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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Do They Always Do A Biopsy During A Gastroscopy?
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I have been told I am going for a gastroscopy and a colonscopy this coming Monday. My celiac blood test isn't even back yet but they are doing these tests to test for "unexplained anemia." My dr is not taking me seriously about the celiac testing as far as I can tell. Anyways I am wondering do they always do a biopsy during a gastroscopy or do I need to specifically ask the dr to do a celiac biopsy. I have already decided I am not going to do these tests if they are not doing a biopsy. It makes absolutely no sense to put me through such invasive tests and not do the biopsy at the same time while they are already in there. I have a call in to my dr but he hasn't phoned me back yet.

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You need to be very specific with the GI. You would be amazed how many endoscopies are done on patients with your symptoms where they just.... look.... don't even bother to take a sample or two, let alone test them for celiac. The doctor should take at least six biopsies specifically for celiac testing. You must insist on this or they will take one or two, and because the damage is not uniform they can miss it altogether because most of it can only be seen under a microscope. If it can be seen with the naked eye you are positive for sure!!!

Best wishes for Monday. :)

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How can I make the dr order the biopsy? I am in Ontario so it is paid for by OHIP and I am worried the dr will say that they don't need to do a biopsy. I am not going under a procedure with risks if they aren't going to do the biopsy so I am trying to figure out how to get my dr to order it.

You need to be very specific with the GI. You would be amazed how many endoscopies are done on patients with your symptoms where they just.... look.... don't even bother to take a sample or two, let alone test them for celiac. The doctor should take at least six biopsies specifically for celiac testing. You must insist on this or they will take one or two, and because the damage is not uniform they can miss it altogether because most of it can only be seen under a microscope. If it can be seen with the naked eye you are positive for sure!!!

Best wishes for Monday. :)

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Check out this link (a medical editorial)

http://www.charlotte-celiac-connection.org/files/Celiac_Disease_How_many_biopsies_for_diagnosis.pdf

where they state:

We recommend that 4 to 6 biopsy specimens be taken from the descending duodenum because villous atrophy in celiac disease can be patchy and orientation of the specimens is variable.

Print this out and give it to him, along with the rest of the information at this link. :)

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Sadly, I think I am going to have to cancel the procedures. I do want to have the biopsy (if I could have even gotten him to order it) but I am an abuse survivor and I have been up panicking all night. Unless they can put me under complete general anesthesia I can't do it. I know they do "conscious sedation" but I have had it before for a different procedure and I was still aware of what was going on the whole time, I just couldn't move or speak. Totally terrifying. Has anyone been successful getting these tests done under GA?

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