• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Newly Diagnosed Hashimoto's Disease
0

8 posts in this topic

A little over a year of being gluten free and found out my thyroid has now gone bad (hashimoto's disease). I asked for more than just the TSH they wanted to give me. All tests turned out significantly messed up so probably didn't need all of them but I thought it was interesting that thyroid peroxidase antibody came out really high (493 where normal would be less than 35). Clearly my body has been attacking my thyroid after I pulled out the gluten. My mom told me she thought I should find an endocrinologist to manage the disease with instead of my GP who is clueless and quitting as of this week. I've heard most endocrinologists treat diabetes and don't know much about thyroid. For those of you with thyroid issues, what kind doctor do you see? Also anyone know if the generic levothyroxine at Walgreens is gluten free? I'm trying to call the manufacturer but apparently when I called was past their operating hours so have to wait. So I'm curious to know! Thanks all!!!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


It really doesn't matter if its an endo, GP, or nd as long as s/he treats you to make you feel better rather than to normalize tsh.

Start here for docs in your area. http://www.thyroid-info.com/index.htm

Keep googling and following links and ask around. Start reading about Hashis, and keep copies of all your labs and dosages and meds. Make notes and keep track of how you feel. Talk to your new doctor about all of it. You'll be able to gauge pretty quickly if you're suited to each other.

0

Share this post


Link to post
Share on other sites

Thanks Pricklypear1971. I'm not sure which all of my vague symptoms are related to thyroid. My main complaint was thinning hair and heavy periods. Other things I'm not sure if they are unresolved celiac or something else. After trying the initial dose the GP gave me, when should I go back (GP didn't mention going back).

0

Share this post


Link to post
Share on other sites

Well, at first my doc wanted to see me monthly (with labs each time). I personally thought that was a bit much (I did arrange to get my lab sheets at each visit so labs could be drawn prior to the following visit).

She upped it every month til she started seeing something she liked (not sure what that was). It took at least 6 months for my tsh to move down but I felt much better immediately.

I can tell you right now you need a new doc simply because none of this was discussed, and you're on t4 only. I pushed for combo therapy up front (benefit of mother who is hypo). T4 only can work, but a great number of patients feel better on combo therapy.

You need to start reading about being a thyroid patient.

0

Share this post


Link to post
Share on other sites

Good to know. My GP is clueless about treating anything beyond a cold. I'm trying to get into see someone who I've heard is good but can't get an appointment until March. What medicine are you on Pricklypear1971 that you like?

0

Share this post


Link to post
Share on other sites
Ads by Google:


I've been on synthetic t3/t4 compounded, Armour (before reformulation), Nature-Throid, compounded natural thyroid, and back to Nature-Throid. I'm trying it again because I felt very good on it but had to switch because of a shortage of product a few years ago (big mess).

0

Share this post


Link to post
Share on other sites

Another idea to find a good doc is to contact your closest compounding pharmacy and ask for a thyroid doc reco. Talk to the pharmacist, unless the person who answers the phone sounds unusually informed.

0

Share this post


Link to post
Share on other sites




Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,371
    • Total Posts
      935,733
  • Member Statistics

    • Total Members
      65,047
    • Most Online
      3,093

    Newest Member
    pidnit
    Joined
  • Popular Now

  • Topics

  • Posts

    • https://okinawahai.com/tips-for-eating-gluten-free-in-okinawa/ Hope this helps!
    • Sorry you're feeling poorly Have you seen this page: https://www.peoplespharmacy.com/2015/07/27/getting-off-ppis-can-be-a-challenge/ I think you can get gluten free DGL, maybe worth a try?
    • I could be wrong but Methotrexate is an immune suppressant so it may affect Celiac testing. I have seen this mistake made with other people with RA. It may be that the only way you will know if it will help is to continue eating gluten free for awhile and see how well it does with the pain levels you have.  Or...have the biopsy.  But, again, will the medication affect that also?
    • Welcome! YES! Some of us who have problems with gluten do not test positive to celiac tests. There is a term for this, non celiac gluten sensitive NCGS and this could explain your symptoms. Having said that, it would be a good idea if you hunted down the actual results of your celiac tests and posted them here. It's possible that your doctors didn't perform the full range of tests and some celiacs only test positive to one of these.  I would first double check on the tests, but once that's resolved you could keep a food diary, a very simple not of what you eat, when you eat it and how you feel. You then introduce a new food perhaps one week at a time and monitor the results. I would start with dairy but I don't know that there's a right or wrong answer. Best of luck. I think regardless of testing you've probably found an answer and that you will probably want to stay gluten free.  Either way you've found a good site and you will have lots of support if you need it Good luck. Matt
    • I am not sure that the thought that your antibodies go down because there is nothing left to attack is true.  If you reach that point, then you should continually have to increase your dosage of thyroid hormone.  You would need full replacement dose that is given to those whose thyroid's have been removed.  I am no doctor so I could be totally wrong. My thyroid antibody number went to 1200 before my diagnosis of Celiac.  I kept my TSH almost suppressed and went by T3 and T4 numbers only.  After about 8 years gluten free, my antibodies went into the normal range.  I figured it was because my inflammation levels went way down after removing the cause of it.....gluten. I now take a smaller dose of thyroid hormone as my regular dose than before I was diagnosed with Celiac.
  • Upcoming Events