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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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pricklypear1971

Anecdotal But Interesting: Doctor Reviewed My Rash

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I'm just tossing this out there, you DH'ers will understand why.

Took my son to a Pediatric GI yesterday. He reviewed his labs (showing two sets of negative celiac blood tests) and we discussed our concerns about son's gi troubles.

I told him we were having him tested because of a lifetime of issues, and I was recently dx'ed Celiac.

He listened and then asked me a few questions about my dx process. I told him it was complicated, that I have dh (and that's what lead me down the Celiac path). I ended up telling him I was never biopsied (skin), or scoped, or given blood work. He understood my doctors failed to catch it, and I had the steroid use that would interfere with testing, and my dx was basically process of elimination and reaction to gluten-free and iodine (rash).

I then showed him pics of my rash (iphone). He did NOT say "that's not dh!". He accepted everything I told him. So, I had a doctor (who is familiar enough with Celiac he's starting a study about Celiacs going back on gluten - no, I did not volunteer) not pooh-pah my rash as DH.

Not much, but a step in the right direction.

And yes, son had abdominal xray (constipation) and a third Celiac panel (doc wanted to run it at a different lab just to see if it differs). Endoscopy in the next few weeks to look for any abnormalities, including Celiac.

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Thanks for sharing. I hope they / you get your son's issues sorted out soon, too!

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Nice to have little glimmers of what should actually be normal!

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I second that emotion!

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