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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Dh?
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Does this look like anyone's DH? It's affecting both elbows and itches like crazy...this is actually my little sister and she has had flares of this rash for the last two years and it always happens on both elbows at the same time and always looks like this but sometimes worse...

image

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Hi Mrs Sprinkles. Does the rash appear anywhere else? Does it show any signs of inflammation? I would say that DH is a small possibility but would probably expect to see more areas involved by now. This is how my son looked about 5 weeks ago, and of course I am suspicious because of my own diagnosis! So I googled something like 'bumpy skin on elbows' and came up with a number of other possibilities that could be worth checking out. Sorry your sister is so itchy. Good luck on your quest and please ask any questions you might think of.

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She gets it on her knees every so often too. Some backstory: she has had the rash for two years now on and off but mostly on...she has suffered constipation since infancy, and her enamel is discolored...

Yesterday she stayed home from school because she had a severe stomach ache and interestingly her elbows flared up the same day her stomach hurt and said they itched more than they typically do.

She has gone to the doctor and did all sorts of tests minus vitamins which I found odd because both my mother and I struggle to maintain iron and Vit D levels even with supplements. They tested for AI issues and came back well within normal limits...unlike my doctors who think I'm crazy, her docs are moving towards testing her for celiac disease an sending her to GI.

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Forgot to mention...doctors said rash is not eczema and derm said she wasn't sure what it was because it comes and goes and has been an ongoing issue...my mother wasn't willing to biopsy then because my sister was only 7 and my mom is the type of person who would tell you to put a bandaid over your severed leg so she isn't one to rush to doctors for anything even if its recommended.

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I have a friend who has DH. This is how his rash presented for many years before it spread to his ankles and the back of his neck.

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She is also ALWAYS complaining of a severe stomach ache (which is a reason the did an X-ray and only saw she was constipated--nothing new) and her stomach problems have been so severe she has cried in pain and missed several days of school.

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Oh no :-( Definitely starting to sound more suspicious. Hopeful's information is interesting too. As I said, this is how my son looked 5 weeks ago. Now he has suspicious patches on his ankles, back of his neck and back of his hand...maybe the same path as your friend, Hopeful, just a little quicker...

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    • Thank you for your replies, everyone! It was very helpful. I don't think I am comfortable with passing the whole gluten introduction diet again and getting that rash. Or, even getting the rash on my face flared up again. It actually might be a good thing I got 'glutened' at that bd party so I could finally make connection with all the symptoms. As I thought back about my 'allergy' rashes I start wondering if it could be related to gluten all those years but no one even suspected. For example, at some point I started getting itchy rash around my knees, spreading down to ankles (front of the legs) in summer. The dermatologist and GP said it is 'sun allergy'. The usual allergic treatments helped for the itch and the patchy scales slowly healed but it flared up on the same place during the summer multiple times. The strange thing is that it never flared up when I went hiking, or walking in the sun in the city (I have extremely low vit D levels and I need to supplement, so it was no-no to stay completely covered no matter the rash...I needed my natural vit D). The rash only appeared after beach visits. At some point I started washing and drying my skin with a towel every time I went out from the sea, the rash still appeared but I was able to control it so it showed up on day 4-5 when vacation was almost over. Then, last summer after I was completely gluten and dairy free for approximately 9-10 months, and I was annoyed of washing my skin each and every time and getting those weird looks on the beach, I stopped doing it. I was prepared with medicine and creams for that rash but guess what - my 'sun allergy' was mysteriously gone. Not a single blister, not a patch of itchy skin, nothing. Another 'allergy' case of mine is that I found from my own bad experience I got very bad rash from red dyes (in food or cosmetics). If it is food it shows on my face, if it is cosmetics (soaps, perfumes)...whenever I applied it. I am now reading that people with dh should stay away from red dyes. Mere coincidence? I don't know, I am more and more suspicious I could have this DH thing going on for years, if that is DH. I am just annoyed that all the dermatologists I went to during all those years never made connection. No one even suspected. It was the usual path - cortisone creams, pills, etc. At some point cortisone creams were no longer working so they started prescribing some mixtures made in the pharmacy specifically for me with sulfur. That worked like a charm but I couldn't walk around all covered in white cream looking like a mummy (long sleeves in summer here where I live and summer = 35-38 C, is not fun). Then, I tried homeopathy....it worked like a charm but of course those rashes kept appearing and disappearing, I was only able to control the itchy skin so I don't scratch, scratch, scratch...looong, long journey! Sorry about my rant...and, one more time thank you everyone who found the time to reply and share your opinion! Much appreciated!
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