.  I have gone gluten free, but am wondering what protocol to use to heal the damage to my gut?  Any suggestions on what might work.   Thank you!
  • Upcoming Events